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Here Comes the Diet Police #Nutrition #AtoZChallenge

Oh no. Here comes the dietician.

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So many doctors. So little time. It’s the dreaded diet doctor, who has come to lecture me on what to eat and what not to eat.

The A to Z Challenge – N is for Nutrition

From the moment I was diagnosed with kidney disease, I began to see doctor after doctor. One specialist I would see would be the one with all the expertise on nutrition.

I had low calcium. I had low iron, anaemia. I needed to take supplements. I was put on dialysis. I was under weight and malnourished. My body wasn’t getting any of the proper nutrients it needed. The kidney disease was preventing anything healthy from happening in my body.

From then on I saw the dietician, who told me what foods to stay away from. Then, once I’d had my kidney transplant, I saw one again, who told me I was to basically eat the opposite of all I was to stay away from while on dialysis.

It was confusing. It was confusing, going from fighting to keep any weight on to being on high doses of medications which put on weight.

Food has been a major factor for me, something I had to think about, since I was eleven years old. I fought like hell to be healthy, but I never dreamed that nutrition would be such a difficulty for me.

Now, I am on such low doses of those transplant medications, but the damage has been done. My body has been through a lot.

I try to find balance. I love salad and I love chocolate. I could live on fruit and vegetables, but I love my pizza. I love to drink water and still I drink Coke.

This nutrition thing is hard and I don’t see it getting any easier, the older I get.

***This is my first year of joining the A to Z Challenge and so I’ve decided to post randomly, as a way for new visitors to my blog to get to know me a little better. I look forward to discovering some interesting new blogs too.

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1000 Voices Speak For Compassion, Bucket List, IN THE NEWS AND ON MY MIND, Kerry's Causes, Special Occasions, The Redefining Disability Awareness Challenge, TToT

TToT: Once, Twice In A Blue Lobster – Long Tones, #10Thankful #BlindNewWorld

And what is so rare as a day in June?
Then, if ever, come perfect days;
Then Heaven tries earth if it be in tune,
And over it softly her warm ear lays;
Whether we look, or whether we listen,
We hear life murmur, or see it glisten …”

—James Russell Lowell

Welcome June!

Paperback Writer – The Beatles

The above song, by the Beatles, turns fifty years old. I loved it because it reminds me of my dad, and his love for that band which goes way back, but also because it is about a paperback writer, something I wanted desperately to be, myself.

So guess what was discovered off the coast of Canada last month?

Two Blue Lobsters Found In Canada

Something so rare and beautiful; sometimes, the rarest of the rare ends up being most precious of all.

Some things aren’t meant to be, no matter how much we wish they were. That is a hard reality to face. One of those weeks, with some stress and anxiety, many ups and downs, but I am thankful overall.

TEN THINGS OF THANKFUL

For lobsters of all colours.

One in two million. What are the chances?

Yay Canada!

I love colour, the colour blue. I love lobsters. This story made my day, my week, and more.

If these odds can be beaten, anything could happen.

😉

For the help that came from far away.

South African firefighters dance as they arrive in Canada to help battle wildfires

This happened across the country from me. I didn’t experience these horrible wildfires up close. I can’t imagine what it’s been like for the residents of Alberta who did experience the wrath of nature.

This story about the firefighters from South Africa who came to offer their assistance to the people of Fort McMurray made my day, when so much injustice and anger exists, but then these guys came all this way, to do what they could to help.

For a dramatic return to my writing group this week.

Okay, so we usually talk a little, casually, before we get down to the actual writing. This time, things got a tad intense for my liking, but it got me thinking.

It started with nobody remembering to bring in a mystery object for us to base our stories around. I just happened to have my keys and the beaded, handmade pink cross from my grandma. I keep it because it reminds me of her, helps me feel close to her, but on this occasion it seemed to spark a whole religious thing that I never would have expected.

The one member of the group spoke up and held up his new found religion, his bible. This launched us into a discussion where he swore the earth is flat.

