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Never Enough, #SongLyricSunday

I guess I don’t have a lot to say, on love, with Valentine’s Day fast approaching.

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I choose to remain silent this year, as far as my own love life is concerned, but I have enough past experience to draw upon. No problem.

Song Lyric Sunday, #SongLyricSunday

Well, I know about insecurities in love. I can’t believe there’s one single person who hasn’t felt it. I wonder about some more than others though.

https://www.youtube.com/watch?v=e5_Hn_cLIvI

It’s a void a lot of us attempt to fill, but rarely ever is enough enough.

***

There will be no consolation prize
this time the bone is broken clean
no baptism, no reprise and no sweet taste of victory.
All the stars have fallen from the sky and everything else in between satelites have closed their eyes, the moon has gone to sleep
unloved….unloved….unloved….unloved
here I am inside a hotel choking on a million words I said cigarettes have burned a hole and dreams are drunk and penniless
here I am inside my father? arms all jagged-bone and whiskey-dry whisper to me sweetly now and tell me I will never die
unloved….unloved….unloved….unloved
here I am an empty hallway broken window, rainy night I am nineteen sixty-two and I am ready for a fight people crying hallelujah while the bullet leaves the gun
people falling, falling, falling and I don? know where they?e falling from
are they unloved….unloved….unloved….unloved
hoping that the kindness will lead us past the blindness and not another living soul will ever have to feel unloved….unloved….unloved….
unloved unloved….unloved

Unloved – Jann Arden/Jackson Brown, Lyrics

SONGWRITERS RICHARDS, JANN ARDEN
PUBLISHED BY LYRICS © UNIVERSAL MUSIC PUBLISHING GROUP

***

So, when I thought of those feelings of never being enough and those all-to-common fears of not being lovable, I went with this old Jann Arden duet I’ve loved for a long time, since I first discovered this songstress of Canada, back in the mid 90s.

If you grew up in a stable and loving family, like I was lucky to have had, it isn’t for lack of being told it. I always felt it.

It’s different with romantic love. It comes with a lot more baggage and demand and distraction and disillusionment. I felt unloved and unlovable by any man and I know part of that was feeling more like someone in need of supervision than as an equal. I have told myself that my blindness was a constant burden and a roadblock to ever being enough. This is where insecurity can haunt you and hold on tight.

I hope it loosens its grip a little.

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Happy 33 To Me, #FTSF

Twenty years ago, on this date, I spent my 13th birthday on dialysis, hooked up to a machine by an extremely fresh and painfully inserted central line in my chest.

So the nurses, me being the only child in a ward of mostly elderly patients, felt bad for the small girl on dialysis and they gave me a little birthday cake and all sang Happy Birthday to me.

How else do you make a small girl less upset to be stuck on kidney dialysis for her birthday, her first day as a teenager?

You present her with something sweet, that’s how.

It’s all relative. What made me upset then isn’t the same thing making me upset now, as a newly turned thirty-three-year-old.

I hadn’t even heard of him then…anyone by the name of…well, I’m not using the name on this blog from now on I’ve decided, even though in Harry Potter it says we should never shy away from using the name.

I am not afraid. Okay, well afraid for the world, sure, but I am more sad, enraged, frustrated, upset at where a lot of things currently are.

The other day, when I heard one of many in a string of a long line of blatant lies, it resulted in me giving myself a headache. These lies are going so far from the usual “all politicians lie lies” and into those that feel like they are so in-your-face that it almost feels like, when I hear them, they literally smack me in the face. So, I tried to act this out and my hand actually made physical contact with my own cheek.

I know, I know…ridiculous, right?

Upsetting, to be sure, but certainly not worth all that. Getting too upset in the moment means I don’t articulate myself all that well, for a writer, kind of like tonight apparently. I suppose it illustrates the theme of being upset rather nicely though.

Anyway…

I am celebrating twenty years of not having to spend birthdays or any other day tied to a dialysis machine. I am making big plans to celebrate that fact, come June. This is shaping up to be quite the thrill.

As for my birthday, people keep asking me how it’s been, how it’s going, and if I’ve had a good one. I try to answer, but how can I top the week I just spent in Mexico?

Ten Things of Thankful and Then Some

I can’t and I’m not even trying to. Different thing.

