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TToT: The Mercurial April of 2018 – Foreshadowing Farce, #10Thankful

Just like moons and like suns,
With the certainty of tides,
Just like hopes springing high,
Still I’ll rise.

—Maya Angelou

This week, all of Canada is mourning loss of life, young and promising players, in a horrific bus crash in Saskatchewan.

Ten Things of Thankful

I am thankful that all of Canada has come together in a time of grief.

A GoFundMe page has been set up, which has already raised over 4 million dollars for families and survivors, and Justin Trudeau visited the injured. With all the bad in the world, even in moments of shock and loss, I feel better to sense a coming together of my country, from coast to coast to coast.

‘Hockey stands with you’: Condolences, support pour in for Humboldt Broncos | CBC Sports

I am thankful that hockey is what it is, means what it means to so many Canadians, even if not always especially and specifically for me.

From small town teams to the NHL, support to those (on and off the team affected) has been swift and strong.

https://ca.gofundme.com/funds-for-humboldt-broncos

I’m thankful for an angel who is going to leave something behind in tragedy, to be able to at least help someone go on, in good health again.

Lethbridge hockey player’s organs to be donated after fatal Humboldt Broncos bus crash | CBC News

I read that one of the young men recently signed his donor card. This is a tough subject, but as the sister of someone who five years ago received a kidney from another person lost, I know the other side, that the side of organ donation.

I don’t have a clue about the tragic side of having to let go like that, but to know a gift is being given, I can’t pretend I don’t recall that relief I felt for my brother’s sake and for my own.

I don’t know what else to say. It’s one of the hardest things any person could experience, I’m sure. Still, I had to speak up about it, to include it in this list.

I’m thankful for beautiful art that remains after death.

One of the fifteen killed was not only a hockey player, but he could make brilliant music on the piano. (See performance link above.)

I will start and end this TToT post, speaking of music, but as things must and do go on…

I’m thankful I got a sudden call that a cancelation came up for me to get a physical therapy appointment finally.

I’ve been waiting for this call for over a year now.

I’m thankful the therapist took the time to go through my lengthy medical history with me.

It took up her whole allotted hour. We didn’t even have time to get to any stretches.

I’m thankful she plans to educate herself, to read up on my rare syndrome, before our next appointment.

I am thankful for the smooth and textured needs of two new bracelets.

Some are smooth, but other parts are made up of lava stone. They have tiny grooves in them and you’re supposed to drip the smallest drop of essential oil on them. Then, I can have a gentle and soothing touch of scent against the skin of my wrist, wherever I go.

My cousin, who runs a hair salon, also sells handmade items, such as jewelry and things. I like to shop, supporting local makers.

I’m thankful I got to attend my violin teacher’s masters recital.

I met her family after and they, along with her friends and other students/teachers, were all so proud of her, including this one student of hers in particular.

So many people, all there to support her. She has worked at it nearly all of her life. Her skill has taken years to develop. I will miss her and everything she’s done for me, once she moves on for further education, but this show was outstanding.

I was in a mood all that day, before her show that night. I don’t know what it was or why. I kind of wonder if it wasn’t me, feeling anxious and nervous, for her sake. I get more nervous for others more than for myself, if possible, when someone I know or care about is going to be tested or performing in front of people, like when my brother plays guitar.

This time, I am not sure, maybe it was just a bad day. Then, when I sat down, the song she played on her violin seemed to calm me, changing my mood and reducing my anxiety. The song was something I’d really never heard before. It was abrupt and anxious sounding, but it seemed to put, into music, the exact feelings I’d been experiencing. It took it all down several notches and I felt like it expressed precisely how I’d felt.

I’m thankful for not only a piece of music that speaks to me, but also a passage in a book.

This one is from A Wrinkle In Time. I read it and it brought together the elements of my own head, the themes that have been with me most of my life, something deep inside, of which I’ve put into my own song lyrics in the past. I’ve even dreamt this sensation:

“This movement, she felt, must be the turning of the earth, rotating on’ its axis, traveling its elliptic course about the sun. And this feeling of moving with the earth was somewhat like the feeling of being in the ocean, out in the ocean beyond this rising and falling of the breakers, lying on the moving water, pulsing gently with the swells, and feeling the gentle, inexorable tug of the moon.”

