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So So Close, #JusJoJan

Hmm. Let me think.

Just Jot It January, #JusJoJan

Sure, I spent all that time coming up with over one hundred things I am thankful for just the other day, but coming up with the opposite is no problem, now that today is a new one.

New beginnings. New start. Starts and stalls and stops.

I can be restrained about it though. I won’t list quite so many things I am ungrateful about. I really still am grateful for everything I listed the other day. Promise. I am lucky to be me, right now especially, but since I am here…might as well jot down a few thoughts, after the day that just was.

I am keeping an open mind and heart. I am trying to let more of life roll off my back, as I am about to embark on one of those rare adventures in life.

If I had nothing today to write about especially, nothing to complain about, I would simply move along, right past this prompt in particular. Today was one of those tricky days though, and it just so happens that a complaint was what my day was all about, though I am still grateful for a brother who is happy to help me out. I can listen back to all this music, ready on my laptop, for my entertainment needs as I am soon to be on my way. He did that, made that possible.

I can receive and send email on my new phone. Yes, I had no choice. Not new, as far as the newest phones on the market, but new to me. After several years, even a slight upgrade is new.

It requires a lot of updating contacts and other prep crap. I can not complain because I have a portable electronic device to carry with me everywhere, to keep my family apprised of my whereabouts. They appreciate that too.

Sure, okay so I have a few little complaints. My contacts were updated, but not the names. It’s funny how we get so used to not needing to remember people’s actual phone numbers anymore. So, all these numbers in my phone, but ah…to whom do they belong?

Complaint number one.

Then there’s the fact that both myself and my brother received new braille displays that are meant to work with Bluetooth, with our phones. First, he tried to help me and he screwed himself in the process. My braille display can’t seem to recognize my phone, or is it the other way around? I don’t even know anymore. Long long longest of days.

I could complain that I don’t feel one hundred percent physically, but I could be grateful I have a doctor who is thorough and consistent and reliable and kind. She is doing her best to make sure I feel as well as possible for my adventure. She just feels bad she hasn’t been able to help me feel better still.

I could make a complaint that technology is awful, as it looks like my braille display won’t work, in time for my adventure, to work with my phone. Or, I could just be thankful it still works with my laptop. I need to be able to use it to read my writing out loud and that I can still do.

So, my brother is persistent too. He would and could work on something all day and night, until he had it figured out. So, did my silly newish phone do an update to the latest OS in the night, without my knowledge and permission, and could that be the reason it no longer recognized the braille display it recognized just a few days ago?

I don’t know all these answers. I don’t, unfortunately, have the time to get to the bottom of it all this week. I have things still to do to be ready for my adventure.

I have a complaint, sure, but I am trying to look on the brightest of bright sides. I don’t have to look very far for that, not today.

Thanks Willow,
Linda,
and Shan Jeniah’s Lovely Chaos,
for a place to register a formal complaint about technology and life in general.

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Labeling Envelopes, #JusJoJan #SoCS

Pesos come in all different sizes. This is awfully helpful.

Just Jot It January/Stream of Consciousness Saturday

I used to be able to see the dark numbers on money or even feel it. Now, money here in Canada is smooth and it has braille markings on each bill, to distinguish the different currencies. This is key.

There could be cases of blind people getting ripped off because they gave the wrong dollar amount, unable to tell the difference. Coins are of all different sizes and textures, but it is often helpful having different amounts, to compare and contrast.

U.S. bills are not labeled and I don’t believe they come in multiple sizes. I don’t frankly see why it’s so difficult to put braille dots on the bills in the United States. They have the ADA don’t they (American’s With Disabilities Act) – shouldn’t they be the first to do this? One thing, of the many things, that baffles me about that country right now.

Blind people learn to come up with creative solutions for many many problems. They fold their money in specific ways and put it in places, so they know which dollar amount they might be taking out. Accidents do happen yet still.

I frighten people a little bit, when I let it slip that I enjoy the smell of things like gasoline, permanent markers, and car exhaust. To be clear…I DO NOT SEEK THESE THINGS OUT!

I used a lot of permanent markers, when I was younger, because I could see them to write. Smell is an important sense for me. I guess I just have to hope no permanent damage was done. No lasting affects on my brain.

I even enjoyed the odour of the saline solution, I believe it was, that the nurses would use to flush out my central line for dialysis. The throat and the nasal passages are connected and I would experience a strange sensation of tasting and smelling that I found to be quite pleasant, whereas most of dialysis was not.