My birthday present from family and from myself was that trip. This day can’t quite live up to that and I could now go on to list the specific reasons why it hasn’t, or I could just say I’m upset I’m no longer in Mexico. I could just leave it here, but it’s late and I am in need of sleep and I am trying to sort out how turning another year older makes me feel. So, I will go on, at least a little more.

As I stare out at a restaurant, one where I am celebrating my birthday by having a lovely lunch with my father, I see a lot of blurry space in front of my eyes, mixed with the constant noise of a loud lunchtime crowd. These things feed into each other and I wonder if I will still see anything at all, upon turning thirty-four next year or on turning forty-three in ten years time. Will I sill see anything at all, on any number of future birthday celebrations in my future?

When I get upset about these thoughts, these very questions that are asked, without much prompting inside my own head, I try to remember everything I’ve been lucky to see and all the brilliant living I’ve still got yet to do.

I get really upset by a birthday where I go to give blood and I leave with a bandage on each arm because veins were hard to come by, but a needle now and then is nothing compared to what once was.

After twenty years of needles for a lot of blood tests, there’s scar tissue in both arms and I didn’t drink enough before going in. It’s not the nurse’s fault. I was distracted, but it didn’t hurt, not by this point.

I then decided, since I was already in the building, to stop in at an adjoining medical office, which just so happens to be my dentist’s office, to make an appointment for a routine teeth cleaning. I’m long overdue. The only thing more celebratory than making a dentist appointment on one’s birthday will be the romance of a Valentine’s Day oral checkup, right?

I wished for something rather odd this year. It’s not the first thing I’d think of when blowing out candles, but I did wish that, if I were going to get one of my common colds, thanks to my somewhat lowered immune system, I’d rather get it on my birthday than having had it occur at any point while I was in Mexico.

It’s seemed, on the eve of my birthday, that I had gotten my wish.

And now, am I upset that I have a sore throat and other symptoms ongoing on my birthday, with a lively family triple celebration still to come tomorrow? It’s not so nice, but my week in Mexico was all pretty nearly perfect, so I am okay with it really.

I took a break all day, making it a point not to read Facebook and my newsfeed for my birthday, if it meant I could avoid all stories about the U.S. so-called president and whatever nonsense he was up to on the day of my birth. I did use Facebook to feel the birthday love from friends and family though. One makes me upset when I read and the other makes me smile.

When I’m upset, I think of all the things I have to be thankful for. When I feel upset because I am back from such a week of writing in Mexico and I worry I will never figure out my future, I remember the generous compliments about my talents as a writer that I received from my writing mentor and from the other writers in the group. I may have felt a fair bit of fear and uncertainty since I arrived home, but I can’t put so much pressure on myself, on my own birthday no less, to figure it out right away.

When I am upset about so many things I can’t control, things the world feels like it’s getting all wrong, I think of so much that has gone right for me lately and I listen to the things being said to me by people I love and trust and who know me and who think I’m special in some way.

I don’t let those who don’t know I exist speak nasty things to me inside my own head. I can’t control all those awful things that cause me upset and I can often do very little about seeing those I love or admire become upset either. I can offer a kind word or a compliment or a joke to break the tension. I can write, no matter how pointless it might seem in the moment of despair or cheerlessness.

Another birthday has come and gone. I can’t say where I’ll be, what I’ll have just experienced or accomplished by my next birthday. I can fight feeling upset. I can acknowledge it and then I can move forward.

Finish The Sentence Friday

Happy Birthday to me! Happy Birthday to me! Happy thirty-three! Happy Birthday to me!

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Shadows and Signs, #GroundhogDay #SongLyricSunday

New month, new me.

The other day was Groundhog Day and I never got the point of that, other than people needing some hope or sign that winter is coming to an end in this part of the world. I prefer, though I haven’t seen the movie by the same name as the day in a long time, to think of it as life evaluation. We can take a look at our habits and behaviours and see if we keep repeating the same actions (day after day, over and over again), or if we want to try something new and different for a change.

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This is a big one in love especially. February is all about love, for many, with hearts and roses and chocolates. I like the more rare things, like love poems, which not everyone can write. Song lyrics are close enough.

🙂

But I am back and taking part in another
Song Lyric Sunday
and the prompt this time, to start out the month and the theme of love, isn’t about the way I’m handling my love life in the present (thank God).

😉

It’s all about first love/crushes.

I like this Cher cover. Though, like most pop songs, it really doesn’t help clear much up and shouldn’t be taken as seriously as some lovestruck listeners might want to believe.