From the moon to the sea…RIP to those lost and deepest condolences to all those who’ve lost loved ones.

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TToT: Chameleon in a Room Full of Mirrors – Penblwydd Hapus #10Thankful

“You are strong because you are imperfect and you are wise because you have doubts.”

—Clementine Churchill

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This is a reminder of the little girl I once was. My sister found this card in the library book my nephew brought home from school last week.

What are the odds and my first thankful after musing on what it’s like to turn another year older, all while discovering those reminders of the girl you used to be.

Ten Things of Thankful

I’m thankful for the short story I managed to come up with at my writing group, even if my braille display did crap out on me (dead battery) right before I finished it.

It was a short story about a young girl, living in Europe, only a few years before the breakout of World War II and she is celebrating her birthday with a skating party with friends.

I will finish the story and read it out loud at the next writing group night.

I’m thankful for an inspiring first meeting with some new peers living with chronic kidney disease.

We met to discuss how those of us who’ve been and are currently living and dealing with kidney disease can help a new generation of those going through or about to go through it.

Some were on dialysis and some, like myself, were transplant recipients. One was even newly diagnosed and didn’t know where to start. I hope we didn’t overwhelm that person too much.

So much excellent discussion went on. It felt empowering, more than I’ve felt in a long time, as I’ve been off of dialysis for so long that you start to forget what it was like. I have this chronic condition, transplant or no transplant, and may need help from these same sorts of people again one day too.

I am thankful, also, for the guy next to me who got up and brought me a new plastic fork after I broke mine trying to stab a cucumber out of the pasta salad on my plate as the presentation went on.

I hate those cheap plastic forks.

I’m thankful for Apple Music.

Now, for a monthly fee (after the first three free months) I have millions of songs at my fingertips, right on my phone for streaming.

I’m thankful for a surprise right before my birthday.

Native Traveler, awarded gold in the audio story/blogging category from the NATJA

The host submitted the Native Traveler show with my piece on No-limits Travel for the Blind to the North American Travel Journalists Association (NATJA) awards , among a couple of others.   The show won Gold in the radio broadcast category!.

North American Travel Journalist Association awards list for 2017.

I’m thankful for the card, flowers, and butterfly for my keychain, all from my wonderful neighbour.

The card was one of those singing ones.

The butterfly has now become a symbol with meaning between the two of us. I am keeping it with me. I like to trace my fingers around the wings. I used to love to draw bright, colourful butterflies when I was younger.

The flowers were fragrant, but the stalks were so heavy that my mom had to prop up the flowers, using a cooking pot and some cardboard.

I’m thankful for all the well wishes from family and friends, on Facebook and off.

I wasn’t feeling so well on my actual birthday, but it was nice to hear from people. It cheered me up a bit.

I’m thankful for the cake my mother made for me.

Cherry chip with a cheesecake swirl and white chocolate icing.

She is amazing with certain kinds of cake. It was made with love and care. Thanks Mom.

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I’m thankful for a snowy day on my birthday.

I felt unwell, stayed inside the whole day, but I was glad to know what was going on, a snowy world, just outside my window.

It was a perfect February day, even if the next one brought rain and then freezing to produce slick conditions for walking.

Someone on my blog wished me this and I had to look it up, but was super glad they’d said it:

https://en.wiktionary.org/wiki/penblwydd_hapus

I’m thankful I can learn new things, even and especially at thirty-four years old.

Penblwydd Hapus to me.

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TToT: Lightbulbs and Lightning Strikes, #LookBackMarchForward #10Thankful

January isn’t making anything easy on me, but it too shall pass.

Somehow, I’ve had Billie Holiday on my mind as this month stretches on, painfully on and on.

Ten Things of Thankful

I’m thankful for the never ending list of ideas that come to me, as potential topics to write about.

Writer’s block, no way, at least not in the usual way of things.

When I am given the job of writing something, I may get a block, but that’s more from my fear of not being able to do the job I was asked to do, not being good enough.

I’m thankful for a return to my writing group in 2018.

It was a difficult day/week/month, but those people are there for me.

I wrote about a young woman, musician, who was hearing the news that Kurt Cobain had died, and wondering how to navigate the perils of fame.

It is a question on my mind. The group listened to my clumsy story and seemed curious, as curious as I am about what I’ve been thinking since I heard Dolores O’Riordan was gone.

