1000 Voices Speak For Compassion, Blogging, Guest Blogs and Featured Spotlights, History, IN THE NEWS AND ON MY MIND, Kerry's Causes, RIP, Shows and Events, Special Occasions, The Insightful Wanderer, TToT

TToT: Major and Minor – Zones and Pods, #InternationalLiteracyDay #9/11 #10Thankful

“I can’t get no peace, until I dive into the deep, blue lullaby.”

—Blue Lullaby, The Jellyman’s Daughter

Of course everyone can recall, with at least some detail, just where they were on the morning of September 11th, 2001. Most then speak of staring at the television, watching the horror unfold.

I remember the feelings. My father driving my sister back to college, starting to hear things on the radio in the car. I went into school, my teachers listening to radios and talk of World War III. That was my fear, but although I watched the news with my father all evening, our family just recently acquiring CNN, I wondered where all this might lead.

I wonder now when people speak of not getting that image out of their minds, but even then my vision was bad enough that I wouldn’t see those towers fall, people jumping for their lives, to their deaths. Am I less affected somehow, because I didn’t see it with my own two eyes?

What about anyone, such as children born after 2001, like my niece and nephews, who weren’t alive yet to know that day? Well, I suppose it would be like Pearl Harbor for me and also my parents. It’s the way I’ve heard those who witnessed that describe the feelings, but the difference being that lead to war for the US, a world war that had already begun for Europe. This time there has been no declaration of another world war, not in the 15 years hence, and hopefully never again.

If I were to have cried at the end of this strange week, would anyone be all that surprised? Whether from having to make more decisions about my health, to decide on medication coverage and possible effect on my transplanted kidney, which is coming up on twenty years. My fear, no matter how unlikely, ratchets up ever higher. Or from the fact that time rushes by, ever faster, as my niece enters an actual number grade, her brother soon to follow their cousin, who himself just began junior kindergarten this week and oh how little they seem for that first day. Perhaps it’s that I can’t possibly manage all my email and technology issues on my own which required having to accept help from one who knows so much more, or else maybe it’s that I realized I can do more than I thought I could. It never ends. Or from a painful part of being Canadian or a sombre day for the US, fifteen years after-the-fact.

Blue Lullaby

And so I let all that sink in and I let my gratitude germinate and I feel all those overwhelming things and then I move forward and I find my list of thankfuls.

I’m thankful that I get to see my first big concert of a violin player live.

I’ve loved the sound of the violin for years, but now more and more I hear it everywhere. Wherever it appears in a television or movie’s soundtrack I zero in on it immediately, sometimes still uncertain, but at my core I know that sound.

I’m thankful that I found a doctor who seems to have a few suggestions for possible medical treatments.

After a while, you feel like you’re losing it and maybe you should just suffer silently because nobody could possibly understand. At this point, I take what I can get with my health, which sounds bad, but really I don’t believe, in spite of all doctors have done for me, that they have all the answers or can cure everything.

The question then becomes: how much can I put up with, how much do I just need to accept, and how then to focus on the good things in my life?

I’m thankful that I got to attend a truly unique and wonderful secret performance.

Sofar Sounds

Secret gigs and intimate concerts, all around the world – in 271 cities.

My brother and his friend have been playing music all around their city this summer, but this time they were scheduled to perform at something truly special and I just had to check it out for myself.

Sofar Sounds on Facebook

This wasn’t only a gig to them. It was held in the bachelor apartment of that friend of my brother. I happened to know where the show was being held, but only because M had volunteered to host it. I still had to apply on the Sofar Sounds website and wait to see if there was a spot left for me.

Intimate doesn’t begin to describe it. There were at least thirty people, mostly twenty-something’s, all crammed into a small house apartment in London, Ontario last Tuesday night. It was air conditioned, but this made little difference once all musical equipment was set up and everyone filed in to watch the three performances.

It felt lovely to me though, even though I was overheating and realizing I was possibly the oldest person there, at thirty-two. It was just so wonderful to see the love of music and the teamwork that these young men and women showed to bring people together through music. It frankly restored my faith in people, younger generations, or any generation for that matter.

I’m thankful that at said secret, exclusive performance, I got to learn of a duo I’d not heard of before, one I likely never would have heard of otherwise, and one which included cello.