By the time the debate had gone on and I should have just got the ball rolling for the purpose of us all being there, meaning I should have just started to write, but I broke down and had to challenge some of his statements.

“So, can you heal me? Can you cure my blindness?” I asked. This may have been a mistake.

I have a lot of feelings on this, possibly better suited for a story because I don’t begrudge anybody their beliefs or the faith they’ve found. I just can’t spend my life hoping to be cured.

It got my brain working, anyway. Thankful I can think these matters over in my own head, as well as discussing them with people I’ve grown to love spending two evenings a month with.

For progress seen by my violin teacher, if not entirely noticeable by me.

There is this thing called long tones. I am loving all this violin lingo.

Doesn’t “long tones” sound so smooth and lovely?

🙂

Well, it’s like practicing scales. You just go from one string, back and forth with the bow, and then onto the next.

I need to keep my shoulder down and move through the note with my elbow, and less with my shoulder or wrist.

Well, my teacher said she noticed somewhat of a breakthrough, a milestone I’ve arrived at. I don’t feel it the same as she sees it, but that’s okay. I’m getting there and it feels really good.

For the cooler weather this week.

I love having my AC there when I need it, but it’s nice not to need it too.

While the end of May grew to be quite humid, June is starting out with cooler temps and even rain. I don’t mind.

For a beautiful song for me to try writing more lyrics to.

My brother has recorded a full version of “Decade Adrift” and now I will spend the coming week writing the lyrics.

They will be based around the theme of feeling lost for an entire decade, but I plan to use being swept out into the ocean as the metaphor for the feeling.

For care of loved ones when I felt like crap.

I regretfully had to miss out on a family day, due to one of my more nasty headaches. I was sorely disappointed, but it wouldn’t have been any fun if I had attempted it.

So, my parents felt bad and knew I would too. They told my sister and her husband to check up on me and they did.

I was feeling nauseous and couldn’t eat much. The fruit smoothie they brought by was greatly appreciated.

For a thunderstorm overhead.

I enjoyed the cool air that ushered in a storm this weekend. I enjoyed staying indoors, upstairs, with my nephew watching the rain through an open window.

I still wasn’t feeling my best. Whether or not he was just pretending is debatable, but every time there was even the slightest rumble of thunder in the distance, he would run whimpering over to me and would hide his face beneath a sheet.

Then he cuddled up against me and we sat there, not moving, for a time. It was the best.

For nineteen years and counting.

I put out a request for suggestions on Facebook earlier, but sadly I got no responses.

😦

I am looking for something HUGE to do next year, on the 20th anniversary of my kidney transplant from my father: any ideas?

For those doing their part to bring awareness.

Blind New World

I hope more of the world comes to see blindness, not as something to be frightened of at all costs, but as something many people deal with, successfully, on a daily basis.

I hope the stigma is worn clean away. I hope…I hope…I hope.

I do know I am grateful to be here, even with all the downs, because I eagerly anticipate the ups that follow.

Alive – Edwin

“I seldom think about my limitations, and they never make me sad. Perhaps there is a touch of yearning at times, but it is vague, like a breeze among flowers. The wind passes, and the flowers are content.”

Waltzing With Helen Keller

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Uneasy Me, #FTSF

“It’s not easy to be me.”

Superman’s Dead (It’s Not Easy) – Five For Fighting

Superman was always one of the last of the superhero stories I would choose. I was always more of a Batman girl. I don’t know how many Superman films I watched there for a while, but none of them stuck with me as being particularly interesting. I didn’t understand the whole backstory or even the definition or importance of kryptonite.

That’s why, when I read this week’s FTSF prompt, I froze in my tracks, unsure if I would write anything at all, have anything to link up with.

I looked up the meaning, refreshed my memory, but still drew a blank. Kryptonite meaning, basically, weakness and still I was coming up with nothing.

Come on, I nudged myself over the last few days. You’ve got to have a weakness. What is it? What would be the main one?

