The Truth Hurts #Infertility #AtoZChallenge

Keeping this short because I have a nasty headache.

Not like this is going to be the most chipper of posts anyway, but it’s truth and reality and sometimes reality hurts.

The A to Z Challenge – I is for Infertility

Did you ever want something so bad, but you couldn’t have it? Or, you knew it wasn’t really possible? It may never be meant to be?

I know it’s still not one of those parts of life I’ve totally accepted, as I feel a sharp jab when I read about women announcing a pregnancy or a milestone with their child. If it is someone I know or love, I am still happy for them. I would never want them to leave me out of such a piece of info, but it still hurts me that I may never have it.

This is when people like to cheer me up by informing me that I don’t know what the future holds and that it could still happen for me. I truly appreciate the attempt, but I need to face facts as they currently stand. I can’t stand to live in a dream world.

It’s a combination of medical and physical factors, which lead me to believe I would have trouble becoming pregnant, though I have never really tried to become pregnant.

Circumstances haven’t been optimal for that. I don’t know if they ever will. I have also seen those I love struggle with it. With today’s medical options, there are more ways to make it happen, to bypass the roadblocks of infertility.

So, I claim I have it before even really knowing for certain. Yes, I wish my life were less complicated. I wish I could make my way to full acceptance in all of this. Maybe one of these days.

***This is my first year of joining the A to Z Challenge and so I’ve decided to post randomly, as a way for new visitors to my blog to get to know me a little better. I look forward to discovering some interesting new blogs too.

TToT: Utility Muffin Research Kitchen – Comfort and Courage, #10Thankful

So much going on in the world, so much that I can’t write my way out of. I know what I am thankful for, as always, but recently my stress has been building and I couldn’t bring myself to post anything about gratitude last week.

I wasn’t even going to be back now, but I am one of those who believes both these are true:

“The only thing worse than knowing the truth is not knowing the truth, and yet, “the only thing worse than not knowing is knowing.”

By next Sunday we will know, not all “the truth” really, but the reality.

I don’t like where the world and more specifically the US is heading, but I am, in this case particularly, unable to do anything directly about it either way. Emphasizing what I am thankful for is the least and the most I can do now and we will face next week when we get there, like a rickety bridge, but I don’t speak of burning anything.

Those familiar with the stylings of Frank Zappa, you may recognize the stringing together of those four words in my title. I didn’t know of his recording studio and the rather odd name it possessed, until I heard an interview with Lady Gaga, who has purchased the house and now makes music there and shares it with other musicians. I liked the random word choice and thought it fitting for things at the moment.

For a little Halloween fun, with October behind us and November, the US election, and the holidays still to come this year, I begin with this here tale of terror.

Click Clack the Rattle Bag

Beautiful storytelling. I wanted to remember it.

Here is one song I came across this week that had the sort of feeling I am experiencing right now. I have the one picked out for next week, if a first female president is elected that is. If the worst does happen, the following song feels fitting, for my mood.

O Children – Nick Cave & The Bad Seeds

I heard it in the final Harry Potter movie (well, Part One of it anyway). It felt sombre. Lots of people feel this added scene (not found in the books) was awkward and unnecessary, but I felt the opposite, that sometimes the movie takes a gamble on a little something extra and it touches a viewer like me.

So, Ron had just run out on Harry and Hermione and the mission they were on to defeat evil. Hermione was devastated and Harry suddenly gets her to dance with him, to this song, and something feels optimistically hopeful, for their friendship and humanity, like not all hope was lost.

Somehow, I felt a connection here, to the current climate. I don’t think I’m wrong.

I am thankful, first off, for small favours which are really just what ends up happening, but sometimes they can prevent something much worse from occurring.

My brother had a seizure this week, but he is fine now.

He has had several since he fell, last December, and hit his head. He had a few last summer and then not until the other night.

The worst part about them, like what I say above, is you don’t know when they will come, but yet would knowing really be easier?

I guess because you could plan for the most optimal situation. If he is in the wrong place, doing the wrong action, it could be worse for sure. If he’s out in the street. If he’s in a place where a secondary injury could cause more damage. It’s scary because he is so smart and so much of what makes him Brian is his amazing mind. He was, only a few hours before, playing the most beautiful music with his band in my basement. Each time they play I change my mind and a different one of their songs becomes my favourite.

He is himself still, thank God, but my fear is that something will change. Seizures are hard on the body and on the brain, obviously. He was alone, but he was sitting down, we believe. He will be okay. My heart stops each time I hear he’s had another.

I am thankful for those little Facebook reminders of what happened exactly one year ago. Well, okay, not always, but this time for sure.

This happened.

One of my better/best decisions ever. I am thankful that I have a place where I read my writing out loud. It is excellent practice.

I am thankful for a fun-filled writing group this week.

November first was the start of a month of non stop writing, for some, as it’s National Novel Writing Month once more.

Only two of our group are doing it this year and I’m not one of them, but we had a party of sorts, while we chatted, wrote, and read our stories out loud. I know how much I can handle and how much I can’t. I hadn’t had that positive breakthrough with my violin yet and I knew I couldn’t add anything more to my plate right now.

I know things out of my control should never stop me, if doing something like writing a novel were what I really wanted to do, but this just isn’t the time and I know it. I sometimes trust my instincts to show me the way forward.

I do have a story I’m dying to tell, but not yet. This doesn’t mean I must wait a whole other year, for NaNo to come around again, but we shall see.

