The Colours of Kenya #Blindness #Travel #TravelTuesday

In January, 2017, I was discovering a new place. While I was immersed in the culture of Mexico, where I attended a writing workshop, Lizzi, at the same time, was on her way to Africa, but not for vacation. She was going to help.

I kept up on her time there through social media and I could sense the profound affect it was having on her.

Then I read this.

I knew I wanted to read one of her stories and one title, in particular, it jumped out at me.

I miss colours, a hard fact of life. I may go to Kenya one day, who knows, but I won’t ever see the colours of Kenya. I wanted to hear someone with a way with words tell me what they saw of Kenya’s colours.

Read the following story by Lizzi that I am honoured to be featuring on my blog today. It’s beautiful.

***

The Colours of Kenya

I had been travelling for what felt like a million hours, and in spite of having slept on both plane-rides, I was dropping with tiredness. It didn’t matter though, because I was in KENYA!

Getting there had been a long journey, literally and figuratively. The preceding months had been filled with emails back and forth to various Important Bods at the hospital, a cautious raising of hopes in October 2016 (only to have them dashed), and then a sudden YES, ten days before we were due to leave.

The four of us – a consultant, a senior nursing sister, an infection control nurse, and me (a buttinski retinal screener with her own agenda for gathering baseline information on the state of diabetes care on offer at the four hospitals we were linked with) – had been travelling since 11am UK time, arriving in Mombasa at 4.20am Kenyan time. We were at the end of our abilities to communicate clearly, and a sleep-haze had descended over all of us, reducing our words and movements to the very deliberate, or the not-at-all.

Still, landing in the thick, humid Kenyan morning (far hotter than Nairobi, a couple of hours earlier, and far more like the ‘stepping into an oven’ I had expected) at an airport which seemed almost deserted and (I noticed with interest) had not one pane of glass in the building, but a beautiful Byzantine cement filigree over each window-space, was definitely a fulfilment of my hope for adventure.

We piled into the waiting taxi and started off out of the airport, past the soldiers’ huts, and onto a road which wasn’t so much ‘road’, as potholes laced together with concrete. As we left the airport behind us, I was startled by a flash of deep magenta in the middle of a dusty patch of grass. Some kind of shrub with flaming red flowers held itself proudly in the pale morning light. I later discovered it was bougainvillea – a plant very suited to hot climates, with brightly coloured bracts near its flowers in every shade of pink, purple, red, and white – which seemed to grow proliferately throughout the region, providing beautiful splashes of colour in sunlit places.

‘Bougainvillea Kenyavision’ – a close-up of the bright magenta bracts of the bougainvillea flower, against a blue sky]

In spite of my snoozing colleagues, I couldn’t bear to close my eyes and miss out on my first glimpses of what was to become a familiar road between Mombasa (where the hospitals were) and Diani, where our hotel was.
My first impression was that there was paint EVERYWHERE! Many of the buildings were completely coated, often with advertising slogans painted on. In fact, many of the walls suggested ‘If you like it, CROWN it’, advertising the very paint they were (presumably) decorated with.

After a few days of travelling up and down the road, I decided that the predominant colours of Kenya were bright green, yellow, blue, and white, with splashes of orange and red thrown in. If anything could be painted or decorated, it was; from the riotously coloured tuk-tuks with their funny names (‘Jobless’, ‘Father’s Blessing’) and entertaining slogans (“Watch out for the devil – never mind!”), to entire sides of blocks of flats advertising pampers nappies! It seemed to me if anything was still for long enough, it was liable to get a bright coat of paint…or that it had been the case at some point, for nearly all the paintwork I saw was fading a little around the edges, with cracks in the surface and chips of paint beginning to flake away.

‘The Colours of Kenya’ – a man walks past a building painted pale green, with an advertisement for Pampers nappies emblazoned on its side. The ground is bright orange sand/dirt, and rocks lie strewn across what passes for pavement.]

