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Whistle A Tune As You March Toward Hell #FilmReview #JusJoJan

The documentary begins and ends with their voices, ghostly, from the past.

All of them, their collective voice is a powerful
echo
of a war with no discernible point, but massive waste and loss of life. But still, they must not be forgotten.

I love Peter Jackson for his bringing to life of Middle-earth and now he shows us what fresh hell war was/is, and not the kind of war in fiction where men and elves and dwarves (with the help of a wizard) defeat the orcs in an epic battle. It’s reality at its worst.

From what I hear, the grainy old footage moves into vivid modern colour and then back into the old shots, but I see none of it.

I don’t see the ugly part of war, bodies blown apart and such, but I do hear the bursting of artillery in battle, the men crying out, shots and screams coming from all around me as the surround sound has me sitting on edge, forward and stiff in my seat.

Archival recordings from the 1960’s and 1970’s, of the First World War veterans, all the way back to actual British army camera shots and film that was taken, live on the western front. Lip readers were even brought in by Jackson to interpret what was being said in those shots. Actual interview voices speaking, with no narrator. I wasn’t sure what to expect, if I could get enough from the film, but these kinds of documentaries are usually accessible, for the most part.

From the boys they were, lying about their ages to sign up and on into their basic and specific training. To heading into misunderstood horrors of war. To the trench life to off duty time. To the lead-up toward the battle itself. Then to the aftermath and home once more, for the lucky ones.

It ends where it began, with the time passing habit of whistling and the innocent sound that portrays, the nonchalant spirit of such a tune.

It’s all ringing
echoes
of history in Jackson’s latest film, which played in theatres in Canada on January 21st, for only one day and two months after the anniversary of the armistice that finally ended World War I – They Shall Not Grow Old is a solemn phrase of fact for millions and a gripping title for Peter’s latest. Check it out when and where you can.

It’s not about why the war happened, but rather what it was like being there. And still, I left asking “why?” anyway.

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Thoughts and Prayers Lead to Nothing But Fury, #Review #SoCS

If I were to add one word to the beginning of this week’s
Stream of Consciousness Saturday prompt,
it would be “free”.

the latest from documentary film maker Michael Moore is a clever spin on a previous doc he’d made in the early 2000’s – from 9/11 to 11/9. Not even #45 could have planned it better.

Moore highlights the water crisis in Flint, Michigan and the mass school shootings in Parkland, Florida.

Scenes of protests all over his country, from marching for women’s rights to those of teachers.

A West Virginia politician goes as far to say that America has never been “GREAT”.

As far as democracy is concerned, those countries who shout the loudest about possessing it, rarely really do, rarely ever did. Women couldn’t always vote. African-Americans couldn’t always vote.

It is a hard look at not just one side of the political isle or the other. I came out of it thinking less of Barack Obama than I used to, with his stunt of asking for a glass of water to drink, in front of so many wounded and sick and traumatized citizens of Flint.

Was that a stunt? Did it happen like that? Did the media not showcase it? Or did I just choose not to hear about it at the time?

I can hear about any stupid thing a politician does and make up my own mind. I don’t ever want to be ruled by any one man or woman, anyone governing over me. My freedom is worth fighting for, but not by all the violent wars this world’s ever fought.

I know any group of people can lose their freedom, just like that. If it can happen to one, it can happen to another, it can happen to me and those I love.

A prosecutor of Nazi war criminals is interviewed and he speaks of the peril we’re all under, when children are separated from their parents, anywhere. Anyone who has seen what he’s seen, who has asked a Nazi how they could take part in the murder of 90,000 human beings, just to be told that they were told by their leader that those human beings were a threat – and I choose to listen to this spokesperson for history and what it has to teach us.

Nobody wanted an entire film of just #45 and I am at the top of that list. I couldn’t stand to hear his ugly sneering voice for two hours. No way!

I do remember where I was that night (November 9, 2016) and how it felt. I was making a podcast and I wasn’t one of the many Moore shows clips of, laughing off the prospect of a DT presidency. I don’t like to say “I told you all so,” but I think it when I hear the silly, derisive laughter, all those who laughed it off as a big joke. The joke becomes our reality before we know it.

The man is a symptom of the bigger disease, a rotten symptom like gangrene, I grant you, but a symptom all the same.

Money. Power. Greed. All ugly.

Since this film was made, more current events have taken place in the US, with nomination for the highest court in their land. This is setting off women, the #MeToo movement, like nothing else in a while. Women are sick of the status quo, just as survivors and the rest of us after a mass shooting are sick of “thoughts and prayers”. I haven’t even suffered from serious sexual assault or abuse in my life and I am furious about the misogyny that exists everywhere we look.

I am in Canada and we have our own set of problems, but I know how close Michigan is to where I live. The poisoning of a community’s water supply happened there, is still going on, and I think what class or race can mean, in terms of whether you are heard or taken care of or ridden off entirely.