As for first crushes, I made mine a set of mixed tapes for Valentine’s Day. Aw, how sweet. So, I have a lot of songs I’ve been recalling to reference here. I went with this one, just because reading the signs is so maddeningly confusing.

***

“The Shoop Shoop Song (It’s In His Kiss)” (originally by Betty Everett)

Does he love me I want to know
How can I tell if he loves me so
Is it in his eyes?
Oh no! You’ll be deceived
Is it in his sighs?
Oh no! He’ll make believe
If you want to know if he loves you so
It’s in his kiss
That’s where it is
Is it in his face?
Oh no! That’s just his charms
In his warm embrace?
Oh no! That’s just his arms
If you want to know if he loves you so
It’s in his kiss
That’s where it is
It’s in his kiss
That’s where it is
Kiss him and squeeze him tight
Find out what you want to know
If it’s love, if it really is
It’s there in his kiss
How about the way he acts
Oh no! That’s not the way
And you’re not list’nin’ to all I say
If you wanna know if he loves you so
It’s in his kiss
That’s where it is
It’s in his kiss
That’s where it is
Hug him and squeeze him tight
Find out what you want to know
If it’s love, if it really is
It’s there in his kiss
How about the way he acts
Oh no! That’s not the way
And you’re not listnin’ to all I say
If you wanna know if he loves you so
It’s in his kiss
That’s where it is
It’s in his kiss
That’s where it is
It’s in his kiss
That’s where it is
It’s in his kiss
That’s where it is
It’s in his kiss
That’s where it is

LYRICS.

***

Heck! It’s been nearly twenty years and I still hate reading the signs. Why not just come right out and ask?

What a novel idea.

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Ten Things of Thankful and Then Some: Sunny San Miguel, Siempre! #TakingChances #Mexico #FTSF #10Thankful

I have missed my thankful posts for a few weeks now, but I had a good reason for that: Sunny San Miguel!

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(Photo taken by my new friend from the writing workshop in Mexico. Thank you Lisa. I love your viewpoint from right where you are.)

San Miguel, I miss you.

Speaking of missing things…I also missed last week’s
Song Lyric Sunday
because I was traveling back to Canada and the frigid winter temperatures, but the theme of the sun played a big part in my week.

https://www.youtube.com/watch?v=jqxaAfaCln8

This song is the feeling I felt when the bright Mexican sunshine was full on my face while I sat writing up on my balcony, overlooking my small bit of the city of San Miguel de Allende. It was hard work, the writing part, but I couldn’t have asked to be doing it anywhere better.

I felt alive. This is my first thankful. I could write many more.

I am thankful that I got to discover a spot I never would have known of before. San Miguel de Allende is an interesting place and it is just one of many in such a spectacular country of Mexico, so unknown and unfamiliar to me, such a short time ago, So much more to learn about and explore, I can tell. I just barely scratched the surface.

It isn’t a resort. It isn’t on the ocean, but I admit, logically or not, my heart skipped a beat at the thought that I was closer to blue/grey whales at that moment in time, than I’d been in a long time.

My ears popped going through mountainous terrain to get to the city, but boy was I pleased when I stepped out of that shuttle and onto that uneven sidewalk and a whole new door was opened to me, both literally and figuratively. I will never, as long as I live, forget that moment.

I am thankful for the villa we had our writing workshop in and where I got to call my lodgings for the week.

I soon learned my way around, from my room to the kitchen and meeting area and to the lovely outdoor spot. I didn’t realize the way some houses are constructed in Mexico, was totally not expecting it, but was pleasantly surprised by the indoor/outdoor set-up.

I loved my room and its cool interior and the open balcony just a step out my doors.

I am thankful for my sunny writing spot, a day bed set up outside, by the railing. I would go there to write and to listen to the sounds of San Miguel, just outside of the wall of the villa.

I am thankful for the levels of emotion I went to with my writing during the week.

I didn’t expect it to get quite so emotional. It seemed like that for everyone in the class. We all dug deep and we shared a lot in one, much too short week.

I am thankful for the garden area of the villa and the peace and tranquility I found there.

There were so many plants and nature was there, right at my fingertips, in the middle of the city of SMA.

I am thankful for soundscapes.

We had to record somewhere in San Miguel and try and write from it. This was, perhaps, not so difficult for me as for some in the group, but I found a way to make it my own. A lot came from it.