The ground astonished me, too – partly, I think, because I’m not used to seeing so much of it, so close. The places in England where the ground next to the road is just…ground…as opposed to something tarmacked or concreted, are few and far between. In Kenya, the ground drifts onto the road and the tarmac crumbles into the edges of the dust, and everything swirls together as the traffic goes speeding by. The mud is hard and compacted with a layer of dust, which coats the shoes and ankles when walked on. Along the miles of road, it went through almost-white, to yellow, to ochre, to dark orange, to brown, to almost red. I don’t think I have ever seen so many colours of earth in one smallish area, and even though a lot of it was covered in plastic in various stages of disintegration (no council waste collections, no rubbish bins, no method, other than to sweep the trash into a pile and burn it), it was beautiful.

The people were bright as peacocks, or parrots, or any other vividly sparkling kind of bird you can think of. The colours and patterns on their clothes were incredible, mesmerizing geometric intricacies, which utterly delighted me, and made me feel very drab by comparison, in my muted olives and blues. Still, I considered, with my pinky-yellow skin, there probably weren’t many bright patterns which I could really carry off without looking sickly, but I did admire the many beautifully-dressed people I saw.

I realized as the week wore on, that the colours which would look utterly garish in the dismal light of England, were not overpowering in the equatorial sunlight. Rainbows of colour shimmered wherever crowds of people gathered, as the mirages shimmered above the surfaces of the roads. Each morning, I got up while it was still dark, and went for a swim in a pool of incredible azure blue, under a sky which lightened to pale blue, then stayed white for most of the day, fading to blue again as the sun went down.

Much of the rural landscape was dominated by the feathery green fronds of palm trees, with their tatty, browning leaf ends, which rattled drily in the wind, or when shaken by troupes of monkeys blundering through. Even the monkeys were surprisingly colourful – unassuming sandy-brown vervets, when male and in motion, showed bright, sky-blue balls!

The beach was pristine, as you’d expect a proud tropical resort beach to be – luminous white sand, cerulean water giving way to navy further out, sweeping, delicious waves, and green palms bending gracefully into the wind. There was even a delightful smattering of little grey frond-covered huts, to shelter tourists relaxing on their sun-loungers.

I would be fascinated to see Kenya in the rain (were it not for the risk of cholera, which increases considerably in the rainy season, due to the lack of sanitation systems). All of the buildings were spattered with earth, to about a metre high, where (presumably) the previous years’ rains had flung the dirt high against the walls and left it there, a stain bearing testament to time and dust. In England, the rain turns everything to grey, whether it is grey or not…in Kenya, I can only hope that the bright colours stand out more vividly against the gloom, a rainbow promise that the sun will shine again, and life will once more be, if not easy, still optimistically bright and beautiful.

***

And so I listened to Lizzi speak of what she saw and learned about blindness and eye disease in Africa. I thought of myself and my white cane and my conflicted feelings about having to use one, but then I realized the privilege I have for even having one where so many around the world, those who could really use them, do not.

I wanted to donate, even a small amount, to make sure a cane would be given to a person in need.

Eyes For East Africa – Online Shop

A small donation can buy someone a white cane, eye drops for a child, or a magnifying glass to better see the world. It doesn’t take much, but it is very much needed.

I live in Canada and have access to good medical care. I have had the best care when my remaining eyesight was threatened. I only want that for all people.

I want to thank word artist Lizzi for sharing this vivid retelling of her time in Kenya, for all of us who have never seen it for ourselves. That is why I love travel and a world so full of wonder and magic, everyday people going about their lives, the hard things and the struggles, but there is always beauty to be found somewhere.

Join the Deep Thinking, Truth Telling and Good-Seeking at Considerings

TToT: Memory Use and the Overall System Footprint – Call and Response, #InternationalDayOfPeace #Graceland #10Thankful

It was a slow day And the sun was beating On the soldiers by the side of the road There was a bright light A shattering of shop windows The bomb in the baby carriage Was wired to the radio

These are the days of miracle and wonder This is the long distance call The way the camera follows us in slo-mo The way we look to us all

The way we look to a distant constellation That’s dying in a corner of the sky These are the days of miracle and wonder And don’t cry baby, don’t cry Don’t cry

It was a dry wind And it swept across the desert And it curled into the circle of birth And the dead sand Falling on the children The mothers and the fathers And the automatic earth

“The Boy in the Bubble” discusses starvation and terrorism, but mixes this with wit and optimism. Simon concurred with this assessment: “Hope and dread – that’s right. That’s the way I see the world, a balance between the two, but coming down on the side of hope.”