As for scents of things I do not like, money is at the top of my list. Of course, we all use and need money. Some of us love it more than others. I appreciate having it, but not smelling it.

I hope I can hold onto it. I hope I can tell it apart. Please, let me figure out the conversion rates.

Gulp!

Please, oh please!

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Two Years of Life of a Blind Girl

It’s fun to look back in reflection .

Hello lovelies!

On this exact day two years ago, I published my first blog post and what an incredible two years it’s been. So much has happened, both as part of my blogging journey and in my personal life. I thought I’d do a post reflecting on my favourite memories of blogging over the last two years and some of my favourite posts that I have published so far.

When I started blogging, I honestly didn’t think that anyone would read my posts and people would actually visit my little corner of the internet. When I published my first post two years ago, I didn’t really know what I was doing but since then I’ve grown as a person both online and offline, found my writing style and developed new skills that I never thought blogging would give me.

 

I’d firstly like to thank all of you for your support, you…

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Shades of Blue, #SongLyricSunday

I was at a spa recently and found myself standing in front of a wall full of nail polishes and was asked to pick which one I would like.

wPAcaw5.jpg

How do I do this, when I can no longer see the colours and shades, or even scarcely recall what they looked like?

This week,
for Song Lyric Sunday,
Helen went with a band which brought back some memories.

So Cold
is not my entry for the week. I just came across it when listening to Helen’s choice and I did feel the singer’s intensity. I suppose it is helpful for getting out feelings of aggression or frustration with life, like the things none of us can control, like losing sight or loss of a loved one or any number of things.

Not wanting to follow too closely to Helen though, here is my official song choice:

https://www.youtube.com/watch?v=WX2TXMJXS4o

I have had a deep connection to this band for years, getting me through multiple hospital stays, over and under the trials and beauty of loves…ah!

Then, a friend of mine since we were ten years old applied to medical school in Ireland and my dream of visiting became a reality.

This friend, she stood with me at that wall of colours I could no longer see and she went with her favourite purple and, though my first instinct was my favourite red, I ended up choosing navy blue.

***

“So Cold In Ireland”

Here is a story
of hope and of glory.
He’s eighteen years old
and well I fell in love.
But after that,
where have you gone, from me?
The one that I loved endlessly.
We used to have a life,
but now it’s all gone.
Mystify…
Does it have to be so cold in Ireland?
Does it have to be so cold in Ireland, for me?
Are they ready for me?
Where have you gone, from me?
The one that I loved endlessly.
We were to have a child.
Yesterday’s gone.
Well I knew the time would come.
When I’d have to leave.
Go on.
Look what they’ve done to me.
They’ve taken my hand…
And it’s killing me.
Killing me, killing me, killing me!
Does it have to be so cold in Ireland?
Does it have to be so cold in Ireland, for me?
Are they ready for me?
But I’m afraid I’m returning to Ireland.
I’m afraid I’m returning to Ireland.
I see, that there is nothing for me.
There is nothing for me.

LYRICS

***

My friend was visiting family and friends like me, back here in Canada, but maybe…it may be that this is no longer her home anymore.

Now the holidays are over once more and she has officially returned to Ireland, to her life. Her daughter is Irish and I love that. It is her home, possibly their home, forever. I will miss them. I miss Ireland.

This time of year I don’t get depression as such. I just feel the time of year and blue felt right, but even blue nails don’t last.

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One Dot at a Time {VisionAware post}

Braille is the best!

Adventures in Low Vision

 Photo shows braille lettering on a white page. Welcome, 2017.  Resolution makers, breakers and those who don’t bother, we all face the sparkling promise of the year to come.  It’s invigorating to imagine shedding the dry skin of previous failures or poor choices and to begin with a smooth touch on new goals.

For me 2017 will be another year full of adventures–intentional and otherwise–as I live each day well with low vision. One of the fun challenges I’m doing is learning the braille alphabet. In celebration of World Braille Day as well as Louis Braille’s birthday, VisionAware published my piece, One Dot at a Time, on learning braille as a person with low vision.  Braille will continue to be something I value in 2017 as living well is all about choices and options.

How do you mark the new year? What resolutions or goals have you made for 2017? What do you think about braille?  What choices and options are you grateful for…

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Happy Holidays and Traditional Thankfuls, #FTSF #TGIF #10Thankful

One of my favourite Christmas time traditions growing up was to go for a drive on a snowy night to check out all the houses and their lights, coloured or all white. Didn’t matter, not at one time.

