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Just Jot It January: BRAILLE IS STILL NECESSARY #WorldBrailleDay2021 #JusJoJan

I am so thankful for my fingertips. They allow me to read at night. They gravitate toward those little bumps (paper braille or electronic), flying along over the words beneath. They read the words in the books I love and write the dots, the cells that become the words I must express in my writing.

In 2020, while it was a tough year for many things, I did pretty well with writing and submitting. I was published in Oh Reader, a magazine all about reading I have an essay in and I wrote it about my love of braille.

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I burnt one fingertip on a burner a few years ago and I immediately worried I would damage that finger, ruining the level of sensitivity I’ve developed over the years, since learning braille as a child.

Today I attended a Zoom event to celebrate Louis Braille on what would have been his 212th birthday. This event included a children’s braille story, a reader who was blind, reading a print/braille book called Harry’s Hiccups by Jean Little. Another reader handled the image descriptions.

Growing up, my mom didn’t wait to find the few print/braille children’s stories available somewhere. She went ahead and made her own, taking picture books and adding the lines of braille herself.

The books we had were braille, the words, but the pictures, it was up to the sighted parents or whatever to describe anything in the pictures that the story’s words didn’t already explain or point out.

That might be something most haven’t thought of. We didn’t think of it, when I was a kid or grown either, for years, but image descriptions for images (social media) is a big thing now and audio description on television and film and even live plays etc.

After today’s story time, there were panels with people from
National Network For Equitable Library Service
,
Braille Literacy Canada
,
Vision Impaired Resource Network
, and others.

They talked about what braille is, what it means in their lives, and how technology is teaming up with braille, not replacing it.

That part always gets me worked up. People ask if braille is still necessary because we have smart phones, tablets, screen readers, and audiobooks. Also, educators tell parents and children who have some vision left that they should stick to reading large print, that they don’t need to learn braille, but to me this is a lazy and a negligent thing to do. It is because disability has a stigma attached to it still, including things like braille in that.

It’s a human right to learn braille for all people who can’t see to read and write print. If they learn now, they have it if or when they might need it because even if a child is low vision now, that doesn’t mean they always will be. I had low vision and could read large print. I learned my print letters, how to write cursive, and read large print books. I also was taught braille. I owe my parents and my braille teacher and braille transcriber. They fought school boards and officials who wouldn’t have bothered with the time or the expense of hiring a teacher. I would suddenly lose more vision when I was twelve. It’s nearly all gone now and I’m so glad I know braille.

Braille is literacy, no matter how far technology has come. So is braille still relevant in 2021? I want that awful question to stop being asked, by anyone. Nobody would deny children the access to learning to read and write when we’re talking sighted children and print. Well, braille is my print and I see young children and the next generations coming along and technology isn’t the answer alone.

I wish braille were more common in society. It’s appearing on signs now, buttons in elevators, and yet I want braille/print books in the library, for all children to get accustomed to, instead of thinking some separate organization for the blind will handle it. I want to be included in my local library with everyone else. As a kid, I could see enough that I did feel included, loved going to the library, but now I am an adult and I don’t feel welcome in my library at all.

Of course, it’s pandemic times and libraries are often closed in lockdowns, but the only reason I was stepping foot in my town’s library before that was to attend a writing group I was in, where I had friends who I’d found who loved writing and stories like I do, but a meeting with the library CEO in 2019 was fruitless and frustrating because he should want to do what he could for a library patron.

Instead, I was told I had something, one option, and I should be happy with that. Other people get options, but we who are blind should be happy we have anything at all I guess he was saying.

As you can probably tell, I am emotional about all this and I can get worked up when I feel braille is portrayed as this daunting, scary, even unnecessary thing. It isn’t another language. It’s a code for writing and reading and it matters to many people around the world, just like sign language matters to many of those who are deaf.

Anyway, I could go on jotting about this for days, but I’ll just say that a group of people trying to all sing Happy Birthday to Louis together over Zoom at one time sounds silly and feels silly too, but that’s how much we care, what that man’s work over two-hundred years ago has meant to us.

I feel badly because I didn’t remember we’d had
this conversation
one year ago.

Such a busy year. So much has happened since then and I am embarrassed that I didn’t think of it, as I really appreciate that Linda remembered. I’d written about braille for JusJoJan on this exact date a year ago too which is what started it all and led us here this year.

I’m so grateful for Linda’s support (for braille and in checking out and promoting the radio show/podcast I do to speak about things like braille, technology, and equal access).