I know Michael Moore puts a spin on his subject matter when he makes one of his classic documentaries. I go into it with an open mind. I have to admit though, it’s scenes like the one where he tries to make a citizen’s arrest of the Michigan governor, asks a representative of said governor to take a drink of a glass of Flint water, and going as far as hosing down the governor’s mansion with poisoned Flint water that are the things I love about the outrageous filmmaker. He has the freedom to take such actions, to make such films, and he keeps right on exercising that freedom.

I have the freedom to write these words, now, but will I always?

As long as voices like MM exist; yet, (not putting all our hopes on one filmmaker/man/woman/politician is probably best) and it’s when we all act that we hold onto the freedoms we hold so dear.

You may think I’m being dramatic, but as long as freedom is still my own, I can draw the comparisons between Hitler and Trump, from the 1930’s to now because history is a tool with which to evaluate where we are in the present moment.

I ask myself, time and time again, how a society of intelligence and culture like that of Germany at the time could have let it happen. It’s not such a mystery and yet I can’t wrap my mind around the answer.

I am choosing, with my own free will, to learn these lessons, before it is too late. It is already (too late) for so so many, those who lost their own freedom long ago. I still hold some of mine and I am grateful for that. I am awake, wide awake and I am grateful for any piece of media which shines a light on the problems that exist.

He ends his film with the sound of a pained and passionate female voice, one I’d heard at the time and winced at the fury I heard bubbling just below the surface of her words. Watch out world.

So forget thoughts and prayers. We women are at the front of the line when it comes to defending our freedom and no longer hiding our fury.

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A Stranger Returning Home, #MLKDay #JamesBaldwin #JusJoJan

Just. Juice. Prejudice.

These are three things that come to mind when I think of the word
“justice”
because they look similar in my mind, not because they have anything really to do with the word itself.

Just Jot It January, #JusJoJan

Okay, well, maybe justice and prejudice are related, but really I say this now because I am delaying the moment when I have to write about serious things.

Today hasn’t shaped up the way I was expecting it would. I was trying to figure out how to write something about Martin Luther King Jr. and then Dolores O’Riordan died.

Well, that’s not really a topic of justice. It only adds to my blue mood on Blue Monday as it stands.

I relate to the fight for racial justice, in that I can take my disability and think how discrimination manifests. Still, the subject is a sensitive one, as it should be.

It’s like the reconciliation discussion I learn about, with Indigenous Peoples, daily, here in Canada and in other places, all over the world. I am just sad, sad we haven’t come far enough and in some cases, have slid backwards with time.

This is the type of writing that evolves and changes throughout a day. I started this (mid month Monday) thinking about how to address MLK Day.

I’ve spent most of today lamenting the death of a one-of-a-kind voice in music, and I’m ending it by watching a documentary I have known about for months about writer James Baldwin, being shown on PBS.

I haven’t read his stuff and I know very little about him to be honest. I do know that these issues of rights, of where privilege lies, and on how to fight oppression and for justice, are bound to be found throughout Baldwin’s doc, in his own words, years before I was born.

He watched the young girl try to attend school and be spit on, chiding himself for not being there to help her.

Disgust and anger. How to move past this and into making it all better?

Baldwin didn’t miss America while he was in Paris. He didn’t miss it, but he did miss his family and his culture.

MLK knew he wasn’t likely to live long to see any sort of change.

It is painful for James to return, though he is home again.

James Baldwin said: The line between a witness and an actor is a fine one.

This feels so intensely true right now.

So poignant all these years later.

All about class and culture and race and so many other classifications I cannot seem to parse.

James did not stay, as witness. He was free “to write the story and get it out.”

He saw Martin and Malcolm X both go and he wrote about it.

Malcolm, Martin, martyrs both. Baldwin was the writer.

He writes: I Am Not Your Negro

How to reconcile any of this?

And so goes the clicking of the typewriter’s keys.

If you get the chance, watch I Am Not Your Negro.

Things sure have changed, since last century, but we writers still will write.

The story of America,” Baldwin said, “is not a pretty story.” “Aimless hostility.”

“This is not the land of the free.”

—James Baldwin

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TToT: Insertion Follows Playback Like Edit Follows Automation – Full Cold Moon, #10Thankful #IDPD2017

“(UN IDPD) serves as an important reminder that globally there are over a billion people with a disability. This year’s theme, “Transformation towards sustainable and resilient society for all” is especially relevant to our accessibility efforts…”

—Microsoft

TToT: Relax! It’s Only A Cane – Daylight Savings, #10thankful

I walk around like this all the time now, trying to defuse situations where there could be some fear going on.

I tell them they can relax, that it’s only a white cane. I won’t whack them with it, not on purpose or very hard anyway, just as long as they stay in line.