Hope and dread. Hope and dread. Hope and dread. These things run through my head…my head…my head.

My nephew is learning so many new things at school, even already after his first few weeks.

How do I know this?

The other night at dinner he started asking about carrots and how they grow, in the earth, from seeds. Such a basic concept of a lovely natural process.

Seeds planted. Something growing, sprouting up, from once there was only dirt under foot.

I am thankful for all the time I got to spend with my aunt.

Her life is a mystery to me. I get stuck on trying to imagine it. I only knew her for the last few decades of her life.

She was my father’s half sister. She was born in Europe during World War II. She came here to Canada, all by herself. I will forever wonder about all that.

The last time I saw her, as herself, she had made the trip to her mother’s funeral. We didn’t think she would come, for several reasons, but she came and I was nervous to give my tribute to my oma, whose relationship with her daughter was different from ours.

I hugged my aunt, after a day at the graveside, and an evening reminiscing about the life Oma lived, all of us sitting on the deck, around a table. I hugged her and left.

The next time she would have faced tumour treatments, her brain badly effected. She clung to me, our last real moment of contact, and one more familial thread is lost..

Without my parents making a decision to introduce us, I would never have known her mighty spirit.

I am thankful for the light chatter of young voices on a hard day of reality confronted.

On the night we received the news, I heard a one-year-old playing lovingly with her doll (all thanks to WhatsApp) and I interrupted a family in the middle of their beloved spaghetti dinner.

I needed to hear these little people, to remember that there are beginnings as well as those endings we wish would never come.

Na na na na na na na na Max Man!

🙂

Thanks to speaker phone, we discussed colours, what we want to be when we grow up, and what our favourite foods are.

I sat back, listening to my niece describe all manner of shades of many many colours. I needed that just then.

I am thankful for a world attempting to live more peacefully.

Justin Trudeau spoke about what “Canada has gotten right, not perfect.” That we believe diversity brings us strength to fight hatred and violence.

With all the meetings of UN in New York through the week, I listened to several speeches, President Obama and Prime Minister Trudeau in particular. All still so complicated. Peace exists in pockets. I just happen to live in one of those at the moment. No guarantee it will always be that way.

I am thankful for another educational Ken Burns PBS documentary.

I was unaware of the story of this couple.

I am thankful for a room full of writers

I had a question about writing, about the writing journey we’re all on, and I thought who better to bring it to than that select group of people. They are just learning as they go along, just like me, and I wanted their take on a particular situation I’ve gotten myself into.

Their input did not totally squelch my concerns, but we did have a lively discussion about writing contests and when a scam is a scam. I did not want to bring down the other writer in the group to have received good news like myself. He may choose to go a different way with it, but I am still undecided. We all want our writing to have a chance out there in the wider world.

I am thankful for light in the depths.

Edith Widder: the weird, wonderful world of bioluminescence – TED

This sort of thing is not visible to me anymore as such, but just hearing this scientist’s enthusiasm made me believe in the hope of all that magic to be found, especially in the ocean.

I am thankful for the perfect autumn weather.

Thursday was nearly thirty degrees. It was humid but yet there was a coolish breeze, enough to make a meal out on a patio still rather lovely. Yep, there was at least one bee this time, but not on me. Not that I knew of anyway.

I wasn’t having a great week. I was feeling unwell and having more computer troubles. I wanted the first day of fall to feel like fall.

By Friday the temperature had dropped ten degrees or more. I was in Heaven. Fall had arrived.

I am thankful for speedy and readily available medical care for myself and for those I love.

I felt lousy, but I needed blood taken and tested. I got it. Results available online now and oh how far we’ve come, to be able to check our own blood levels, without having to ask any doctor.