And Happy Birthday Louis.

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Blogging, Bucket List, Guest Blogs and Featured Spotlights, Memoir and Reflections, Special Occasions, The Insightful Wanderer, Travel, TToT, Writing

TToT: Thirty-five For Me and Five For Her Headache, #Blogiversary #10Thankful

Here, I hope to leave something behind when I go. Here, I won’t look back with any shame or regret at what I’ve said, what I’ve written. I am proud to be Her Headache.

I am
thankful
for this blog and all those who’ve found me here and read what I’ve written on these virtual pages, ever since that 2014 February of my thirtieth birthday.

As for how to celebrate my five-year anniversary with this space, I couldn’t quite settle on how to best show my gratitude and my pride on all that this blog has brought to my life.

In the beginning, it all started with me showcasing my
BUCKET LIST
of items I’d wanted to experience.

Since my kidney transplant, twenty-two years ago, I am all about not taking each day for granted and my list was a way of stating my purpose and no longer settling for less out of fear. Things like chronic pain and disability threatened to take away a life worth living, but I fought against that and found this blog as a part of that.

In this last five years, I’ve been lucky to check off several things on the list, though I am enjoying the ups and downs of the journey, as I’ve learned that to be the best part of the whole thing really.

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Still, I can’t stop wondering where life will take me and so here we go with the review of the things I have done and seen in five years that I may not have dreamt I’d do, during the most difficult days in my past:

I am thankful for the teacher I’ve had, for the last three years, since I decided to take a chance to learn to play an instrument in my thirties. Violin was beautiful to me and I wanted to learn to play with a bow, to produce those kinds of heartbreakingly gorgeous sounds I’d heard from the violin for years. I was drawn to it since I gave up on clarinet back in high school. (Too much air needed, blowing into that thing, which was hard on my head, prone to headaches already.)

She is leaving on a new adventure soon and I must face that thing I often dread, “Change”.

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I am thankful for my violin and the progress I’ve made so far, even when I get down on myself for not learning more, faster.

I am thankful for my autumn of 2018 visit to the Maritimes, Canada’s eastern provinces, even my short visit and the limited bit of Nova Scotia I saw. I am thankful I got to place a small item, a token of my appreciation for her gift of iconic literary characters like Anne Shirley in Canada’s cultural landscape, on her gravestone. I got to write a note of my gratitude, from one writer to another, in the guest book in the house Lucy Maud Montgomery was born in. I was brave to finally state, in writing, that I think of myself as a writer, even up next to someone as talented as Montgomery.

I am thankful I got to walk along those Prince Edward Island beaches, the coastline and the smell of the sea. Red Point. The End of the World P.E.I. and the force of the wind at that spot, lighthouse next to a drop down to fearsome ocean roaring down below me.

In these last five years, (not only out east) but I’ve traveled to Mexico, Yukon, British Columbia, and back to Florida for the fourth time.

I am thankful I got to make it to my twenty-year anniversary with my kidney, from my father, and that I got to celebrate that with him and my family and friends, zip lining at my favourite Niagara Falls on the Canada side. I hope to zip line in more places around the world in future.

I am thankful I technically did get my writing available in bookstores, when I wrote a short piece which was included in a print magazine called Misadventures. It was only available in Barnes & Noble, in the US, so a friend went into one and took pictures for me of that magazine on the shelf. I hold that book in my hands and am proud to know I have writing inside of it.

I thought it fitting to make my five-year blogiversary into a TToT post, one of the best things to come out of this blog since 2015 when I discovered other bloggers doing it and I joined their exclusive TToT blogging community.

Thank you, TToT comrads and all of you, for visiting me here. You’re the best.

All jokes aside on the wisdom of getting older, as I turn thirty-five and look back and look ahead, I know the fun is in the journey, not necessarily its destination. Still, I will always write about it all here, or for as long as I am meant to,

Where will I be in five years? And, how will I have gotten there?

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Bucket List, Guest Blogs and Featured Spotlights, National Novel Writing Month, Poetry, The Redefining Disability Awareness Challenge, TToT

TToT: Fly Little Butterfly, Fly – Root, Colour Dump, #10Thankful

Season of mists and mellow fruitfulness,
Close bosom-friend of the maturing sun;
Conspiring with him how to load and bless
With fruit the vines that round the thatch-eaves run;
To bend with apples the mossed cottage-trees,
And fill all fruit with ripeness to the core;
To swell the gourd, and plump the hazel shells
With a sweet kernel; to set budding more,
And still more, later flowers for the bees,
Until they think warm days will never cease,
For Summer has o’er-brimmed their clammy cell.