I suppose, it would have made even more sense if I’d actually been holding the object I am speaking about. I should have taken another one, one where I’m actually holding my white cane in the photo.

Ten Things of Thankful

I am thankful for this t-shirt.

Abigail Style

I like how Steph of
Bold Blind Beauty
has gone the extra mile, trying to spread the message of strength and empowerment that a lot of the slogans on the shirts, bags, and mugs she has created show the world.

I am always happy to help spread this message with Steph. I chose this shirt because I myself still battle the feelings I have about my white cane. I know how others see it, don’t always understand it, but I don’t want it to make people wary. I just want to be able to use it to see more of the world safely.

I must admit, I do enjoy its sarcastic tone though. It’s my kind of humour.

I am thankful my friend Kerra was challenged to post any 80s song, for an entire week, on Facebook and that I took on that challenge from her.

I will include, throughout this TToT post, the seven songs I chose.

Everything In My Heart

Corey Hart, 1985

I am thankful I received a payment for work I did.

I have a lot of feelings around trying to contribute, to develop a career for myself, but in the arts nothing’s a sure thing. All my insecurities about not feeling useful have followed me for years, and I know this is just one fairly small amount, but it’s a big deal to me. I wrote something and I was paid for that service I provided. I created something and I am glad it was so well received. I hope to build on this.

Never Tear Us Apart

INXS, 1987

I am thankful for an awesome first meeting of Mya and her cousins.

It was so sweet, the way my niece and nephew wanted to hold their new little cousin, how they doted over her and were so gentle…yet so very excited.

He is not the youngest of the group anymore.

Mad World

Tears For Fears, 1982

I am thankful for a day to celebrate women.

People Are People

Depeche Mode, 198

This song fits the theme of the day. We are all just people, so why does misogyny continue on such a level as we currently see?

I wrote a piece, and the debate about what feminism is or isn’t or if it’s a good or a bad thing could go on forever, but I think International Women’s Day should just be a day to celebrate women and girls, and how far we’ve come, and are still going.

I am thankful for all the lessons having kidney disease has taught me in the last twenty years.

March 9th is World Kidney Day and every year I reflect on all that my journey through kidney failure taught me, the bad and less so.

I still want to write more extensively on that time in my life. I struggle to know how to go about this. I could blog about it forever, but a book is still my goal.

Now that I’m arriving at the 20 year mark, 1997 being the year I was taken off dialysis and went on to live with a working kidney once more.

World Kidney Day is to educate people on the symptoms of kidney failure, but mine was a bit of a unique case. It’s about my gratitude that I had good doctors and that a medical treatment like dialysis even exists, because without it, I don’t even like to think.

I Can’t Stand The Rain

Tina Turner, 1985

I am thankful for a chance to hold Mya while she slept.

Whenever You Need Somebody

Rick Astley, 1987

She sat and slept upright, wouldn’t straighten out any, so that’s how she stayed. I felt her steady breathing, in and out, and her faint newborn sounds. I didn’t sleep, but it was as close to a peaceful state as I have felt in a long time.

It was a feeling I never wanted to end, but eventually, the newborn must eat.

She is just so sweet though, like a little doll.

I will always be here for you Mya, whenever you need somebody, because what you’ve given me, in only the first few weeks of your life, this is impossible to calculate.

I’m thankful for more perspective on the state of racism today, with an in depth documentary that aired on TV here in Canada the other night.

One movie can’t end racism in Canada — but ‘The Skin We’re In’ will fuel the fight

Canadian journalist Desmond Cole has been an outspoken face for racial issues in our current climate. He pushes the limits, which is what good journalists do, but he has a deep personal iron in the fire that still burns, the tension that’s often revved up by events in the news, but he has experienced racism himself.

I have not dealt with racism, but I have experienced ablism. I try to understand because I know what it’s like to be judged on appearance. That’s how most people judge, on meeting someone, as the visual is the first thing most people have to go by. It’s far past the time to quit judging without hearing the individual stories first.

I am thankful for a violin lesson that focused on the art of practicing.

My teacher showed me some helpful techniques for the days I am on my own, but worrying I am setting myself back instead of making progress, by the ineffective practicing I may be doing.

CURING UNSTEADY TEMPO SYNDROME

I have felt like I am stuck, unable to overcome this hump I find myself blocked by. I needed to really and truly break down the song I’ve been playing, to strengthen the skills that most need to be strengthened.

Heart of Stone

Cher, 1989

I am thankful for a new Lindsey Stirling song.

Love’s Just A Feeling

I tried to be the teacher, showing someone the proper way to play my violin, and boy were they in trouble.

Well, with me as the teacher anyway.

Winter is making one last appearance. The snow is falling. I am bracing myself for the possibilities. Snow is a pain, but it really is a beautiful pain.

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Imaginary Lines, #FTSF

It all began with a Facebook post:.