The Jellyman’s Daughter

This young musician couple from Scotland were on tour in Ontario and they were happy to be playing at their fourth Sofar, after Edinburgh, Hamburg, and Amsterdam. They were a team also, in the guitar, mandolin, and the cello he played, and her singing with him backing her up. They played a nice mix of Scottish music, bluegrass, and even a Beatles cover with a brilliant new spin on its classic sound.

I m thankful my niece started grade one and my nephew began junior kindergarten.

This week was

International Literacy Day.

I was emotional all week, thinking about it, how my niece is learning how to read and write and next it will be my nephew’s turns.

I was emotional as I saw people I started school with, more than twenty-five years ago now, sharing the news of their own children’s first days of school, on Facebook. I was emotional because time flies and that’s both a good and a bad feeling, with nothing to be done about it either way.

I’m just lucky that my niece and nephews have access to all the tools they need to grow and learn in the right environment.

I’m thankful for new members and old ones, at my writing group, who share their varying perspectives with me.

I get to witness the different writing styles, experiences that are unique to each individual writer in that room, and they trust me as one of the few they feel mostly comfortable reading their words out loud to.

The Elsewhere Region

This is a term that just happened to come up at the most recent meeting and I’ve decided that is how I will refer to this group from now on. I am a huge fan of names and titles for things. Saying “writing group” or “writing circle” just never has had quite the same ring to it.

I’m thankful my ex could make a dent with my email problem.

I have collected thousands and thousands and thousands of emails and my ability to stay on top of that, deleting or organizing, it got away from me. It was so bad my computer’s voice program couldn’t even speak anymore, making it impossible to check my own email. It felt like a runaway train.

I resist these things, such as calling in the expertise of an IT ex boyfriend who knows his stuff. I don’t like to be a bother to those who are currently in my life, let alone those who chose not to be.

The hard part is that someone is a decent enough person to want to help anyway. The worst part is knowing that decency exists always.

Dent made, but still I feel like I can’t quite get a grasp on this, which feels like a silly complaint to have really.

I’m thankful that a favourite blogger and writer of mine has returned, after a fruitful summer off, to blogging and writing again. And who has made her return by sharing something I did not already know on her blog.

The Fallow Period

I’m thankful for peace where I live, where my family lives, and where my niece and nephews can grow up without being directly impacted by war and violence.

I recently listened to a news story about hopes of a cease fire in Syria and then a man who was a child soldier, speaking on Facebook, about the plight of his people in the country of South Sudan.

No country is perfect. None is spared completely, forever.

I’m thankful for my country, both that I and others can recognize the bad that’s taken place and still celebrate what we are as citizens and what we could be.

Canada In A Day

Next year isn’t only the year I celebrate my twenty-year anniversary of my kidney transplant, but as a much broader celebration, it will be Canada’s 150th birthday.

So, on September 10th, CTV, the national television broadcaster asked Canadians to film a minute of their life, a reason they are proud to live in this country. All clips will be compiled together. Sounds like a lovely pride project.

I mention several reasons, just here in this week’s TToT, why I am proud to be Canadian. This doesn’t mean I think we are a perfect country or that we shouldn’t try to learn about mistakes of our collective past and make an effort to do better for the next 150 years.

One musician is doing just that before he runs out of time:

***

STATEMENT BY GORD DOWNIE clickable

Ogoki Post, Ontario clickable

September 9, 2016 clickable

Mike Downie introduced me to Chanie Wenjack; he gave me the story from Ian Adams’ Maclean’s magazine story dating back to February 6, 1967, “The Lonely Death of Charlie Wenjack.” clickable

Chanie, misnamed Charlie by his teachers, was a young boy who died on October 22, 1966, walking the railroad tracks, trying to escape from the Cecilia Jeffrey Indian Residential School to walk home. Chanie’s home was 400 miles away. He didn’t know that. He didn’t know where it was, nor how to find it, but, like so many kids – more than anyone will be able to imagine – he tried. I never knew Chanie, but I will always love him. clickable

Chanie haunts me. His story is Canada’s story. This is about Canada. We are not the country we thought we were. History will be re-written. We are all accountable, but this begins in the late 1800s and goes to 1996. “White” Canada knew – on somebody’s purpose – nothing about this. We weren’t taught it in school; it was hardly ever mentioned. clickable