Who hath not seen thee oft amid thy store?
Sometimes whoever seeks abroad may find
Thee sitting careless on a granary floor,
Thy hair soft-lifted by the winnowing wind;
Or on a half-reaped furrow sound asleep,
Drowsed with the fume of poppies, while thy hook
Spares the next swath and all its twined flowers;
And sometimes like a gleaner thou dost keep
Steady thy laden head across a brook;
Or by a cider-press, with patient look,
Thou watchest the last oozings, hours by hours.

Where are the songs of Spring? Ay, where are they?
Think not of them, thou hast thy music too,—
While barred clouds bloom the soft-dying day,
And touch the stubble-plains with rosy hue;
Then in a wailful choir, the small gnats mourn
Among the river sallows, borne aloft
Or sinking as the light wind lives or dies;
And full-grown lambs loud bleat from hilly bourn;
Hedge-crickets sing; and now with treble soft
The redbreast whistles from a garden-croft,
And gathering swallows twitter in the skies.

—Ode To Autumn” by John Keats

Ten Things of Thankful

I am thankful for some time hanging out with my niece.

We played with toys. My poor knees can’t handle all that time on the floor, but she was having so much fun, so I was too.

I am thankful for a November 1st writing group night where I made the decision, with support from other writers, to try my hand at National Novel Writing Month again.

The site is still rather inaccessible and that is a problem, but that shouldn’t stop me from using the structure and the occasion of the month to start a novel I’ve wanted to start for years.

That launching evening, with others doing it, was just what I needed to start down the NaNo road for 30 days.

I am thankful for an hour of peaceful yoga.

I look more and more forward to that one hour each week.

I am doing it for physical reasons, of course, but mostly I need it for my mental state.

I am thankful for a tough violin lesson to follow an easy one.

After last week’s super positive lesson, I didn’t know what this week would bring.

It was more of a challenging week. This was strenuous, for sure, but then I decided I need that balance of both.

I am thankful for a package being sent to me.

I’m included in a winter issue of a literary magazine. My piece is a short one about the horizon.

Well, this is new and exciting because I received an email, informing me of how the magazine has sent out a package for me.

I am not certain, but I am guessing it includes a copy of the issue. I can’t wait to find this in my mailbox.

It comes out on November 15th.

But you can order it here, anytime:
Misadventures Mag, Issue 4: Winter 2017

There’s just something about holding a solid book, with my words in it, in my hands. It’s different from the online world.

It’s all a great privilege, but this is something that doesn’t happen to me every day.

I am thankful for a weekend extra writing social with chocolate.

I didn’t even think I liked Mars Bars, but that day I did.

We met at the museum in town. We have a room reserved there, for two hours, every Saturday for the month of November.

Having extra NaNo writing time set aside as a group can only help me.

Well, okay so not always a lot of writing happens in that group, but more than if I never went at all.

I am thankful my brother and his musician friends returned to practice in my basement.

I missed the absence of it, while lives changed and people got busy with other things.

I like having them down there. Every time they come, they thank me and I guess they worry they are imposing.

They aren’t.

I am thankful I am going off of a medication that has, I think, been causing a dreadful side effect.

These aren’t the usual dreams. They are every night and it feels like they take up my entire sleep.

I wake feeling emotionally worn out and deeply affected. I guess you would call them nightmares, but they aren’t me running from monsters in dark places.

They are me being sexually assaulted, my parents being trapped in a collapsed building, and epic adventures that leave me feeling drained when I wake up and all day long. And then it’s time to go to sleep once again.

I hope it’s just from a medication I soon won’t be on. The other option is a reaction from some level of anxiety I’m feeling. I do feel stress, but this feels different and new. I hope it’s on its way out of my head and my life.

I am thankful for a long awaited piece of my writing in a big time literary mag.

WRITING LIFE: Accepting My Blindness As A Freelance Writer – Hippocampus Magazine

First of all, I just liked the word (the part of the brain), but then I discovered it was the name of a literary journal and I was intrigued.

Meaning of Hippocampus

I am thankful for Sade.

I have seen a lot of articles written about her lately, like this one:
Sade’s Eternal Cool – Longreads

I think she is one of the cooler artists around.

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