The Good Old Days: “We’re Drowning In It!” #SoCS

I have a headache. I don’t know where to start.

It hurts, threatening to burst under the weight of it all.

It’s just another speech on the US 2016 election campaign. Still, underneath that, there were parts that were all, essentially about human decency.

Michelle Obama spoke and I listened and I felt the familiar stinging of tears starting to form in my eyes.

I put off listening, as Facebook’s newsfeed blew up with people sharing the speech and lamenting its sincerity and harsh reality. Finally, after a bad day of becoming choked up on New York Times Modern Love essays about children and adoption, I thought, “why not?”

Every day I can’t believe it. The days are constant: International Day of the Girl (which Michelle mentions), World Sight Day, Blindness Awareness, White Cane Awareness and people can never seem to settle on the correct word order for some of these. But I guess it doesn’t matter what you call it. We’re all just trying to get by and to be heard and valued.

I see less and less and yet it’s what I hear that I can’t believe.

I hear things on my television
screen
that I can’t believe I’m hearing.

I doubt my own hearing, one of my strongest remaining senses.

I feel vulnerable every time I walk out there, a visually impaired woman with her white cane. Am I standing out? Or am I invisible?

Michelle Obama Speaks Out

The line she spoke that most caught my attention and left a lump in my throat, my eyes burning, and a ringing in my ears was: “We’re drowning in it.” I believe she was referring specifically to sexism and misogyny. It’s no big deal to most people, most times, but it’s always there, somewhere. How much does it matter?

Women should feel it. Men should feel it. Over and over again, people talk of daughters, sisters, wives, mothers. What are women, even myself, what are we supposed to think? What lessons have young men learned? What do those calling themselves politicians think they’re doing anyway?

I even doubt my ears here in Canada. Prime Minister Justin Trudeau has been in charge for one whole year now, since the last time Canada’s baseball team made it to the play off’s. I had hope then, as someone finally starting to feel somewhat better about the state of my own country, hope for a future where women’s rights, all rights of people might continue to improve, that we here could be a living embodiment of what is possible. Nothing but a naive girl’s silly hope?

His reputation as a feminist has only grown here and around the world. But then I think about possible leaked tapes, recordings, information in the future.

We believe forward-thinking men in politics like Justin Trudeau and Barack Obama are decent, would never treat women so disrespectfully. Then I imagine a time in the future where I will hear, with my own ears, something that could shake my confidence in these two men as concerned fathers and sons and husbands. Maybe they aren’t who they claim to be either. Power. Is it all one giant power trip?

A black man ran the country that supported slavery, segregation, and the targeting of black men as criminals. A woman may soon run a country where women who were black couldn’t even vote fifty years ago. This must represent change and growth, but not all want it, require it, hope and pray for it. Some attack and demonize it.

As for progress and decency, men in positions of power and capable of making sweeping and lasting change, I don’t want to be let down in that way, not ever.

But how sure can I be? When may the other shoe drop, the floor drop out on me?

I appreciate varied viewpoints and healthy discussions, but I too shy away from disrespect, inhumanity, bickering, anger, discrimination, the refusal to see beyond the nose on one’s own face.

I don’t call myself a believer in feminism lightly.

I try to find a balance. This isn’t easy.

I have not suffered at the hands of abuse by men in my own life, but I feel a wider societal pressure. I know only the most decent men in my own life. My father. My brothers. Those I have learned from about love. Those I have loved. We all make mistakes, say foolish things in a moment of weakness or ignorance, both male and female. Goodness can still thrive.

I’m just afraid to believe what I hear. Perceptions are realities.

13TH

I wasn’t around during slavery, but what slavery still occurs, and what can I do about it, if I happen to see it or if I hide from that which still exists?

How free am I personally? What am I a slave to in my own life? How dare I even ask, even think?

The 13Th Amendment. The 19Th Amendment. What can 100 years, 150, what can that passing time do? How slow is change really? How far have we really come with rights for all? What is truly being amended? What am I seeing, hearing, witnessing, neglecting to admit about this time I’m living in?

http://www.latimes.com/entertainment/movies/la-et-mn-13th-doc-trump-20161014-snap-htmlstory.html

I recommend 13TH. It covers a long timeline of events and not just the small snapshot of time we’re currently living through. It’s not easy to see back into all the preceding time, into anything other than noticing the glasses on our own faces, even mine where no more literal glasses sit.

Trump. Hillary. Bill.

Reagan, like Trump, an actor/performer. Nixon, known, as Hilary Clinton, to be a liar. What really changes? What can we count on as the years pass us by?

I hear suffering. I feel it more and more as I age. the echoes of ghosts long gone. I recognized all their voices at different times.

I hear what I hear. I doubt what I hear. I know what I hear and wonder who may have isolated each clip, what it meant, as an overall statement of any intention. I believe it has all contributed and brought us all to where we currently are.