With all the news lately of asylum seekers coming across the border between the U.S. and Canada, in through Manitoba and other places, I can’t help wondering what has made them take such chances. I guess we in Canada aren’t quite as used to it, though we’ve heard all the stories about people from South America and Mexico crossing the border between Mexico and the U.S. always.

Humans have always been on the move, but often spurred on by fear and desperation, feeling unsafe where they currently are.
It made me think of the two times I have crossed a border recently.
First it was the border between the provinces of Ontario and Quebec. We crossed by car and I never even would have known we’d crossed into another province because I couldn’t see to read the signs. I soon got out and stood for a time on the border, on the river, with the wind-tunnel blowing my hair every which way. I remained there and thought about a loss I’d newly experienced and how that person had crossed the ocean to come to Canada many years earlier, for different reasons.
I then thought about what makes us draw lines between ourselves and other human beings. I understand why we’ve had to map out these markers between us and other countries and states and provinces. I even understand why some must be watched and even protected/defended, which leaves us frightened we are under a constant threat from other places and people.

The second time was when I crossed, by car, over the border between Canada and the U.S. but I felt so strange leaving my home country, though I wished I didn’t feel any such separation. I then crossed the border between the U.S. and Mexico, but by plane I once more noticed nothing, until I landed and felt the thrill of being in a country I’d never been in before.

***

All week long, on our nightly National Canadian news, I have watched a series that attempted to answer my question: just who are these asylum seekers, those who feel so unsafe in the U.S. and are now coming so so very far?

I learned it has been somewhere around 140 of them since January 1st of this year, walking for hours in the freezing cold of winter. Some in Canada fear this number will only increase, from a trickle of people to a stream that’s unstoppable, as weather improves and spring arrives.

Well, I thought about the fear I had, not only of my recent writing workshop ending and having to return to my reality, but also I feared having to cross back over the U.S. to get back home to Canada.

I knew, as the end of the week drew nearer how silly it was for me to be afraid. I had no real problems. I still felt unwelcome, even with the kindness I was shown by so many who helped me travel safely through airports in both Dallas and Detroit.

Mexico and Canada and in between, now, is this dark spot, which I realize is totally unfair and uncalled for in many ways. Sometimes, in my mind, I see the continent of North America being carved up, split apart like cracks caused by shifting plates, deep underneath us.

I still can’t believe 45 ever ran on the promise to build a wall between the U.S. and Mexico. From the first time I ever heard that ridiculous idea, up to this moment as I write this, I can’t believe it. I know I am not alone. That thing many have said about how we should be building bridges that will connect us, not walls that will separate us even more than a border already does, this is what runs through my mind every single day.

Now, according to the series, there are those fleeing danger and worse in certain African countries and Asian countries, making it all the way to South America, often just as dangerous. This report I saw sent a reporter to investigate and speak to some, mostly from Somalia, who were crossing the border of Guatemala and Mexico’s most southern part. They have come so far, but because of what has taken place in the U.S. they are wanting to get to Canada, but remain trapped where they are, unable to get there without crossing through what lies between.

Canada is a long way away and suddenly, the distance I felt on that last day in Mexico, to make it back to my home, it doesn’t look nearly as wide a gap to go now that I’ve seen what those people are up against.

I hope Canada is kind with these asylum seekers. I hear our border guards and RCMP officers reporting seeing families, pushing strollers and coming across with infant seats, a heartbreaking thing to witness, as I imagine an infant I love having to travel like that.

Our country has those driven by fears, like the ignorance growing in the U.S., fueled by so much misinformation and a lack of ability to open their eyes.

In Canada, today a phone conversation apparently took place between our leader and the new leader of the U.S., after the face-to-face meeting that took place, last week in Washington, D.C.

It’s reported that border security issues were not discussed, but I find that so hard to believe. I don’t know what will happen. It worries me. When it comes to borders and boundaries, we may be two very different countries, but it’s like a horizon I can not see. It feels strong and weak, all at once.

I do know that Canada’s Immigration Minister was a refugee himself, from Somalia.

So, what would certain people say about the series I just spoke of? Would they call it fake news, created to tug at the human heartstrings, but disguising hidden dangers for all good, law-abiding citizens?

Some here in Canada argue we need to worry about real Canadians first, before helping everybody who just so happens to show up on our doorstep, no matter their reasons.

I put myself in the shoes of anyone in need. That’s because I feel I am one who benefits a lot, is carried on the backs of other Canadians, requiring services my country provides and this is painful to think about when I hear all the talk that’s been growing, as I’ve always been receiving help from so many hard-working Canadians. I am just as much a risk and a drain on the system, even if nobody ever bothered to know me and what my worth is as a fellow human being, just trying to live peacefully and share this planet. I guess that’s why I am so passionate about this sort of thing, though I admittedly know very little about all the ways humans cross borders. I want to learn more. I want to keep up and stay as educated as possible.