This holiday season I still feel grateful for so many things, including the lights of Christmas. It is not so easy to spot houses covered in lights anymore, but I am still thankful. Having traditions at this time of year helps to brighten my mood as the end of another year draws to a close.

And what a year it was.

tM8mWQ2.jpg

I am unable to really see this photo now, but sounds nice anyway. Trees. Lights. Snowflakes softly drifting down.

December is here once more. I have a tree-like situation in my living room, lights outside on my house, and snow is starting here in my part of Canada, but all over really.

I am thankful for where I live.

I am thankful because I know Canada isn’t the greatest country in the world, but it is pretty great still. I am happy to see Justin Trudeau using social media, as is how it’s done these days, but he uses it without malice or ugly undertones.

The still current U.S. VP Joe Biden visited Canada this week and spoke to the Prime Minister and the representatives of the provinces, about climate change. It is close to many Canadian’s hearts and on many of our minds, the arctic, pipeline concerns, effects of oil on animal species, and severe weather patterns with melting sea ice. It isn’t so easy to ignore, but I know it isn’t easy to figure out either.

I know a lot of people who live here hate the cold and the snow of the long winter months Canada is so well-known for, but I can’t think of anything better than a still, silent, and snowy night.

I am thankful to have a mother who loves decorating for the holidays and she sets everything up for me, now that I am on my own.

Last year, around this time, our family found ourselves in a frightening situation, likely the most frightening we’d ever experienced, which is saying a whole lot.

It wasn’t so easy and somehow didn’t feel quite so important to decorate for Christmas, while we waited to see what my brother would be like when he woke from a sudden head injury.

Of course, as soon as the shock wore off and things began to look up, family and holidays were once more the priority and felt right to celebrate.

None of us, nobody in fact wants to spend Christmas in a hospital, but they are so nice to have when needed.

I am thankful that I can still see Christmas lights.

Who knows…next year this time…five years from now…ten and beyond. I’m living in the now and enjoying what I have while I have it.

I am thankful for the recognition that is still extremely necessary and is brought into focus on December 3rd, every single year.

International Day For Persons With Disabilities 2016

I am thankful for set plans made this week.

It feels good to see the plans forming officially. It will be here before we know it…before I know it. Preparing. I can and I will do this.

I am thankful for the help I’ve received so I can be comfortable with my stuff I will be taking with me, my ability to read and write, and to just fit in and be another member of the class.

I am thankful for the guidance from my writing mentor, a wonderfully helpful local travel agent, my parents, and all the family members who have been so supportive of me wanting to take on a new adventure in 2017.

I’m thankful for some of the fascinating reading material I’ve received already, reading material about one place in particular where we’ll be during the writing workshop.

I am reading New York Times articles about a place of art and that goes by the name, translated from Spanish, to mean “House of Frogs” I believe. Better than “House of Scorpions” as I am a little more nervous at the thought, ever since I read “The Pearl” in high school.

The Pearl by John Steinbeck

I’m thankful that I sold two more copies of the anthology where my story can be found, from 2015.

After The Scars – A Second Chances Anthology (Goodreads)

One minute, it went from the reading material from off of my shelf, to use for scanner practice, and then suddenly two copies were being requested. A lovely surprise.

In the last month or two I’ve gotten my anthology possibly sent and traveled all the way to Australia and now a copy will surely live at a school for the blind that I did not attend, but I know lots of people who did.

I thought I would combine the TToT this week (after missing last) with Kristi’s
Finish the Sentence Friday.

I will be writing my own brand of a 2016 summary, but I thought I would celebrate a little first.

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The Real Problem with “Drive-By Lawsuits”

Most of us don’t like to cause a fuss, but we all need to start thinking more about this. It matters.

crippledscholar

On Dec. 4 the show 60 Minutes featured a segment on “Drive-By Lawsuits” hosted by Anderson Cooper. A drive-by lawsuit is a lawsuit filed by a disabled person based on an ADA (or other accessibility law depending on country of origin) violation. These lawsuits are framed as a nuisance as they are sometimes filed by people or law firms who do this regularly.

There are a number of problems with the segment.

It utilizes stigmatizing footage of disabled people

The segment utilizes background footage of Ingrid Tischer who has this to say about seeing herself in this context,

You know what’s awesome? Seeing yourself — excuse me, parts of yourself, the non-mouthy parts — on The TeeVee showing how disability access in built environments are achievable and cool in a segment where the talking parts of other people — excuse me, men people — explain the horror of…

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