I did not need anyone to Tweet those selected Trump clips, used to illustrate a wider point, to know how awful I’ve felt at having heard them myself over the last months. I already felt ill upon hearing them.

I know much of the history. I know how humans have treated other humans. I felt my headache worsen as 13TH went on, but I watched the documentary all the way through.

So then why exactly did I put myself through that pain?

What else should I do? How else should I handle what I can’t un-know?

Politics. Pride in one’s home. Culture. Religion. Propaganda, all of it?

It is more than six months since I really last wrote about these things here.

In The News and On My Mind: Supermegafragilisticexpialidocious

I thought that the 2016 summer with unending stories in the news about the US election would never ever end. But it did and here we are. Less than a month to go, thank God! But I am so tired and I know I’m not alone. Speaking up is seen as “incendiary” and immediately turned into a political opinion, when really, all I’d like to make is a human one. I don’t write about it on Facebook, trying to be sensitive to my American friends. Here on my blog I feel somewhat safer, but I can’t agree with the sort of patriotism Americans often speak of, like Michelle in her speech most recently: that the US is the greatest country in the world.

I regret to say this Mrs. Obama, but go ahead and say whatever you need to say, to feel better about things.

I shake my head at such love of one place, run by capitalism, socialism, whatever you want to call it, from whichever country you reside in. Globalization. I am not a politician and never will be, but I care about not only myself and my family, but my country, and all others. I care about people, no matter where they live.

I love Canada fiercely, but I can’t just keep hearing people speak of their own country being the best, as pride gets us nowhere. I am lucky to live here and yet I fight to find my way. Canada has treated people just as poorly as any other country.

I stand on the border of my Canadian, English-speaking province and into the French-speaking province next door and I feel the wind on my face and in my hair. I smell the river. I hear the cars. I trust my senses in that moment, but rarely do I trust all else I’ve seen.

All politicians are caught saying things, things that have furthered their political purposes at one time or another, eventually revealing true intentions or previously held beliefs, hopefully altered. I don’t know how they really feel. Suddenly, thanks to an actual reality TV star coming this close to winning, it all feels like a huge reality show, like more and more politics and entertainment are melding, like we can’t tell them apart and there is no going back from that.

Human lives are at stake and 13TH makes that point extremely well. This isn’t a game. Or shouldn’t be anyway.

I can hardly believe what I’m seeing/hearing, but I suppose sensible people have always thought that way, and yet what was really done about it? What will the answer be now?

The thought that any one country is “the best country in the world” or that there ever existed “the good old days” is false to me, no matter the intended meaning behind either stated belief.

The “good old days” spoken of weren’t quite so good for us all. I just hope we can stay afloat going forward.

Seeing From All Sides, #HowISee #HowISeeIt #SoCS

October 1st is the start of Blindness Awareness Month.

Okay, so SoCS usually means Stream of Consciousness Saturday, but well Saturday, Sunday, either way.

Many visually impaired people, writers and bloggers specifically, are blogging every day and many are speaking about one particularly controversial hash tag and campaign making its way around Twitter and social media lately.

I re-blogged about this just a few days ago, and though I don’t mean to rehash or restate, I figured I would offer my own thoughts on the whole thing.

When I tried to think of what is AWKWARD,

I thought about these very topics. Blindness means I face many awkward situations, all the time in fact. I try to improve my social skills and interacting with a mostly sighted world, but I often struggle to fit in and feel like I am seen and yet that I don’t stick out, stand out, and get in the way.

I often feel as if I am in someone’s way, but I recognize this is often more in my own head. The thing about the world is I skip past a lot of the more awkward situations, simply because I don’t see that they are even taking place at all.

🙂

As for the idea of a sighted person putting on blindfold for a few minutes and attempting to walk or cook or whatever, I thought on it awhile, as I pondered the thoughts of others.

There is a lot of awkward nonsense going on in the world these days. Why should anyone with a visual impairment feel like they must always be cast as the awkward ones in this nonsensical world?

The Foundation Fighting Blindness Canada (FFB)

They state that their mission is “leading the fight against blindness” and they are doing that through social media campaigns like this one to raise money:

#HowISeeIt on Twitter

People who are blind share stories and videos of how they do certain, every day tasks, and then their friends or relatives who are sighted will put on a blindfold and try those same tasks.

I know people are curious. I’ve often been asked how I pick out my clothes or how I use the stove. I get that. Most of us don’t mind answering a genuine question when asked. It’s just a fine line when it crosses over to patronizing.

I know foundations who raise money and do research to fight blindness are needed and necessary. I get that also.

I am often told I over think things or am too sensitive, and perhaps I can be, but perhaps that’s an easy, bandaid response for a bigger issue. I often can’t tell the difference anymore, and not sure I ever could or ever will.

😦

On one hand I hate the statement put out there of fighting blindness, like it’s some enemy that needs to be destroyed. I should understand language and its uses better than anyone, but I feel icky when I hear that. I am fighting a constant battle with myself, never mind some war against blindness in a wider context.