The whole thing makes me want to cry. I am really no less expendable, to so many who complain, as any refugee or immigrant ever was or will be.

We need to remain real and human to each other. Being unnamed, just a number or statistic, and cold distance is seen as sensible and becomes contagious.

***

February is, of course, Black History Month and I have been watching a documentary series on Thursday nights, all about the colonization Great Britain has been responsible for, for so long.

Where were borders when that was going on? What boundaries existed, what limits, when the Mighty Great Britain was subjugating so many?

Here in Ontario, I watch a lot of programs on the provincial station, which is affiliated with England and the BBC. A lot of documentaries from over there are aired here and I see a lot of a place I really know very little about, though Canada and they are forever connected too.

I am glad I am learning about the history of Britain’s colonization of anywhere and everywhere and the multi-cultural place it is, with its problems and all that has transpired there for all these years.

***

I ended my Facebook post by stating:

Notice, I say “border” instead of “borders” because I want to highlight the fact that two places share it, rather than being on one side or the other. Also, the term “alien” should never have been used to describe other human beings. Such terms allow us to think of ourselves as “us and them” and divide us even more than we already are.
You could cross an entire ocean or a border, guarded by someone with a gun or a deadly serious tone in their voice. Or, you could cross one in a car or airplane, and if you’re not looking, not even know you’re doing it.

***

When it comes to borders and boundaries, if we dare to look within ourselves, where do our hearts and our humanity begin and end when it comes to empathy and compassion? Where do we draw lines in the sand of our lives and those of other humans who are just trying to live life on their own terms, just like any of us feel we deserve to?

***

I realize this one was fairly lengthy, but I have had all this building up in my mind and heart and it all came out through my fingers, as I am a little wound up by recent events on all fronts. I do appreciate that Kristi read my Facebook post, included here, from earlier in the week and asked me to co-host with her this time.

http://www.inlinkz.com/new/view.php?id=699286

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International Day For Persons with Disabilities 2016, #IDPD2016

Helen Keller…Stevie Wonder…Ray Charles…Rick Hansen…Stephen Hawking…

The Rick Hansen Foundation

There are so many more of us out here, only looking to have rich, full lives like anyone else, but what often stops us is not only society’s barriers, but our own.

***

Since 1992, the United Nations International Day of Persons with Disabilities (IDPD) has been celebrated annually on 3 December around the world. The theme for this year’s International Day is “Achieving 17 Goals for the Future We Want” . This theme notes the recent adoption of the 17 Sustainable Development Goals (SDGs) and the role of these goals in building a more inclusive and equitable world for persons with disabilities.

***

One note on the society part – some of you may not want to think a lot about it, if you don’t have to, because then it becomes clear that the possibility for anyone to become disabled is indeed a possibility for anyone..

I am a Canadian woman, living with a disability. I didn’t acquire my disability through an accident later in life. I did not develop it overtime, but from birth and still, who knows which direction my remaining vision might take.

On the day before the
United Nation’s International Day For PErsons with Disabilities
I felt a tired feeling that I sometimes get. I panic and assume my sight is worsening, but I am not sure, if that makes any real sense. I close my eyes and decide I will try to get back in to see my retinal specialist soon.

I don’t know what, if anything, he will be able to tell me, offer me as hope that I won’t be completely blind one day. He will probably see no changes or signs of the mysterious eye disease that took my left eye twenty years ago. He will speak to me of gene therapies in various stages of development, but I don’t know what hope lies in that for me. Maybe it will be my future. Maybe not. I’ve learned not to bank on anything.

That’s a part of my DNA, just like the genetic eye disease. I am conditioned to either think the worst or simply not want to hope for the things I may really really want, always fearing that the disappointment from possibly not getting them will break me. It hasn’t broken me yet, which does give me reason to be optimistic though.

I wanted to be able to see the truly unique show violinist Lindsey Stirling put on recently. Instead, I listened to all I could and relied on my helpful sister to fill in the blanks. I wanted to throw my white cane away and yelled my displeasure, and through the wish, but instead I sat and listened even harder.

I want to draw like I used to when I saw colours and when everything in my world was more clearly and brightly defined. I can’t. I want to scream in frustration but I’m resigned instead.

I want to take up the latest craze of adult colouring books, but I don’t.

Of course, nothing is really stopping me. I may not, as an adult, see the lines I may have hardly seen as a child, which are now nearly invisible to me. I could still get myself a Harry Potter or any number of other themed colouring books with a theme which fits my interest, and be damned if I miss colouring in the lines by a mile.

But I don’t. I don’t scream or rail at the world in an uproar. I find other ways to spend my time.

I want to travel and to go through life with an independent spirit and loads of self confidence, but I don’t. I try and I work at it, but I’m scared.