I am thankful for special and unexpected experiences while traveling.

I was serenaded by some mariachis. It was uncomfortable for me, all that attention focused in my direction, but I recognize the special experience for what it was.

I am thankful for the chance to meet my writing mentor in person.

She made it possible that I even knew of San Miguel and she gave me some added strength and determination to try traveling by myself for the first time. She offered just the right incentive and I was determined to make it happen.

She took so much time out of her life and planned for me to be as safe as possible and to have the most enriching time imaginable.

She took me out in San Miguel one night and we had a lovely dinner, talking about Mexico, travel, writing, and so much more. She gave me her time and her knowledge, having been where I have not yet found myself.

She directed me safely, letting me figure things out for myself, with my own heart, mind and white cane. She was thoughtful in her descriptions, all from her creative writer’s mind. She spent time with me, more than she needed to, and showed me so many things I may have otherwise missed out on, with all the visual elements of travel and exploring new places.

I am thankful for so many things and I could keep listing them, but I am determined to write separate, individualized pieces about all the magical moments of my trip, including the amazing people I met and what they did for me, how they affected my life, in so many ways.

I am thankful for glimpses of the culture, architecture and religious beliefs of Mexico.

I am thankful, too, for the unforeseen spiritual awakening I had, in an unexpected place of vitality and passion. It was like nothing I’ve ever felt before.

I am thankful for our day out, visiting makers. My writing mentor set out to show her class of writers that we too make something of value, even if it can’t be seen in as big a way or touched, like a statue or a piece of art.

I am thankful for the guide I had on our day out.

She spoke no English and I no Spanish, or very little if any. This presented a problem. But she was there, with a gentle, guiding hand and just in case, and we both got so much out of it through the silence, I can’t even express. I will never forget her and I will write about the way she affected my life too.

I am thankful for the wisdom and the inspiration and reassurances for the kind of life I can have in the years to come and for the truly fascinating stories I heard. I am thankful for a pizza night full of lively conversation and the best sharer of the villa I could have asked for. I am thankful for the radiant love freely given and the stories and the camaraderie of all. I am thankful for fruitful partnerships which fostered positive discussions I will never forget. I am thankful for those willing to listen. I am thankful for the laughs and the insightful talks and the likeminded writing companionship. I am thankful for steady arms on unfamiliar surfaces and much patient assistance with pesos and with my sparse Spanish. I am thankful for roof-top views, shared margaritas, and the invites to travel again, with new friends, in future.

I had to write about my thankfuls, but I am still processing so much of this. I am told I will have many more meaningful experiences like my week in Mexico and that more is to come, that this is the beginning of something and not the beginning and end of just one week. I hope this is true, but I will never forget this one as, in so many ways, my first, so many firsts.

I am thankful for all the help I had to travel alone and for the angel that watched over me while I went, as I was told by a kind and talented man.

I am thankful for all the food our mentor and leader of the class put out (including fruit, chocolate, tea/coffee/water) because she said she believed it helped inspire loads of creativity and the ladies who cooked for us and the flowers everywhere. The perfect environment for writing and creativity and all that needed inspiration.

I am thankful for what I came away with, the writing I did. I am working on it some more yet, but hope to publish my story at some point.

I am thankful for the last night, with the thematic musical entertainment, the fact that I vowed to try new things and ended my week of that by eating crickets, and for all the brilliant writing shared by everyone in the class. I am thankful for the support I received for my piece upon reading it aloud.

I am thankful for my family’s support, even though I know how hard it was, at times, for some of them more than others. I would be nowhere near where I am now if it weren’t for them.

I am thankful for the confidence I felt and, even more so, for the fear that persisted and fuelled me. It’s still feeling me.

I am thankful for the reaction from my cat and my dog upon arriving home. My cat made a long mewing sound like I’ve never heard. He sounded excited, to me anyway.

I’m not sure what good it will do in the concrete ways that matter, but I am thankful for all the protests I’ve seen happening against the cruelty, ignorance, and arrogance in the US government, especially these last few weeks since I was away.

Those judges and lawyers working to fight against such unfair actions taken without any care to those hurting. Those fighting are likely putting their butts on the line, some maybe even risking more than we realize at this given moment.