I did smile and even laugh, with my group of local writer friends. Worth it.

I’m thankful for a list of tough questions to answer, to better know myself.

I am a writer, but I have a lot to learn. Sometimes, it requires that I look deep into myself, to find the truth. Otherwise, my writing will not keep on the forward momentum I hope to have.

It’s hard work, difficult and painful and sensitive stuff, but I am determined to see things more clearly on the other side.

I’m thankful for a first successful meeting of
The Canadian Federation of the Blind,
Ontario, in 2018.

I’m thankful for a contract opportunity to write about something so important to me.

Braille is not a well understood thing, for many, even as technology takes on bigger parts of all our lives.

My early literacy is thanks to my parents and to the school I was in and braille is a large part of all that.

So, to share about the value of braille is so important to me. I just hope I can do it justice and give to it as much as it has given me.

I’m thankful Canada’s government didn’t shut down.

Disfunction at the highest level.

I know very little about trade agreements, but Canada is doing the work and staying involved with other countries, while moving away from what the US seems to be heading for.

They are being run by someone who only pitches America, America First, or whatever, all things made in America. Whatever, to bring more jobs. I guess that is left to themselves, in their own country. Isolation.

If his government can’t even work together, to stay open a year after his inauguration, how well will they do, on their own, if that is what they prefer?

I’m thankful I could be in on a meeting to discuss traveling out west, for a convention in British Columbia.

The Canadian Federation of the Blind have a convention, every May, where issues important to blind Canadians are discussed.

This year, Ontario is coming to western Canada and we are going to make our mark.

I was only in B.C. in the airport, changing flights to the Yukon. I intend to go back, to speak about the project to make audio description in movie theatres a common thing, and I will see the Pacific Ocean while I’m at it.

I’m thankful that the marching continued, one year later, with all the more reason to do so.

I wondered, did worry, that it was a one year hit action/movement and those who like to criticize would be able to point at the one time visual as a sign that making our voices heard isn’t needed or productive.

I did not see all the signs, but had a few read to me. Some smart sign writers in those marches.

This is a current US president thing, true, but it is bigger than that guy. It is a stand against what has been.

It leaves a bunch of us out, those who find marching in the streets difficult, but it is heartening to me anyway.

I want things to only get better, going forward, in the years to come. I have a vested interest in that, in compassion and in empathy, for not only one gender or class or whatever.

I understand the fatigue that can set in, but we all must keep doing something, however small. I am still working out what that something is for me.

I’m thankful for a chance to listen to a local orchestra, playing my kind of a symphony and to see a movie live, that I missed the first time around.

I saw Harry Potter and the Philosopher’s Stone, the film, on a big screen at a sport stadium.

Then, I saw the soundtrack being played by live orchestra. It was a strange experience of my senses.

I heard parts of the soundtrack, differently than I’d ever heard them, when blended into the background of the movie on DVD at home.

Int was strange, seeing with a crowd of other major Harry Potter fans, with all the cheers and the comments made by nearby fans.

The bells and the percussion section and the other main instruments that make up that famously known and heard Harry Potter musical sound.

I’m thankful for things that happen (or don’t happen) for a reason.

Maybe I don’t get what I want, in one moment, but that leads me to something else. Maybe I am getting what I can handle, what I need to teach me what I need to know.

Who knows.

I resisted the “door/window” line of optimism.

I am ending, this week, with another comforting song from The Cranberries, the Irish band that was and is no more.

My brother generously added it to his playlist on the radio show he hosts, every Friday morning, on a college radio station in London, Ontario.

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Sigh – And The Search Continues, #JusJoJan

I say I crave it, but it’s hard to obtain it.

yAflQT6.jpg

I can’t seem to
find the silence
in all that goes on.

the buzzing inside my own head. I think too much, about too many unanswerable questions.

I can’t stand the silence sometimes, seconds ticking by. I always have something going, playing, to occupy my thoughts, though they run on and on anyway. When I go to sleep I always have music on in the background or Netflix on my phone. I listen until sleep overtakes me.

I live with sound in the daylight hours too. My computer and my phone have voice software to read my emails and text messages. I have separate sounding notification beeps to alert me to what comes through my phone. I am constantly listening for those.