All of those Governments, and all of those Churches, for all of those years, misused themselves. They hurt many children. They broke up many families. They erased entire communities. It will take seven generations to fix this. Seven. Seven is not arbitrary. This is far from over. Things up north have never been harder. Canada is not Canada. We are not the country we think we are. clickable

I am trying in this small way to help spread what Murray Sinclair said, “This is not an aboriginal problem. This is a Canadian problem. Because at the same time that aboriginal people were being demeaned in the schools and their culture and language were being taken away from them and they were being told that they were inferior, they were pagans, that they were heathens and savages and that they were unworthy of being respected – that very same message was being given to the non-aboriginal children in the public schools as well… They need to know that history includes them.” (Murray Sinclair, Ottawa Citizen, May 24, 2015) clickable

I have always wondered why, even as a kid, I never thought of Canada as a country – It’s not a popular thought; you keep it to yourself – I never wrote of it as so. The next hundred years are going to be painful as we come to know Chanie Wenjack and thousands like him – as we find out about ourselves, about all of us – but only when we do can we truly call ourselves, “Canada.” clickable

***

The lonely death of Chanie Wenjack – Macleans.ca

It’s painful for me when I hear about stories like these, boys like this, lives who mattered and who deserved to feel safe in this country, like I’ve felt. These are things I too would rather not have to think about, as I can plead ignorance growing up, but I can’t continue to bury my head in the sand any longer.

Canada in a day is a great thing, but it’s truly impossible to sum up what Canada has been, what it is now, or what it should be or could be or might be in the future. It’s important that I speak for both here. I want my blog to be a place where I show both sides of our Canadian coin.

Standard
Blogging, Guest Blogs and Featured Spotlights, Memoir and Reflections, Piece of Cake, SoCS

Sack Sick Suck, #SoCS

Linda is the chooser of the SoCS prompts every week and I am glad for that. I wouldn’t want to be responsible for this, but she does a fantastic job.

I have to admit, though, this week’s prompt was tricky for me, but I wanted not to miss it because this is the last one for 2015 and so I am taking a crack at it.

SoCS

I do love her contribution, as a thankful and a stream of consciousness thankful at that:

http://lindaghill.com/2015/12/26/socs-socks-socs/

I can totally relate to what she says, as I love my WordPress blog and those I choose to interact with here, but I did not know if anyone would want or care to read anything I had to say about socks.

I went with a strange title, all the four-letter words that are like “sock”, but that aren’t. I don’t like putting the actual prompt word or part of a word directly in the title of my post. Also, it just sounded nice, all those “S” words in a row, hissing like a snake, like the snake my brother has as a pet, which I would rather not touch, but I am getting off track here.

I hate wearing socks, but I also don’t like being barefoot. That is why I am glad I got a new pair of dog slippers, while out shopping with a friend a few weeks back. Slippers are like socks, but more comfortable. This pair is so soft inside and neat feeling out.

My feet/legs aren’t really meant for socks. I even go out without them, my feet right in my shoes or boots. I know, I know. This will get me sick, right?

My great grandmother believed in the old wives tale of if you don’t wear socks you will get kidney failure. Well, I got kidney failure, so I guess I should have listened to her.

I always lose socks when I do my laundry. I am sure I am not alone in that, a common one, so I should use those things that keep two socks together.

What are they called again? Can’t think now and no time for Google.

This would also eliminate the problem I have of being able to match socks. If they feel the same I normally have no problem, but it’s more my favourite fuzzy socks )not quite sock and not quite slipper) that I don’t know how to match, for all the coloured pairs I own.

I always hated stockings, a form of socks made especially as a torture for women and girls, in my humble opinion. They feel all cool when on, when in a dress, but me as a little girl hated how itchy I would eventually feel in them. I could wear knee socks or none at all. I wore more dresses as a little girl, but less so now. All so unfortunate, isn’t it?

🙂

I did think of the phrase, “knock your socks off” and I do enjoy that one quite a lot. Something has to be pretty amazing for me to break out that one.

I guess several things could have that effect: music, movies, books, chocolate, views, trips, people.

It’s one of those four-letter words, “sock”, that I run over and over in my mind, playing little word games with myself when I can’t sleep at night. Yeah, how exciting it must be to be inside my head, huh?