Canada is nowhere near perfect, not hardly, but I am thankful for the total difference in feeling I notice here. I love a lot of Americans, some I’ve met oh so recently, but the country as a whole makes me very uncomfortable now, feeling vulnerable, but it’s clearly the government I have a problem with. I hope this changes one day. May seen as though I’m generalizing here, but believe me, I wish I hadn’t felt that when traveling back through the US.

Sobbing over today’s newspaper – Carrie Snyder from Canada

Just put yourself in the place of someone coming to a new country because you feel in danger in your own.

How can you not help but try to understand what that must feel like? How can any of us avoid that, just because it’s an uncomfortable thought?

I can’t imagine having to leave my home, the only place I’ve known, so I am thankful to be back in my home of Canada. May it always be a place of peace, even when threatened by hate like the rest of the world finds itself, more and more.

There is so much happening, in my world and in the world at large. I am just trying to survive the helplessness of it all, and the best thing I can think of is to write through it all, through all the pain and the confusion and the uncertainties. This must include self care, right along with care for and of other people and our planet.

This taking new chances to hopefully produce new and eye-opening perspectives is about all I can think to do to appreciate life. Things can be hard, are rough, for a lot of people. I say, take a leap and step off that ledge, metaphorically of course, or use your best judgment. Just do something.

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I want to share more photos, but those can be a bit tricky for me. I asked for them, for the record of preservation, to show my family. I can’t quite keep them straight, never knowing if what I include and think is really what it is. I will do another post, once I get that straight. Most of them were posted on Facebook, but I never want to share without credit or explanation.

To be continued…

I also wanted to link up with
Finish The Sentence Friday, #FTSF
because it’s been a few weeks for that also and I love Kristi and how she finishes her sentences.

When it comes to self care, I am certain what I just did for myself, as illustrated here, definitely counts.

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Shades of Blue, #SongLyricSunday

I was at a spa recently and found myself standing in front of a wall full of nail polishes and was asked to pick which one I would like.

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How do I do this, when I can no longer see the colours and shades, or even scarcely recall what they looked like?

This week,
for Song Lyric Sunday,
Helen went with a band which brought back some memories.

So Cold
is not my entry for the week. I just came across it when listening to Helen’s choice and I did feel the singer’s intensity. I suppose it is helpful for getting out feelings of aggression or frustration with life, like the things none of us can control, like losing sight or loss of a loved one or any number of things.

Not wanting to follow too closely to Helen though, here is my official song choice:

https://www.youtube.com/watch?v=WX2TXMJXS4o

I have had a deep connection to this band for years, getting me through multiple hospital stays, over and under the trials and beauty of loves…ah!

Then, a friend of mine since we were ten years old applied to medical school in Ireland and my dream of visiting became a reality.

This friend, she stood with me at that wall of colours I could no longer see and she went with her favourite purple and, though my first instinct was my favourite red, I ended up choosing navy blue.

***

“So Cold In Ireland”

Here is a story
of hope and of glory.
He’s eighteen years old
and well I fell in love.
But after that,
where have you gone, from me?
The one that I loved endlessly.
We used to have a life,
but now it’s all gone.
Mystify…
Does it have to be so cold in Ireland?
Does it have to be so cold in Ireland, for me?
Are they ready for me?
Where have you gone, from me?
The one that I loved endlessly.
We were to have a child.
Yesterday’s gone.
Well I knew the time would come.
When I’d have to leave.
Go on.
Look what they’ve done to me.
They’ve taken my hand…
And it’s killing me.
Killing me, killing me, killing me!
Does it have to be so cold in Ireland?
Does it have to be so cold in Ireland, for me?
Are they ready for me?
But I’m afraid I’m returning to Ireland.
I’m afraid I’m returning to Ireland.
I see, that there is nothing for me.
There is nothing for me.

LYRICS

***

My friend was visiting family and friends like me, back here in Canada, but maybe…it may be that this is no longer her home anymore.

Now the holidays are over once more and she has officially returned to Ireland, to her life. Her daughter is Irish and I love that. It is her home, possibly their home, forever. I will miss them. I miss Ireland.

This time of year I don’t get depression as such. I just feel the time of year and blue felt right, but even blue nails don’t last.

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And Yet… #SongLyricSunday

I often wonder at how we need other people.

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Around this time of year especially, but isn’t that what all the best love songs are all about?

Song Lyric Sunday

I don’t have much more to say on the subject this week.