However, I would take a cure, sure I would. If it were real and lasting, but blindness isn’t quite so simple. I want attention put on finding ways to stop progression of or slowing down of retinal eye disease. That’s what I have and I often wonder what my life would be like if a cure were suddenly found. Would it be the answer to all my prayers of life? Would it automatically make things easier?

Yes and no, I think the correct answer is, which isn’t really any answer at all to my satisfaction.

So I could rant on and on about this, such a giant thing that I cannot contain, to hope that someone somewhere will understand me, after all I don’t think some lousy blindfold is the answer.

Apologies if this post is long and rambling, with a few links thrown in for good measure. I feel like I am always apologizing for something, to someone. Stop it Kerry, stop it.

But going back to some of my “In The News and On My Mind” posts I’ve shared on this blog in the past, I’ve usually opened those with a line from a woman I know on Facebook who is also blind and living life well. So Here’s her take today, to start:

“The Foundation Fighting Blindness is doing a screwball campaign in which they have sighted people wear a blindfold for a few minutes and try to complete some everyday household task. Naturally, they’re lousy at it, because they don’t have any training. The FFB then has them share their horrifying experiences under the hashtag “how eye see it”, the idea being that blindness is terrible and scary and must be stopped. Well, obviously, we can’t have that rumor going around! For the next week, I’ll be stealing this hashtag to share cool stories about blind people’s actual everyday experiences. If you have a story I should share, send it to me in a message. Today, I’ll share my story. I’m 27 years old and live independently in a gorgeous little apartment in Austin. I’m happily married, work in the field of higher education, and have a wonderful close-knit family and group of friends. I love yoga, hiking, music, poetry, and have recently taken up martial arts. My life is abundantly rich, and has not been diminished by labels or other people’s preconceived notions. This is #howIseeit.”

I do feel it’s simplification for someone who does not live with blindness to put a blindfold across their eyes for a matter of minutes and try to tackle something they won’t feel they could handle without their sight. If they had it all their lives, a few bloody minutes trying without will only muddy things up even more, further blurring the lines between reality and something else entirely.

It feels pitying to me. It feels dumbed down. It feels wretched really.

You panic when suddenly all your world goes dark. Of course. Nothing is how it is compared to if you’ve had time to process and work out solutions we have worked hard to find for ourselves and our independence.

Debates began popping up on people’s social media and on FFB’s Facebook page, in the comments, from both sides. People have accused Foundation Fighting Blindness of blocking or deleting comments that oppose what they’re trying to do with #HowISeeIt and FFB replied that it must have been a misunderstanding, but they usually put the blame onto Facebook and their rules for commenting. Things are getting ugly. People don’t feel heard. It’s impossible for something like this to speak for all. I just want to share opposing views and keep the conversation going.

The point was made that the ALS Ice Bucket Challenge may have had similar responses. I don’t know how many ALS patients felt about it truthfully. Not sure you heard much about that amongst all the screams of shivering cold horror and shock captured in all those videos that went viral. Money was raised. A good thing. Don’t look a gift horse in the mouth I suppose.

But that challenge did not have people living in wheelchairs, unable to move. See the difference?

I see all sorts of lives lived by those who are also blind. Some are doing life more successfully and happily than others. But that’s no different than the rest of the population.

I first heard about a Twitter campaign going around known as How I See, which I wrote my own post for here several weeks back:

Black Or White #HowISee

Life is neither, sometimes one, sometimes the other. No different for me.

When I heard #HowISee vs #HowISeeIt, I admit I was originally confused and wrote on FFB’s Facebook page, asking for clarification. I did not jump to participate or to get anyone sighted in my own life participating either once theirs was explained to me.

Some more well known visually impaired advocates are taking part in #HowISeeIt, by helping spread that message of FFB, such as a UK poet with RP (Retinitis Pigmentosa):

Stand By Me RP awareness page on Facebook

Of course, different people are going to have different opinions on which hash tag campaigns, websites, and organizations are doing good work and which are furthering myths, stereotypes, and negative views about what blindness is and what it’s like to live with.

Here one visually impaired young Canadian has her story told through FFB.

I have watched many of her awareness videos on her YouTube channel and she has been working with The Foundation Fighting Blindness Canada since she was young.

This may not seem like stream of consciousness writing exactly, with all these links inserted, but I knew it would be close enough, as I feared before I began that if I started to write about my own thoughts on this topic, I may never stop.

Here are a few places where I think we’re on the right track:

Blind New World, #BlindNewWorld

&

Bold Blind Beauty

Of course I mention all sides because I don’t necessarily think there is a total right or wrong here. People with all sorts of experiences deserve to feel how they feel about these things.

I just make it work with where I’m at today and keep as much positivity and hope alive inside as I know how.

Thanks for listening.