It’s not easy. Pain is invisible. Life must, to a certain extent, go on.
I first heard about the work of patient/advocate/blogger Jenni Grover Prokopy(pictured at left*) years ago when, coincidentally, we were each named by Our Bodies Ourselves of Boston as two of their 2009 Women’s Health Heroes. She describes her blog ChronicBabe.com as all about how to live a kick-ass life in spite of living with one or more chronic illnesses. Jenni has an up-close and personal relationship with this topic. First diagnosed with fibromyalgia 20 years ago, Jenni was terrified. She felt completely alone – medical resources were scarce, and none of her peers could relate to what she was going through.
“My life was turned upside down. I went from being a hard-charging, super-athletic chick to feeling so fatigued I couldn’t walk more than a couple blocks. Severe pain kept me from pursuing career opportunities and social activities. And within a…
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