Going to let the words to one of my favourite songs of the moment speak for themselves instead.

***

“We Don’t Talk Anymore” (feat. Selena Gomez)

[Charlie Puth:]
We don’t talk anymore
We don’t talk anymore
We don’t talk anymore
Like we used to do
We don’t love anymore
What was all of it for?
Oh, we don’t talk anymore, like we used to do…
I just heard you found the one, you’ve been looking
You’ve been looking for
I wish I would have known that wasn’t me
Cause even after all this time
I still wonder
Why I can’t move on
Just the way you did so easily
Don’t wanna know
Kind of dress you’re wearing tonight
If he’s holdin’ onto you so tight
The way I did before
I overdosed
Should’ve known your love was a game
Now I can’t get you out of my brain
Oh, it’s such a shame
That we don’t talk anymore
We don’t talk anymore
We don’t talk anymore
Like we used to do
We don’t love anymore
What was all of it for?
Oh, we don’t talk anymore
Like we used to do
[Selena Gomez:]
I just hope you’re lying next to somebody
Who knows how to love you like me
There must be a good reason that you’re gone
Every now and then I think you might want me to
Come show up at your door
But I’m just too afraid that I’ll be wrong
Don’t wanna know
If you’re looking into her eyes
If she’s holdin’ onto you so tight the way I did before
I overdosed
Should’ve known your love was a game
Now I can’t get you out of my brain
Oh, it’s such a shame
[Charlie Puth & Selena Gomez:]
That we don’t talk anymore
(we don’t we don’t)
We don’t talk anymore
(we don’t we don’t)
We don’t talk anymore
Like we used to do
We don’t love anymore
(we don’t we don’t)
What was all of it for?
(we don’t we don’t)
Oh, we don’t talk anymore
Like we used to do
Like we used to do
Don’t wanna know
Kind of dress you’re wearing tonight
If he’s giving it to you just right
The way I did before
I overdosed
Should’ve known your love was a game
Now I can’t get you out of my brain
Oh, it’s such a shame
That we don’t talk anymore
We don’t talk anymore
(we don’t we don’t)
We don’t talk anymore
Like we used to do
We don’t love anymore
(we don’t we don’t)
What was all of it for?
(we don’t we don’t)
Oh, we don’t talk anymore
Like we used to do
(we don’t talk anymore)
Don’t wanna know
Kind of dress you’re wearing tonight (oh)
If he’s holding onto you so tight (oh)
The way I did before
(we don’t talk anymore)
I overdosed
Should’ve known your love was a game (oh)
Now I can’t get you out of my brain (whoa)
Oh, it’s such a shame
That we don’t talk anymore

Lyrics.

***
Or maybe that’s just the world of pop music.

I don’t know. This song is popular right now and it was playing on the radio as I was taking a great step forward in my own life and planning on going it alone. That is big for me. I just wanted to remember it.

I will always need people, but I also need to learn to depend on myself too.

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International Day For Persons with Disabilities 2016, #IDPD2016

Helen Keller…Stevie Wonder…Ray Charles…Rick Hansen…Stephen Hawking…

The Rick Hansen Foundation

There are so many more of us out here, only looking to have rich, full lives like anyone else, but what often stops us is not only society’s barriers, but our own.

***

Since 1992, the United Nations International Day of Persons with Disabilities (IDPD) has been celebrated annually on 3 December around the world. The theme for this year’s International Day is “Achieving 17 Goals for the Future We Want” . This theme notes the recent adoption of the 17 Sustainable Development Goals (SDGs) and the role of these goals in building a more inclusive and equitable world for persons with disabilities.

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One note on the society part – some of you may not want to think a lot about it, if you don’t have to, because then it becomes clear that the possibility for anyone to become disabled is indeed a possibility for anyone..

I am a Canadian woman, living with a disability. I didn’t acquire my disability through an accident later in life. I did not develop it overtime, but from birth and still, who knows which direction my remaining vision might take.

On the day before the
United Nation’s International Day For PErsons with Disabilities
I felt a tired feeling that I sometimes get. I panic and assume my sight is worsening, but I am not sure, if that makes any real sense. I close my eyes and decide I will try to get back in to see my retinal specialist soon.