I listen to the birds and the sirens and other vehicles, just outside my window. I listen for my dog to inevitably bark at something and I listen for a sign that my cat is nearby. He doesn’t meow as much as he chirps you see.

I listen for a knock at my door because my doorbell hasn’t been functional in years.

I listen because I can barely see.

I wrote about
darkness
a few days ago, for Just Jot It January.

I feel blown away that someone’s worst fear would be to lose their sight, but I know the feeling. I also know that the thought of losing my ability to hear is simply unthinkable to me.

Just Jot It January, #JusJoJan

And the search for silent moments, for peace and quiet, all while thankful I have the ability to hear the sound if I choose, it continues.

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Ode and Lament

RIP Dolores.

Her Headache

As the final few days of 2014 are coming to a close, I wanted to highlight a few anniversaries. Most importantly is the twenty years since the release of an album full of music that has changed my life and gotten me through everything from illness, to loss of a loved one, to the end of an important relationship.

The Cranberries released their second studio album in 1994 and this has remained, not only my favourite, but the favourite of so many others. Songs like “Ode To My Family” and “Zombie” remain this Irish band’s biggest known hits of all-time, but it’s in every song and beautifully haunted lyric that I find solace and refuge from some of the harshness of life.

I know this particular album may not hold the same meaning for many people as it does for me, but I urge you to listen to it sometime…

View original post 2,506 more words

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Ketchup On Pancakes: Episode 8 – Farewell 2017 (By the Fireside) #Siblings #Podcast

Here we are, back again!

17AeHp1.jpg

It’s 2018 and we’re sitting, warming ourselves by the crackling fire in our latest and first episode of the Ketchup On Pancakes podcast of this new year.

Won’t you join us? It’s bound to make you smile.

Episode 8 – Farewell 2017…By The Fireside (Ketchup On Pancakes)

Last year was “beyond expectations” great for both of us and we, at Ketchup On Pancakes, have high hopes for the coming one.

Also, thanks to the mysterious fire stoker, fanning the flames behind us as we talk, I’ve decided to make “stoker” my word for 2018 and I vow to stoke the fires, like our stoker, to help keep the warmth and the glow in the world going.

Also, do check out the audio story we created. It’s a holiday story perhaps, but it also takes us back to a simpler time and maybe it will do the same for you too, at any old time of year.

E.T. & A Slinky (recorded for Jon Solomon’s 25-hour holiday radio marathon)

Are you fan of the film about the lovable alien? Did you have a slinky growing up?

Also, please feel free to follow
Ketchup On Pancakes on Facebook,
for mostly regular updates on all things podcasting and related subjects, specifically when we post a new episode.

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TToT: Insertion Follows Playback Like Edit Follows Automation – Full Cold Moon, #10Thankful #IDPD2017

“(UN IDPD) serves as an important reminder that globally there are over a billion people with a disability. This year’s theme, “Transformation towards sustainable and resilient society for all” is especially relevant to our accessibility efforts…”

—Microsoft

More on IDPD2017 from the WHO.

I know when and how to celebrate and I am learning when to stand up and speak up for the important things – overall, a thankful post brimming with gratitude really.

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Photo caption: sisters watching the decorating of their father’s 62nd birthday cake. Talking/smiling. Happy Birthday Dad! XO

Ten Things of Thankful

I am thankful for this artistic girl.

Making works of art out of the task of cupcake decoration.

KpThhIj.jpg

Making something, all her own, and loving it.

I am thankful for this sly guy.

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He likes to hide, but there’s a mischievous spirit just under the surface, behind the hands that sometimes cover his face when he’s playing shy to the camera.

I am thankful for such a smart and curious almost ten-month-old sweetheart.

WsCrqPS.jpg
Photo caption: Cousin hugs.

Her big cousin Soph adores her. It’s sweet to see them interact.

Mya is so interested in everything now. She is so close to walking, as she sees the rest of us doing it and wonders why she hasn’t managed it yet.

She is the happiest baby I’ve seen really. She likes to cuddle, but I can barely keep up with her when she’s on the move, and she’s not even a year old yet. Her mother and I are in no real hurry though.

I am thankful for the missing and missed one at last weekend’s gathering and the kind soul he is.

Old soul is my man Maxwell.

I am thankful he could enjoy his new friend’s birthday party. He got so excited. He was counting down the hours to his first party invitation since starting junior kindergarten in September.