Then my family needs treatment for chronic medical conditions, tests run to check out symptoms, diabetes, and diet changes are called for. Hopefully those I love can remain healthy and live for a long time still.

I am thankful for a lovely day on the go.

It began at a secondhand store. Not exactly my kind of place, as I have a strange aversion to old, used things. I am also drawn to their stories. My sister was shopping for maternity clothes, not as easy as it sounds.

We kept my nephew occupied in the halloween decorations section, specifically interested in a doorbell with an eye that opened and and a voice that cackled.

We had lunch at a “pizza store” as my four-year-old nephew refers to it. All you can eat, but still we ate thin crust pizza, to stick, as close as we possibly can, to our diets and health restrictions.

Then I had my violin lesson. Brahms’ lullaby, played for me on piano and violin, so hopefully I can master the entire song by next March.

I went, with my brother and a few people, to attend a bit of speaking about video game production and radio.

A Journal Of Musical Things

This guy, the one with the website, he has been on a Toronto radio station for years. My brother listened to his radio programs. We heard he was visiting and we decided to go and listen to what he had to say.

Finally, we walked downtown, a Beatles festival happening, and capped off the day with a relaxing glass of wine and delicious dessert on a patio and then a cup of coffee, latte, before I felt a sore throat coming on dampen my mood. Nothing could truly dampen my first Saturday of fall.

I am thankful for an album, which becomes an experience in itself.

This album was brought back to my attention, but this week it has great value, in its overall feeling of hope and peace.

It is a magical record, full of the voice of Paul Simon, but yet with a distinctly African tone. Anyone who has never heard it has been missing out.

These days albums in their entirety are all but extinct. Songs that stand alone are what gets the public’s attention. This album, named for a tourist attraction, a musical and cultural icon of a place, a spiritual experience for some, that is what this album is for me.

It’s a collection of songs, taking me on travels, experiences of sorts, to a place called Africa, where my young self couldn’t imagine. This album was playing in our house, thanks to my father, and this can clearly be heard on an old home movie when I was three.

There was the almost mystical affection and strange familiarity I felt when I first heard South African music. Later, there was the visceral thrill of collaborating with South African musicians onstage. Add to this potent mix the new friendships I made with my band mates, and the experience becomes one of the most vital in my life. block quote level 1block quote level 1

Graceland – Album By Paul Simon (1986)

I did not want to visit Graceland, the home of Elvis Presley, so much as I wanted to learn about South Africa, about the troubles and the ruining of lives Apartheid caused, when I was too young to realize, when the concept of black and white wasn’t something I thought anything about. Now I think about it often. No superiority. No ranking of human life.

What was unusual about Graceland is that it was on the surface apolitical, but what it represented was the essence of the antiapartheid in that it was a collaboration between blacks and whites to make music that people everywhere enjoyed. It was completely the opposite from what the apartheid regime said, which is that one group of people were inferior. Here, there were no inferiors or superiors, just an acknowledgement of everybody’s work as a musician. It was a powerful statement. block quote level 1block quote level 1

Graceland transcended racial and cultural barriers. ” Graceland was never just a collection of songs, after all; it was a bridge between cultures, genres and continents, not to mention a global launching pad for the musicians whose popularity been suppressed under South Africa’s white-run apartheid rule,” said Andrew Leahey of
American Song Writer.

TToT: An Air of Mighty February Freshness – Can you smell it? #10Thankful

Wow! Okay, so I usually begin my TToT with some sage words, but upon searching quotes for February I came across nothing but doom, despair, and dying. These were all words used in the quotes that my Google search came up with

Is February really that bad? Does it stink that much or what?

So instead, me and my birth month might not get some wise literary or philosophical musings, but I do have my very own February song.

February Air – Lights

It feels more like fall or even spring out there, as the final hours of January fade away into a new month.

I was going to try my hand at

The April A-to-Z Challenge,

but I got so frustrated by the sign-up process that I gave up.

What is it, first National Novel Writing Month and now this?

I can go ahead with it anyway, do my own A to Z in April or whenever I want, but likely I would have to do without all the new readers I would find and be found by.