😉

When I first started seeing SoCS posts in my email, after I must have signed up to follow Linda’s blog, I did not yet understand what this whole Stream of Consciousness Saturday thing was. My laptop and phone’s voice that reads to me would sometimes say it in just such a way that SoCS sounded like socks, if you spell it out the way it sounds. See what I mean?

I know better now and glad I decided to investigate further. I kept hearing about this “socks/SoCS” thing and eventually I figured out what the initials meant for real. I am so glad I did.

Linking back and hope for a lot more Stream of Consciousness Saturday fun in 2016:

http://lindaghill.com/2015/12/25/the-friday-reminder-and-prompt-for-socs-dec-2615/

What a weird one to go out on for the year. I like that this particular prompt encourages the weirder the better.

Standard
1000 Voices Speak For Compassion, Bucket List, Guest Blogs and Featured Spotlights

As Long As There’s Christmas: My Grownup Letter For Santa, 2015

Funny, watching Tim Allen play the role made me want to write this letter.

cameraawesomephoto-2015-12-7-18-05.jpg

Monday, December 7th, 2015

Dear Santa,

It’s been a while. I would’ve paid more attention to getting this letter to you in time, but it’s not like the old days. Now there’s email. You should get this immediately, as is the way in our world, instantaneous.

I wrote you last a few years back, when I wanted something very badly, as an adult. As an adult, I suddenly no longer believed in the idea that even you could make any dream come true. I know you didn’t ever just bring a little girl a pony, just because she asked for it when she sat on your lap.

This does not make you any less magical. I had my doubts there, and still have my days, but then I tell myself you know what we want, as children, long before we ever know ourselves.

Children soon learn that dreams don’t always come true, but we adults do our best to postpone just that eventuality, and you play a vital part in that. I still thought I would talk to you about what I wish for, even if you can’t make it happen. I know, at least, you would never judge or argue with me. You will just listen and that’s all I could ask for, kind of what I need this year.

I never needed the fancy wrappings. In our house, on Christmas morning, the gifts always sat unwrapped underneath our Christmas tree. This never mattered to me. I love a shiny present with a bow on top just as much as the next person, but it’s a lesson for life. Material things aren’t everything, but as I grew up I learned, from you, that it matters not only what’s inside or outside alone. One does not mean more than the other, if it’s made up of love and care.

Of course, to a certain point with Christmas presents it’s what’s on the inside that counts. Maybe this is not such a selfish thing as we’ve been made to believe because people’s insides are what count too, not only what their outer wrappings might be. As bright, colourful, shiny, and sparkly as the outside wrapper might well appear, it’s the whole package that’s what’s truly important. The outer wrappings often only distract the eye from what else might be going on beneath the surface.

I went from wishing for doll houses and Brita water jugs (just like any eleven-year-old girl would do), to safe and warm homes for every child and fresh water for every person on the planet.

Anything I ever really wanted, or really all I ever needed, I got and I learned to appreciate how lucky that made me. You were the one behind that. You were a better reality than the magic and the story. Being born blind has taught me one thing:

“Seeing isn’t believing. Believing is seeing.”

Okay, I admit I haven’t believed in you lately, in a while. I have seen too much of the reality of adulthood to feel your magic and your impact, but we all need something to believe in, right? I see so little, less and less since I was a little girl, but I know and believe enough in many many things that I cannot and may never see again. Simply because I don’t see something, that does not mean it isn’t there or does not exist.

I know the reach of your talents, the rules of your job, and the pressures that go along with that, not wanting to let anyone down. I know you have a lot of girls and boys wanting something, different things from you. You do your best, just like any of us do ours, not to let those who may be counting on us down. I feel like I am constantly putting demands on other people, and I guess you are no exception.

I want less violence in the world. I want to make a difference with that, to be given the opportunity to achieve that through a future in writing. I want love. I want to see the world. All of this I don’t think you can give me, but if you could at least show me the way to find some of these things myself, that would be suitable.

All I really want from you is to give my niece and nephews as many years of being safe in their childhood lives. I want them to enjoy their childhood years together for as much time as you can provide. As long as you remain real as real can be to them I will once more believe in you with all the faith I had as a child myself.

For as long as you continue to represent the innocence and example of a safe male stranger, in a world where it feels so unsafe for our children to trust these things, I will remember that you were that to me too once.

your bright red and white on the outside contain all the best things about an adult, one children don’t have any reason to fear and every reason in the world to look up to. Your jolly magical spirit shines through and you give off an aura of a safe world, where people are kind, giving, and worth trusting.