I am thankful for a name given, from a friend, that suited my current state rather perfectly.

**Given what you’ve shared recently, I’d say the cauldron’s selection is a potent one for you. Your Embrace the Darkness name is “Good Night’s Sleep.”**

I had mentioned my sleep/dream issues lately and she generously handed this one to me, gifted me with it as a way to accept and deal.

I am thankful for a visit with one of the few people in my life who understand about living with chronic pain.

She brought me a coffee, doughnut, and a sympathetic ear.

She lives with pain and manages to hold onto her most original sense of humour and I take lessons from her on that front – where I find strength through some good sarcasm now and again, I see she does too.

I am thankful my friend arrives home from Ireland next week for the holidays.

I see her and her daughter just once a year, at this time, and it’s a fascinating way to observe the growing up of any child. They are quite the pair.

A little Christmas shopping with them maybe? I want to get her something memorable, as I only get to see her once a year and it takes her a little time, each time, to warm up to me again. A toy may help, but it can’t be anything too big because it must get back to Ireland.

Lots for them to cram into only a few weeks here back in Canada, with family and friends, but it’s always fun.

I am thankful for such kind and generous parents.

They bring me medication when I go away and forget it at home. They go that extra mile, in so many ways, and are flexible in so many ways too.

They are both unflinchingly generous people.

I am thankful for another job completed and well done, hopefully.

I wrote a memoir piece about our family, from the past, and the early December trips to a giant toy store we’d make as a family.

I turned it into a bit of a back-and-forth with me and Brian. We recorded it and added sounds and a bit of music to the piece.

We are submitting it for consideration on my brother’s favourite holiday Christmas marathon radio show he has listened to for the last three years.

Even the year of his horrible fall, when he was slowly recovering with a brain injury, he listened. The jingle bells accompany the radio guy and he plays some of the most obscure music for the season, to be heard on a New Jersey college station.

In the midst of all the musical pieces, he plays short holiday themed stories, recorded by friends and fans. This year we wanted to be included in that.

We shall see what he thinks when we send it to him.

Adding more…

I am thankful for fresh edits to a piece and that time away so I can come back at it with fresh eyes.

I wrote about the road I took through my Yukon visit and the road I’m traveling down in my life.

I worked on it with one editor and took a few weeks away from it. Coming back now, with fresh eyes, I can consider other editing suggestions and work to make it the best piece it can possibly be.

I just saw a Yukon documentary, playing in theatres for a limited time, and this virtual return to the north of Canada has given me new life to put into the writing.

I appreciate all I learn and how I can improve and grow as a writer, with the guidance of talented people I am lucky enough to get to work for/with.

I am thankful for a movie about the Yukon in my heart since I visited there, even without the DVS working.

It’s funny to have the story, on the International Day of Persons with Disabilities, but again we ran into issues with the audio description service at the theatre.

I was pleasantly surprised to discover they said they had it. A worker disappeared somewhere and came back with two headsets and wireless boxes.

Once inside the we turned them on. One worked and the other did not. The first worked, but it was describing a story that certainly wasn’t that of the Yukon.

We were offered their apologies and two free movie passes, but that won’t address this issue.

I did enjoy the film, despite all that, but a documentary, at least, has steady narration.

I don’t even think about going to an action movie or one with a lot of adventure, not without the proper assistance from a helpful person sitting next to me.

This is no answer. Perhaps not that many blind people go to movies, anymore or ever, but this must be improved upon.

As for the movie, I nearly came to tears more than once, as it brought back sense memory of my days there and my deep feelings about so much of that wild beautiful part of North America.

I am thankful for the day, December 3rd, to highlight disability, not just in North America, but around the world.

Every day is a day to talk about it, without becoming preachy. I feel this is something I have been called on to do, but it is a rather tricky balancing act.

I watched a Canadian national news broadcast and no mention at all was made nor any story aiming to shed light on some aspect of disability and what IDPD means to so many. I know an hour long news program can’t get to everything, but I think this should have been covered in some way.

I plan to do a lot more of this activism stuff in 2018 and beyond.

I am thankful for the final super moon of 2017 and the fact that, in spite of my worsening eyesight, I could still make it out on the horizon as we drove home.

I am all about horizons these days. Onward and upward, all while still making the effort to enjoy the final weeks of 2017 in the meantime.

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