For February I will stick with the romance theme here, as February means Valentine’s Day, and devote the entire month to come for

the subject of love,

but I will still be here once a week because I love it so much.

TEN THINGS OF THANKFUL

For an email that arrived at the perfect moment.

Last week I spoke of being rejected for a publication I love and really wanted to have my writing in. Well, less than one week after that devastating email I received one of acceptance.

For the chance to spread my message.

To the People Who’ve Never Heard of My Rare Disease – The Mighty

The last day of February is the day set aside for the awareness of rare diseases and I really wanted to speak up about mine. These are no more serious or worth fighting than cancer, diabetes, or MS, but just a lot less spoken about. So many diseases so little time.

🙂

I want to thank website “The Mighty” and all the family and friends who took the time to share and help me spread my message just a little bit farther.

So, supposedly now I am a contributor and have an in road with the site. Guess this means I can continue to write for them, after they’ve approved of whatever that is. Guess this is how these sites work? I am still new to all this.

For a lot of talk, with the one-and-only man himself. Prime Minister Justin Trudeau appeared on television, for an hour talking about an important subject.

#BellLetsTalk

Not sure if this is more than a Canadian event, as it’s represented by Bell, the phone company.

Of course there is also a lot of talk about how a huge corporation is in it to look good and is getting something more out of it, but I focused on the fact that depression deserves the air time and attention and Trudeau spoke with sensitivity and commanding poise about the struggles with depression in his own family and what he, as the leader of Canada, hopes for those who live with mental illness.

For the notification that I’ve reached five hundred WordPress followers.

This comes just short of my two-year blogging anniversary next week.

I have more on top of that five hundred, but that little sound on my phone to inform me of the milestone made my day.

For the invitation to join as a blogging co-host for the week.

What I Learned In 2015

This was my second week participating and I particularly loved this prompt.

For another “successful” vidchat with friends.

It’s amazing that so many come together like that, through Google Hangouts.

I lost them there near the end, but that’s technology for you: nothing’s perfect.

For the fact that I figured out how to correctly hold my phone so this week I wasn’t just a dark spot on everyone’s screens, while the rest were visually themselves for everyone else to see.

For jokes.

Well, the thing I almost love more than the joke would have to be how people individually and uniquely react to hearing it.

Some laugh hysterically, while others do not. It can’t be explained, but even if I am in that second group, seeing the mirth of the first group is always enough to get me to crack a smile.

For the end of one month and for the arrival of another, but not just any month.

For the completion of last month’s daily prompt writing challenge (jotting challenge technically

January definitely had its highlights,

(like the writing adventure I attended

or

Just Jot It January 2016),

but I’m actually looking forward to February and the arrival of the day I was born.

I hope for lots of good things as I usher in the second month of 2016: from movies I’m really looking forward to coming out, to my favourite television series starting a new season, to the challenge of learning a new skill and working on another.

More of all that in the days and weeks to come.

Dobby and I are glad to welcome February. How about you?

Redefining Disability, One Year Later: Glad To Be Here, Glad To Be Anywhere

Last week with

The Reality of My Own Perception, Or Something Like It

I can’t honestly say I actually answered the question, but I’ve been told that I made a strange kind of sense anyway.

I will try to give more of a straightforward answer to this week’s question.

But first, you can follow more about this challenge

Here.

***

Q: How has medical treatment and technology changed in your lifetime?

A: Blindness is not life threatening. Whether I was born in 2015, 1985, or 1905 – my life would be much different, without a lot of the modern technology I take for granted, but I would have survived.

I have seen an amazing eruption of invention for the technologies I depend on so very much, all within my lifetime of the past thirty-one years.

There is no cure for my sort of blindness. I try to stay away from fad ideas and don’t let myself hope for sight in my lifetime, but then I visit my eye doctor and he assumes I am up on the latest in gene therapies.

I am not.

He said the testing of gene therapy is coming along, which gives me hope for the future.