I don’t know what, if anything, he will be able to tell me, offer me as hope that I won’t be completely blind one day. He will probably see no changes or signs of the mysterious eye disease that took my left eye twenty years ago. He will speak to me of gene therapies in various stages of development, but I don’t know what hope lies in that for me. Maybe it will be my future. Maybe not. I’ve learned not to bank on anything.

That’s a part of my DNA, just like the genetic eye disease. I am conditioned to either think the worst or simply not want to hope for the things I may really really want, always fearing that the disappointment from possibly not getting them will break me. It hasn’t broken me yet, which does give me reason to be optimistic though.

I wanted to be able to see the truly unique show violinist Lindsey Stirling put on recently. Instead, I listened to all I could and relied on my helpful sister to fill in the blanks. I wanted to throw my white cane away and yelled my displeasure, and through the wish, but instead I sat and listened even harder.

I want to draw like I used to when I saw colours and when everything in my world was more clearly and brightly defined. I can’t. I want to scream in frustration but I’m resigned instead.

I want to take up the latest craze of adult colouring books, but I don’t.

Of course, nothing is really stopping me. I may not, as an adult, see the lines I may have hardly seen as a child, which are now nearly invisible to me. I could still get myself a Harry Potter or any number of other themed colouring books with a theme which fits my interest, and be damned if I miss colouring in the lines by a mile.

But I don’t. I don’t scream or rail at the world in an uproar. I find other ways to spend my time.

I want to travel and to go through life with an independent spirit and loads of self confidence, but I don’t. I try and I work at it, but I’m scared.

I find a travel series, a BBC documentary, available to me on Netflix. It’s Stephen Fry, whom I love, and he is doing a road trip across the United States in his British cab. I know him from his narration of the Harry Potter books and for his intelligent and witty character. After watching him visit all 50 states I now know he hates being on a horse, dancing, and skiing. He loves science and culture and literature.

Stephen Fry In America

I watch him on his trip and I long to go on one of my own, but I fear getting lost in the big, expansive world and I worry that my white cane will attract only pity. I want to grip it with extra determination and go anyway. It’s all in my attitude, right?

I can’t drive a cab across the country. I want to believe I will see more of the world anyway, even without definition of sight.

I don’t try to revisit childhood experiences of mine by colouring. Instead, I watch a travel show which I’ve heard of but only now decided to give a chance.

HELLO GOODBYE, #HelloGoodbye

The host speaks to one woman in her sixties, widowed after her late husband’s long battle with illness, but who has now found new love with a man from England. Her happiness is infectious. Her newly found love walks down the ramp in the arrivals terminal at Toronto Pearson International Airport and gets down on one knee. Love is lost and can be found again.

I feel warm just by watching and listening to her story.

The host also speaks to a young man and his parents. The son is on his way to participate in Rio, at the Paralympics. He was paralyzed from a diving accident and now plays wheelchair rugby.

And then there was the grandmother, daughter, and grandson saying their goodbyes. The young guy and his mother are heading back to Britain after a visit with Grandma. The mother has RP (Retinitis Pigmentosa). She carries a cane, but the son speaks of wanting his mother to have companionship with a guide dog, as he will soon be going out on his own and doesn’t want her to be alone. He has worried about her safety all his life. She admits to being unsure about going for a guide dog once they get back home, but her son’s words cause her to rethink things.

She grips her white cane. I grip mine. She has been losing sight for years. I’ve been blind since birth and losing since. Am I any further along in accepting my circumstances and my white cane than she is?

People ask me all the time if I am ever going to get another guide dog. I don’t quite know what to say. Yes, they may provide the necessary confidence boost for many. I consider it.

I don’t think any dog will ever compare to my Croche, But is that all it is?

I can’t put another animal through what I put Croche through. She was so well trained and so fittingly suited in temperament. She was given to me and I was trusted with her. A lot went into all that. We were a team, but I failed her.

My ever growing illnesses caused me to sleep and her to dutifully stay by my side, but she was prevented from shining. She was my pal, but I don’t take the responsibility of a working dog lightly. I don’t know what my future will bring and I can’t bring myself to bringing another animal into that.

I want to curse what stops me, but what often stops me is me. And so I would just end up cursing myself, again and again.

Or, I could take hold of my white cane and use it for betterment, for working for some of my dreams, and for hardening my resolve and building my often feeble confidence.

My feelings of shame when I walk with my cane are hard to describe and hard to fight off. I will never be happy if I don’t try. Fear and disappointment stop me from even trying. What a waste that would be.

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