I am working on writing my memoir. It seemed like a perfect moment in time to start again, as I think back on the twenty years, exactly, that I was diagnosed with kidney disease as a frightened twelve-year-old.

Since that point I have been called brave and inspirational many many times. How did I do it? How was it that I managed to survive feeling so sick, dialysis, and surgery to have a transplanted kidney from my father?

I am not as strong as all those well-meaning family, friends, medical professionals, and acquaintances assumed. I don’t want what happened twenty years ago, what was only really a few years out of my whole life, to define me forever. I try to get past it, really, but I keep going back to it and writing my story down is a big part of that.

Sometimes I wonder if that’s even a good idea. Maybe I should just move on and look ahead. That’s what I am doing, but then I turn my head round and admit to myself that what happened during those rough months, all those years ago now, that stuff left its mark on me and I can’t honestly say I don’t look back in reflection.

My kryptonite is the past. It’s the affect a physical illness had on my body, my mind, the girl I was trying to grow into.

It influences my body image even now, as a grown woman.

When I was treated I was clearly under-weight and malnourished. I was lacking proper vitamins and minerals, things the kidneys are supposed to take care of.

I stayed stable on dialysis and I had the transplant. This got me back to a healthy state, but I went from being barely eighty pounds, maybe less, at age twelve. My puberty was hugely disrupted. I was not growing.

Once I had a working kidney, one being all you technically require, I began to gain weight. I gained weight as a side effect of more than one of the medications I had to go on.

I remember standing on our bathroom scale, realizing I was ninety-two pounds, and starting to panic. I wasn’t relieved I was gaining. I was horrified.

I was weighed every time I went on and off the dialysis machines. This was necessary, to monitor my fluid loss and gain, but it played havoc with my head. I was shown to focus on weight, at a time I shouldn’t have had to, when only months before I was pushed to put on the pounds.

Now, the weight was coming on abnormally quickly and I was visited by dieticians who went over the list of foods to stay away from if I didn’t want to gain even more weight.

So now I like my chocolate but I also like my fruit.

At Easter I love chocolate eggs, but come summer I go nuts eating strawberries, peas straight from the pod, peaches, and apples for weeks and weeks on end. They are really all I want to eat.

All in moderation. Diets don’t work. Or avoid some foods entirely?

I can list all the excuses in the book as to why exercise and weight loss hasn’t been easy for me, but I know I am not alone. I must keep plugging away at it, remaining mindful of it. I don’t want to make excuses, to use chronic pain or my blindness as reasons why I am now gradually gaining weight over time. I only get my kidney checked twice a year, but they still take my weight at the start of these appointments, and I am forced to look back and try to recall what the scale read six months before, to keep track, somewhat, of where I’m at. So although I don’t keep checking my weight on my bathroom scale every morning, I’m made to be accountable, every time November/April rolls around.

Yes, the meds have decreased, things are more moderate now, but the damage is done – floodgates have been wide open for twenty years. I deal with something so many people deal with, I know. Emotions also play a part and my psychological state becomes a factor.

Can I keep things under control? Can I not let the events of my past rule my present or influence the future?

My kryptonite are the stretch marks I’ve had (not from a pregnancy, like most women my age), but since I was on high doses of prednisone, when I was fourteen years old. I can feel the clear visible evidence of how it all began and I feel weak because I can’t keep things in balance as much of the time as I’d like, but that’s why I write about it all. I hope that part doesn’t make me weak. I don’t feel all that brave or inspirational and I don’t want the weaknesses I live with to bring me down. They do serve as reminders of the scars of my past and the toughness, as they’ve driven these bits of my past in deep.

Now I’m off to go eat a mango and some chocolate.

🙂

The brains behind this week’s FTSF is

Lisa Crisp Witherspoon

of The Golden Spoons.

Kryptonite – 3 Doors Down

And, as always, Kristi of

Finding Ninee.

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