I didn’t have parents who rushed me all over the world, since discovering my blindness in the eighties, searching for desperate cures. I have lived my life, for the first several years, not really thinking of blindness in any medical terms at all. It was simply a part of me and my brother’s lives, a part of our family’s uniqueness.

I am glad for prednisone. It saved me from going completely blind back in the late nineties, I am sure of it.

In the eighties, technology like what I have now, it was in its infancy. Apple was nowhere near what it is today, for so many visually impaired and blind people everywhere.

The IBM computer we had in our family, in the early nineties, was equipped with the large print I required at that time. My brother could not see even that. His love for technology was, at that time, limited to tape recorders and stereos.

Now he is all about his technology and he has a knack for it. I, on the other hand, struggle with it, but would be nowhere without it.

We did okay, as children, without all the gadgets we now have. We had to lug around a brailler, so heavy it could break a toe or even a foot.

Now, the only thing that could break, if dropped, might be a cell phone.

I suppose there are advancements in research for blindness, but I don’t keep that close of an eye on that, to be honest. The eye, as a whole, has never really interested me. I couldn’t name all its parts, just because I happen to be blind.

I was born in a time before Internet and now I depend on it for so much, it’s scary to me sometimes, to think about ever going back, but I don’t see that being a problem.

What are my odds of seeing a cure for blindness in my lifetime?

It’s not as simple as that. The eye and the brain, although I am no expert, are truly complex systems. There are no simple answers.

I know medicine and technology are closely connected and related. We can’t really have the first without the second, and going forward the two will merge more and more.

As for more seriously life threatening matters, I am lucky there too.

Organ transplant was in its earliest of stages as well, when I was born. I waited until 1996-97 to need dialysis and a kidney transplant. I received both. If I had been needing it, just a few decades earlier, I probably wouldn’t be here now.

That thought first really hit me when we stood in line, for breakfast, at the resort in Florida for Wish Kids. It was our family trip to Disney. I was feeling uncomfortable. I looked all around at the children with deadly cancers and brain tumours. I did not think I should be included there. Then I knew the reality that I was lucky to be there or anywhere at all.

I am haunted by the stories my grandma used to tell me about her baby brother, the great-uncle I never got to meet.

She was twelve when he was born. She was sixteen when he died.

Her and her two older siblings must have loved having a new baby brother, but any joy there would have been did not last long.

I don’t know what the reality was. He was diagnosed with diabetes. I know insulin had been invented years before, but he did not get it.

Was it still so experimental? Was it not widely used? What chance would he have had to live if he had gotten some?

This was a poor, rural farm family. No easy access. His parents didn’t drag him around the world in search of some fad cure. He died at home, surrounded by his loved ones.

My grandma told me about her memories of her little brother, resting out in their front room, on the sofa as he grew sicker and sicker. His small body was building up with toxins. The sugars in his blood were taking their toll.

She’d been dating my grandfather for only a short time when her brother died. She cried on his shoulder, as I am sure the grief must have been terrible.

I don’t know what it must have been like for my great-grandfather and great-grandmother, to lose their baby.

I know what it’s like to feel nauseated and weak. I know how it feels to have horrible abdominal cramps racking you. I believe these symptoms of kidney failure are similar to what it must have been like, what it would be like to die a slow death from diabetes. I sometimes felt that I was doing that. I feel for that little boy, all those years ago, who must have suffered in his last days, on that couch. I can’t even imagine and yet I can, a little too much.

Blindness or no blindness, I wouldn’t have survived if I had been born much earlier than 1984 and I can’t forget that.

Both medicine and technology, whether I like it or not, play an important role in my life and always have.

The medications have improved for transplant. The future for kidney failure, I hope, is looking bright. I would love to get my sight, but I would love even more to never have to go back on dialysis or need another transplant in my life.

At least, this time around, I will have technology to keep me company.

***

I usually do these things on Mondays, but today is the first day of September and I started

The Redefining Disability Awareness Challenge

one year ago today,

Awareness

being my first post. I should complete the entire series of questions by the end of the year.

Next week:

Have recent advancements in medicine or technology had any affect on the way you manage your disability?