I find a travel series, a BBC documentary, available to me on Netflix. It’s Stephen Fry, whom I love, and he is doing a road trip across the United States in his British cab. I know him from his narration of the Harry Potter books and for his intelligent and witty character. After watching him visit all 50 states I now know he hates being on a horse, dancing, and skiing. He loves science and culture and literature.

Stephen Fry In America

I watch him on his trip and I long to go on one of my own, but I fear getting lost in the big, expansive world and I worry that my white cane will attract only pity. I want to grip it with extra determination and go anyway. It’s all in my attitude, right?

I can’t drive a cab across the country. I want to believe I will see more of the world anyway, even without definition of sight.

I don’t try to revisit childhood experiences of mine by colouring. Instead, I watch a travel show which I’ve heard of but only now decided to give a chance.

HELLO GOODBYE, #HelloGoodbye

The host speaks to one woman in her sixties, widowed after her late husband’s long battle with illness, but who has now found new love with a man from England. Her happiness is infectious. Her newly found love walks down the ramp in the arrivals terminal at Toronto Pearson International Airport and gets down on one knee. Love is lost and can be found again.

I feel warm just by watching and listening to her story.

The host also speaks to a young man and his parents. The son is on his way to participate in Rio, at the Paralympics. He was paralyzed from a diving accident and now plays wheelchair rugby.

And then there was the grandmother, daughter, and grandson saying their goodbyes. The young guy and his mother are heading back to Britain after a visit with Grandma. The mother has RP (Retinitis Pigmentosa). She carries a cane, but the son speaks of wanting his mother to have companionship with a guide dog, as he will soon be going out on his own and doesn’t want her to be alone. He has worried about her safety all his life. She admits to being unsure about going for a guide dog once they get back home, but her son’s words cause her to rethink things.

She grips her white cane. I grip mine. She has been losing sight for years. I’ve been blind since birth and losing since. Am I any further along in accepting my circumstances and my white cane than she is?

People ask me all the time if I am ever going to get another guide dog. I don’t quite know what to say. Yes, they may provide the necessary confidence boost for many. I consider it.

I don’t think any dog will ever compare to my Croche, But is that all it is?

I can’t put another animal through what I put Croche through. She was so well trained and so fittingly suited in temperament. She was given to me and I was trusted with her. A lot went into all that. We were a team, but I failed her.

My ever growing illnesses caused me to sleep and her to dutifully stay by my side, but she was prevented from shining. She was my pal, but I don’t take the responsibility of a working dog lightly. I don’t know what my future will bring and I can’t bring myself to bringing another animal into that.

I want to curse what stops me, but what often stops me is me. And so I would just end up cursing myself, again and again.

Or, I could take hold of my white cane and use it for betterment, for working for some of my dreams, and for hardening my resolve and building my often feeble confidence.

My feelings of shame when I walk with my cane are hard to describe and hard to fight off. I will never be happy if I don’t try. Fear and disappointment stop me from even trying. What a waste that would be.

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You Bet Your Boots, #SoCS

It’s another
Stream of Consciousness Saturday, #SoCS
and I am thinking about yesterday.

I am thinking about eyes and, yes, about a lot of other random words that do and don’t include the letters “y…e…s”.

Not necessarily “yesterday” as in the actual yesterday, which is about to change, as I waited to write this until the very end of my Saturday.

I spent my actual Saturday having fun with family. That is exactly what I needed to remember what is most important and to forget the yesterdays lately, ever since November 8th, 2016.

I thought of the Beatles documentary I saw recently and their song:
Yesterday.

The “yesterday” of the times during the Beatles popular years looked a lot different from my yesterday. The world is made up of the big and the small things that make up both. Times really change a lot and yet, yes/no, they don’t, as it would appear.

I couldn’t believe my eyes, but “yes” I could. The world is not actually any worse than it was yesterday. My eyes didn’t deceive me, though I wouldn’t have a problem wording it that way.

My eyes help me less and less, though most days I don’t notice either way.

The times spent with my niece and nephews involves me and also my brother explaining more and more that we can’t see, that our eyes don’t work. Sometimes one of them tries to make sense of this by stating that “their” eyes work, as if they are trying to make sense of the fact that they can still see and to work it out in their mind.

My niece is oldest and seems to understand. My nephews are a few years younger than her and are still working it all out, but they are getting there. They need to be reminded to let us feel a toy they want to show us, for example, like on this most recent visit when my nephew wanted to show us his lip balm. I should have smelled it anyway. I soon did and it smelled like strawberries.

Yesterday I could play a game with my soon-to-be-six-years-old niece and not have to think too hard about all the things that are hard. She accepts me for me, her aunt, and she puts her small hand into mine and guides me to where she wants me to go in our games.

My eyes made it impossible to watch my nephew’s swimming lesson the other day, but I still wanted to be there.

My eyes made it impossible to read the menu at dinner with my family, but luckily they could read and we knew, pretty much, what we wanted at a restaurant we’ve been to eat at hundreds and hundreds of times before.