You accomplish so much, in such a short amount of time, and we need to look to this example for the rest of us adults. Our children deserve that kind of determination for a better world, for more than we’re currently giving them.

The part of Christmas I need, more than any one present, is the childlike faith in things working out for the best. You can bring that back in me and all the rest isn’t what I need you for. I know this isn’t too much to ask Santa. I will always be grateful to you for that naive child’s view that I feel most strongly this time of year, of which you play such a huge role.

I believe in you through the hope you inspire and in the possibilities you represent to the children in my life. I can get back there, as much as is humanly possible for me at this time, as I get all these thoughts down and sent off to you in this letter.

I know you will read through this letter carefully and will understand what I am trying to say, even if nobody else quite does. A secret between the two of us, an understanding I hope we will always have, and that the consideration you give this will be enough to grant me everything I really want for Christmas.

I was given the challenge of writing a letter, but there’s nobody else I’d even think about writing a letter to at this time of year than you. I thought about writing it in braille, but worried it wouldn’t make it to you in your North Pole in time. I always was impressed you could read it. Email is a modern convenience I do benefit from, but it’s not quite the same thing, so I hope you will forgive me.

Your biggest lifelong fan,
Kerry

As Long As There’s Christmas

Standard
Blogging, Guest Blogs and Featured Spotlights, Kerry's Causes, Memoir Monday, RIP, The Redefining Disability Awareness Challenge

My Free Five

It’s been a while, two weeks in fact, since my last post for

The Redefining Disability Awareness Challenge.

As a refresher, my previous post for the challenge, on Memoir Monday two weeks back:

Indefinable, Undefinable? Definitely

This week I am given free rein to speak on whatever just so happens to be on my mind.

🙂

***

#1 Emily’s Oz

On Facebook I came across a post about a commercial that would be aired during the Academy Awards. I watched the Canadian broadcast and saw no sign of what they were talking about all evening, but that is where the internet is so wonderful.

🙂

I am including both commercials: with descriptive and without,

(Emily’s Oz, without descriptive).

I recommend watching both short commercials, paying attention to compare the difference between what it’s like to watch, with and without the descriptive track.

It reminds me of those commercials: one has a woman arriving home with a bag of groceries and being frightened by something and the other is a woman panting and yelling and being told to push.

These are to advertise the need for descriptive services for television and films.

In the former, is she being frightened by a mouse or by a child?

In the latter, is she helping to move furniture or is she having a baby?

🙂

Just this weekend I tried to watch an important documentary on a brutal attack on a woman in India. I found I was unable to watch for a lot of the hour because there were only subtitles, which caused me to miss out on more than half of what was being said.

Of course, the example I give here is much more lighthearted, but I just wish something like descriptive for watching any programming wasn’t still so hard to come by.

Anyway, I thought that Emily was pretty cute and figured today was a good time to share her and the project built around her.

For a behind the scenes for the making of…check out:

The Making of Emily’s Oz

#2 TED Talk On Why Disability Does Not Equal Inspiration

I immediately heard the term this Australian comedian used, “Disability Porn” and I was drawn in, but not for what it might seem like.

🙂

All icky jokes aside, she makes some excellent points in her talk, of which I highly recommend.

Disability Porn – Definition: The objectification of one group of people (living with a disability) for the benefit of another group of people

She believes that having a disability does not make someone exceptional, but questioning what we’ve been taught to believe about disability does.

I couldn’t agree with this more.

I have grown very uncomfortable of late with the idea of being seen as overly inspiring by others.

I know. I know. This probably makes me come off as a bit self deprecating and the rest. I don’t mean to seem like I am being bashful or unwilling to accept praise when given it. I have been called inspirational before.

I just wish, sometimes, it was not all because people are so amazed I can function at any sustainable level. Yes, I can brush my own teeth, hair, dress myself, and cook a meal. Shock of shocks.

Just because someone can’t themselves imagine how they would do these things if they could not see, does not mean I should be praised for something I am saying I have no problem doing. If I say it I mean it.

Stella says in her talk that someone wanted to present her with an achievement award as a teenager, but her parents turned it down because, in their eyes, their daughter hadn’t done all that much to deserve special attention and praise.

This could be seen as mean-spirited or unfair, but I “admire” her parents for taking a stand, when they showed others that they didn’t really think of their daughter having done anything all that spectacular.

Others might not have taken such a stance, but I applaud them for not singling her out. We hear the word inspiring and that automatically must be a positive thing, right?

I may be called ungrateful or a jerk for seeming to push away a well-meaning compliment, but just think about what Stella and myself are proposing.

It isn’t our job as people, who just so happen to be living lives others can hardly fathom, to be here solely to inspire.

I myself have been guilty of it: of saying I must be grateful when looking at someone who has it worse off than me because it could always be worse.

How do you or I think that makes that other person feel to hear that? Oh, so they think we’re inspirational or they are just glad they aren’t us.

This speaker, unfortunately, has passed away now, but this awesome and cut-to-thecore TED talk made me think and it was just the sort of radical idea I guess I had been looking for myself, although I just couldn’t vocalize it in the way she did.

RIP Stella

#3
DRUMSTICK FOR A BLIND MAN, PLEASE!!!

One thing I like least is hypocrisy, but I am as guilty as the next person of exhibiting it.

As I grow older, I suppose, I become more and more uncomfortable with things like my number three today.

I even recently answered a question for this very challenge about the

Blind Bonus

sometimes given to myself and others.

When I was sixteen I got a trip to California from an organization who awards wishes and dream trips to young people with disabilities. I wouldn’t trade that experience for anything now, but as I look back I feel a strange discomfort.

A blind man holds up a sign, like they would have done hundreds of years ago, as beggars on a street corner. This feels wrong to me.

Don’t get me wrong…Dave Grohl was a stand-up dude for fulfilling the guy’s request, my own blind brother received a pair of drumsticks from R.E.M. once, but I just wish we didn’t have to use such a thing to get attention and gifts.

I make jokes and I share this story because it really was a nice thing to do and supposedly the Foo Fighter’s front man is known for granting such favours; there’s nothing wrong with giving a dying cancer patient something they greatly long for. I don’t mean to take it all so seriously.

Take what we can get, is the “blind bonus” motto, but I honestly don’t think, as an adult, I would want to hold up any sign.

#4 Would You Rather?

I recently came across a Facebook status on an author’s page. The game of “Would You Rather?” is played often on such FB pages.

This time the question was:

Would you rather…be unable to speak or be unable to see?

I generally do not like these kinds of questions. I have often thought would I rather be blind or deaf…and I guess that’s a question for another day’s post.

😉

I wasn’t so bothered by the question, in this case however, as I was to read the responses and to see that nine out of ten people said they would rather be unable to speak than see.

It just sort of shocked and saddened me to realize how much fear there is out there about losing one’s sight. I thought, to be unable to communicate one’s thoughts, feelings, and needs through words might be more of a concern to those answering.

A common response I saw was: “I could still write down what I wanted to say. At least if I couldn’t speak I could still read. I need to be able to read books.”

Coming from those on an author’s FB page I wasn’t so surprised to hear that, but I did reply with the solution that I assumed might be more well-known. There is always the technology to read without sight. Audio books are becoming more and more common. These things don’t immediately occur to most people and I get that.

I just know that people take for granted being able to relay to someone else what they want. I know of people who can not do this and I have seen how hard that is, for everyone involved.

The fear of blindness is just so common and I am left feeling like the monster everyone is afraid of. I realize it is the blindness not the person they are referring to, but here I share my biggest fears with disability. That is what this challenge is all about.

I will tackle the question of how I feel about my own blindness and whether I would choose to see if I could, in a few weeks time here.

#5 Disability Confident: Rethinking Disabilities

“Would you like to have higher employee retention, lower absenteeism, greater innovation, and profitability? It’s possible…if you change your thinking.”

Who wouldn’t want this, right?

🙂

This was the pitch by the Ontario Disability Employment Network to attract businesses to attend their one-day conference on the benefits of hiring people with disabilities.

At the start of February I was watching a program on my local television channel here in Ontario:

TVO.org – Creating a Barrier Free Ontario – On The Agenda with Steve Paikin

On their nightly program they focused on a conference being held the day after my birthday, at a hotel in Toronto, and I immediately perked up. It definitely sounded like something I would like to attend.