My yesterday of sorts had my eyes working better than my today. I can’t change that. I eat pizza with my family and it tastes just as delicious, with or without fully functioning eyes.

Yes, okay, so the world makes little sense to me, more than ever, but it’s not all bad. I can still write stream of consciousness thought and not have to be perfect or say what any one person expects me to say.

Yes, I do like living in Canada and having it become dark so early, as I feel the night has just as much to teach as the daytime.

Yes, I can focus on the good and use a positive word, instead of no no no no no all the time. I can agree that the world is out of sorts and this is a “yes” statement, instead of just being something negative, where “no” is like a shake of the head.

Yes, I have all the Cherry Coke I could possibly need right now and to last me for a long long time. Can you say sugar rush/sugar coma anyone?

Yes, if I’m not careful I will hold down the shift key for not just the first letter, “y” and onto the second letter, “e”. My computer’s voice program sounds it out like “yeeeees”. That’s how I know, but soon I will have actual braille to read from when I write, so my own editing can go more smoothly. I won’t have to rely entirely on those little subtle clues that I made a small blunder.

YEs.

🙂

I realize that this is a small thing, in the grand scheme of things. All the things, all that my eyes cannot see, so my ears pick up on instead.

Yes, I have been somewhat of a “yes girl” in my life, not wanting to say “no” if I can help it. Hearing that word, “no” isn’t always easy, but sometimes we have no choice. Yes doesn’t always give us what we want.

My yesterdays have been a mixed bag of yes’s and no’s and maybe’s because I can’t always make up my mind. I am somewhat famous for that indecision actually.

Yesterday is in the past and my broken eyes can’t look back to see what I may or may not have gotten wrong. Tomorrow is all I can do anything about now.

Yesterday is over and done with now and tomorrow is all we’ve got to work with.

Yes, I will do my best. My yesterdays’ weren’t all that bad really. It’s just easy, with working eyes or without, to see things that are in the past as being worse than what they maybe really were.

Yes, I have a lot to look forward to coming up. Yes, I am looking ahead to these things. Yes, I loved all the yesterday days I have had.

And YEEEES, I absolutely did eat some of my niece and nephew’s old Halloween candy while visiting, but it was mostly the stuff they don’t like, so it’s okay.

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inside Out, #SoCS

Almost Halloween and it made my day to receive happy updates on my phone of my friend and her little girl, who is enjoying pumpkins and so many other new experiences, this being her second Halloween and first to really begin the fun of the holiday.

This is just a small thing, but a big big thing really, that makes my day better, set against a backdrop of chaos and endless information.

So much else goes through my head and my mind. It’s like that line parents and elders often find themselves speaking about children and the younger generation: “everything I say to them just seems to go in one ear and out the other, like they aren’t even listening”.

In one ear and out the other.

Are we listening?

So much in the news and going on in the world, so much info for me to hear, that I can’t possibly retain everything that comes across my path.

Lately I’ve felt like I can’t live up to the things I’m attempting, for some people, as if I’m not getting it fast enough or in the time they’ve allowed in their own heads, so I may not be getting the hang of it and, to some, should maybe just throw in the towel.

Perhaps this is all mostly going on inside my mind. Maybe it’s not that bad. It could be that they don’t think this at all. But I feel it, from them or from myself, or a little of both.

I try to block out all other things when I am in that practice room. For one hour I don’t let myself think or worry or fret over anything else that would otherwise dog my every waking thought. None of that when I am with my violin and while I have the undivided attention from the one who knows it and is trying to teach me.

I focus so hard on her words and her instructions, on the notes and the strings and the proper techniques, so hard that my mind aches. It’s not just the headaches or the usual body pains I feel, but rather my mind physically stretching to try and accommodate these new things. Sometimes, I feel I hear and understand her so clearly, but other times I fear her wisdom goes in one ear and out the other with me. I fear I’ve just wasted an entire sixty minutes of her precious time.

I wonder how much more would weigh me down if I could see, so those things that went in one of my ears and out the other, straight through my often swirling brain, would have to keep up with what my eyes were also taking in.

I can’t say how that would work. I may never know.

I just want to think of the stories surrounding Halloween as fun and games, but I think of ghosts and those who are no longer hear. I think of the world we’re facing in the glaring absence of those people.

I think of pipelines. I think of refugee crisis stories. These are real lives and people debate them as if they were theories taught in a classroom somewhere. I think of what I just saw on a news documentary, about the famous family because some of it’s members didn’t survive the boat trip. Canada is home to some of them now. Iraq is home to others, who can’t bear to be away from where their loved ones are buried. I think of the fight going on in Iraq and Syria still. Will families who’ve had to flee for their lives ever get to return home again?

Will the wild war of words and opinions and so much more in the US ever settle down? Will Canadian government live up to all their campaign promises? Does any government?