Ontario Disability Employment Network (ODEN) – Rethinking Disabilities Conference, Toronto

It goes on to say the benefits already found are that companies who hire those with disabilities are found to:

**revolutionize their workforces and delivering bottom line results.

And at the conference attendees would be:

**Learning how to leverage the latest in progressive employment practices to put your organization at the forefront of a new movement.

**You’ll hear from business leaders from across North America who have embraced this new approach to hiring and are now disability confident.

**Build your knowledge and learn about a whole new way to create an inclusive workplace and gain a strong competitive advantage through improved culture, loyalty and employee innovation.

Disability confident…hmmm.

I was intrigued to listen to the program and maybe even attend the conference. I knew it was for employers more than myself, and was happy to hear about the fact that these conferences were happening, but maybe if I were there I could represent more of those who are in need of the chances to prove our skills and worth.

I didn’t want to look at it like that.

I guess though everyone must prove their worth and skill to an employer and I have always wanted equal treatment and consideration.

The term “disability confident” was an interesting one to me, but I couldn’t quite figure out why.

I looked into the specifics of attending and emailed someone in charge. I received a reply very quickly, which was most appreciated.

It looked like they were happy to have me there, if I were willing to pay the price of admission.

I suppose businesses are able to afford hundreds of dollars for a one-day conference which might help them achieve everything I listed above, but I certainly could not afford it. I was not one of the people on Steve Paikin’s program: a lawyer or a politician. I was on fixed government income and assistance and one of those hoping to get off those one day.

This is not to complain because they gave me a discount, but unfortunately it was still more than I could spend, even on a worthy cause.

It was too last minute and they informed me:

Hi Kerry,

So sorry I didn’t respond to your email sooner. I was out of town at the end of the week and it slipped by me while I was trying to catch up.

Unfortunately there’s not much else I can do this time. Typically we try to keep 2 or 3 complementary passes for situations like this but we are running very close to the wire and may even lose money on this particular event. As a not-for-profit without any financial resources, we just can’t afford to do that. Our food costs for the day are running almost $200 alone, plus there’s all the other expenses.

I hope you understand our situation and perhaps we can accommodate you at a future event.

Thanks,

Joe

—–Original Message—–
From: Kerry Kijewski [mailto:kkherheadache@gmail.com]
Sent: February-05-15 9:35 AM
To: Joe Dale
Subject: Re: Inquiry

Hello Again,

Thank you again for looking into this for me and for offering me the discount.

Unfortunately I am unable to come, due to the cost.

This is really a shame because I saw the program on TV the other night and I am very passionate on the subject of it and this conference.

It’s unfortunate, again, because I am not one of the lucky and hardworking few, like on that program the other night, with a well paying career. I am one of the majority of people with disabilities who hasn’t had so much luck finding jobs and thus I am on government assistance and am unable to afford this conference.

I just figured that it might be a positive thing for me to be there, as I am one of those for whom the speakers are going to be speaking about.. I am not happy with the current situation and would love to see improvements on employment opportunities for myself and others with visual impairments.

I am saying this just to explain why I seemed so interested in attending your conference and why I now have to decline.

Is there any other conferences or public forums you could recommend that I could afford, that are about these issues?

Thanks for your time.

Sincerely,
Kerry Kijewski

I included the above email exchange to show that I did my best to inquire and explain my situation and they seemed to do their best to accommodate, however it was not enough and did not work out in the end.

“Join the movement that is changing the face of Canadian businesses and building a powerful new economy.”

http://www.crwdp.ca/en/rdc

I hope to find a conference of some kind, relating to these issues most important to me, sometime in the future. I would like to get involved somehow and am passionate on these issues and thought this would be a good topic to end with for this week’s free posting.

***

Hope you enjoyed my Free Five today. I borrowed the framework and idea from something new I am trying and of which I started a few weeks back, with the following:

In The News and On My Mind: #1000Speak Edition

I hope to continue, on Wednesdays mostly, but have already veered from the plan I had for it when I posted it.

🙂

I don’t know what the future of Redefining Disability is, as these things rarely go as planned when the bloggers who come up with them start out. Like #1000Speak, this one took off and Rose of

http://rosebfischer.com

had no clue anyone would even want to take part in the beginning.

I will go on because I like devoting my Memoir Monday to this topic and because Rose came up with a set of questions such as this one:

What would you tell someone who has recently been diagnosed with your disabilities or disabilities that you are familiar with?

I will answer that one in one week’s time.

Standard