Questions which I come to on my own and those that I hear and learn about, I take them in, even if I think of that Halloween episode on The Simpsons when Bart is attacked by the little people Lisa invented in a plastic tub, which come upon him in the night, shooting in through his one ear and going through his brain and out the other.

I saw this image so clearly when it first aired back in 1998, but now exists only in my memory.

Do we hear today’s real issues? Do they make an impression? Do they touch us? Do they cause us to stand up and act? Or are we so used to hearing so much that it all just flies in one ear and out the other?

All these things turn my insides out on a daily basis. I must focus on creating things. Art. Beautiful music and words and building things that didn’t exist before.

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TToT: Too cold For Pumpkins and Other Stories – A Day In The Life, #BraveEnough #EightDaysAWeek #Review #10Thankful

This will be part gratitude post and part music review, I’ve decided. Music always causes me to be thankful.

Here’s what else’s going on.

I am thankful for some of the best October weather lately.

Okay, so that weather decided not to hold on for our family day, when we’d planned on visiting a pumpkin patch, to have a good time like we did last year. Ah well, can’t win em all.

Before that though, well I would stop at my favourite spot in my house, my stairs, on the landing, and I would put my chin on the window ledge. It is high enough that I just meet its height. It makes me feel child-like when I stand there. It offers perspective.

With this weather, first it was a couple of extremely breezy days and I just loved the sound of rustling leaves in the trees, some far off hissing. Such mild breezes and the smell in the air was just glorious.

I am thankful for Canadian healthcare.

I tried to feel indignant on some comments DT made about our healthcare, but decided that is nothing but wasted energy.

Nothing is perfect, as I continue to have symptoms that become difficult to treat, but when it really counts, Canada is the best place to be.

Again, I worried about my brother’s health, three years post kidney transplant. He needed medical help this week suddenly, to be treated for shingles immediately, and he was. Hopefully, he is on the road to total recovery. Knock on wood there are no further complications from the virus. It is his second time with it.

I am thankful for live music.

Shawn Hook was the opening act.

I am thankful that I was able to attend a live musical performance like no other, with my sister and my unborn niece or nephew.

Lots to say about this show, which was a lovely surprise of a performance, but I still want to write a full review another time.

This song just makes me want to get up and dance.

I was looking forward to seeing Lindsey Stirling live for a while now and, once more, I found myself becoming transformed by what I heard and felt.

I am thankful for another Wednesday evening in “The Elsewhere Region” (which just means my twice-a-month writing group), that you just never know who might show up there.

This week we had a surprise guest from Denmark. She was a friend of one of our members, just visiting for the week, but it was nice that she came along. She is a writer too, which was obvious from her piece that she wrote and read aloud to the group.

I am thankful for the love of certain kinds of music that my father has passed on to me, from his generation, of the kind that a lot of people my age don’t have.

My father taught me to love and appreciate The Beatles. I owe him for that.

This documentary was sweet and sad and it brings you back to the 60s, a time I did not live through, but when I watch things like this, I feel I can understand a little of what that time was like.

I am thankful for a violin teacher who shows me lots of compassionate patience and who lends me a chin support so I can keep hold on my violin with just my neck and head.

I am thankful for my brother’s quiet support of my attempt to learn to play the violin.

Recently, my discouragement has been growing, but I will not give up.

Some things we really want, we soon learn just aren’t meant to be. Learning to play the violin, for me, isn’t one of them.

Doesn’t mean I don’t doubt myself on a regular basis. I may not be the most dedicated player, devoting hours and hours to learning, but I am a slow yet determined learner.

Just when I was beginning to doubt that I was doing all of this for the long run, I practiced, on the sly, while most of my family were elsewhere. I did not draw attention to it, but my older brother was present.

We both think the violin is just so neat and I felt better in that moment, when I acknowledged how hard it’s been and when he offered up his signature style of quiet support as I fumbled to get through a song.

I vowed then that I would not give up on my dream.

I am also thankful that he doesn’t give up.

He keeps helping me with things I struggle to do on my own, now that it’s just me.

I think music sounds so much better in surround sound. He made it so much easier for me to go from cable TV, to movies, to my computer. The fewer steps there are, the easier I will pick it up and do it on my own, even if it takes me forever to master it all.

And my brother keeps coming back, helping me, over and over again.

I love hearing my niece and nephews playing. They even allow me to get in on their games now and again as well.

We played and I watched how the game was constructed. How my niece acted out what she sees every day, with the grown ups in her life, how there’s a repeated order to the imaginary day we were living. Wake up. Going shopping. Eating lunch. Having a day where we just rest. Back to bed. My brother was the best at these last two.

🙂

Children are the best and I watch the children in my life, reminding me of the child I once was myself. This is a priceless gift.

I am thankful for my family. Goodnight.

Her Headache

A place to express myself through writing. a way to make sense of it all. Life as I see it.

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