I just need to see what happens in the US on Tuesday and the aftermath of that. I need to get a year of violin practice under my belt. I need to focus on my goals for at least the next three months. That’s what is most important to me right now.

But back to writing group. The stories, minus my own, were unbelievably satirical and hilarious. We had to roll a pair of giant dice and we received a matching setting and character description for both the numbers we rolled.

Mine was: “beach with a prudish dress code” and “woman who is upset because her imaginary friend dumped her for another woman”.

Maybe I will share that story one day.

I am thankful that NaNoWriMo exists.

It got me writing back in 2013 and I wrote the quota of fifty thousand words in thirty days that year.

I achieved what would have seemed and sounded impossible to me at the time.

I fear I lost that beginning to a story, but even if I did, I now know I can do it again and I will. I now have two novel ideas to choose from when I do.

I am thankful I got to hear my violin teacher performing live with her fellow musicians. Brass, wood winds, strings, and percussion. It was a remarkable thing to witness, so many performing in unison and the pieces played were introduced by professors of the music school at University of Western Ontario, in London. The quote about comfort and courage was from one of those introductions and I made a note of it and liked the sound of it when I heard it.

I am thankful for a better week with the violin.

For the last few weeks I’ve felt like I was not making enough progress with the song I’m working on. I worried I was wasting everyone’s time and money and belief in me, especially my own hope, with all I’ve put of myself into this dream.

This week something began to make more sense I suppose. I felt better, walking out of that practice room, than I have in a while. It is one of the hardest things I’ve ever done, but definitely one of the more rewarding things I’ve attempted in my life.

I am thankful for family to hang out with when I need to smile and distract my rushing thoughts.

I watched the final game of this season’s World Series with my parents, brother, and uncle. I’m glad I got to think about baseball instead of world happenings, even if Toronto had lost out days before, for another year. These two teams deserved a shot.

I had to spend this past weekend around one who knows nothing about politics, elections, or world events yet. He is only four, so plenty of time to face these things, to learn about them, but I wish he never had to.

I feel the need to phone and speak to other children in my family, as I did after my aunt died, even with my feelings of not wanting to bother people, with their busy schedules and hectic lives. I know I should not ever allow that to hold me back. It’s silly really.

I am thankful for a ride home from my uncle after we couldn’t quite hold out past the rain delay to go home and call it a night.

My uncle is someone I can talk to about the struggles and the thrills of learning to play an instrument later in life because he plays and he gives it his all when he does.

He introduced me to another violinist from Canada on the brief drive home.

https://en.wikipedia.org/wiki/James_Ehnes

I am thankful for the baby kicks I’m not certain I felt.

My sister has felt them for a while in her second pregnancy, but getting over my weirdness with such contact, I tried for really the first time this time round. I felt nothing really, but it’s still early enough, and as long as the mother feels them I am okay to wait.

It really is miraculous and to think of that baby growing and moving is one of the best things in a mixed up, topsy-turvy world.

I am thankful for comedians to make me laugh about the things that, if I don’t laugh about, the only other option would be to cry.

Benedict Cumberbatch is a brilliant actor and Jimmy is hysterical with a good guest.

I am thankful for the vast array of autumn weather we’ve been having.

It was so nice to step out my door the other day to bright sunshine and warm temperatures, for November anyway. I stop, on the stairs, multiple times a day, in my favourite place in my house. I stand and take in the view, with my remaining senses of smell and hearing. I loved the cooler weather of Halloween. I loved the dank and the rainy and the better days as we fell back one hour, ushering in darkness earlier and earlier going toward December, and we’re on our way toward winter. Glorious that I live in Canada and get to experience all four seasons.

Okay, so perhaps a couple additional TToT items this week, to make up for missing a few recently. I needed to write and find all the ways I possibly could to keep my mood from crashing. On into another week however.

And, with that I conclude by saying, America, please be careful.

Here is a post I wrote almost exactly one year ago.

Good luck to all my American friends and to all of you from this here TToT, for the week that’s ahead of you. We, the rest of the world, will be praying and crossing our fingers and watching closely.

Utility, muffin, research, kitchen. And comfort and courage to us all.

Bite Me! #SoCS

Don’t you ever just feel like telling the world to, “Bite Me!” Reality really can bite sometimes.

“I’m here for my appointment,” I said, approaching the window in the doctor’s office.

“Kerry?”

“Yes.”

“That was yesterday actually.”

The receptionist said this, without sounding at all annoyed at this latest inconvenience of her precious time, but I would find out later that it happened a few times a week usually. In fact, one girl came in after me, only to learn she was, in fact, a day early for her scheduled appointment.

Immediately I felt like crying. I couldn’t believe I’d done that. I’d checked the card, several times over the last few months, and I swore I had the right day. Maybe they’d written it down wrong. Maybe this wasn’t my mistake at all, but theres instead. Maybe?

I wouldn’t normally have felt like bursting into tears over something like this, but I hadn’t slept well, fallen to sleep after finding out another terrorist attack had taken place, and even the death of a famous Toronto mayor, of cancer, this had contributed to my state of sensitivity.

I don’t know. Something about the situation I was in, the coming together of the events already that morning, it all felt kind of unreal.

“Really?” I said. “Thank you very much.”

The receptionist must have taken pity on me. “It’s her OB morning, but I can squeeze you in somewhere.”

“Oh thank you very much,” I said, grateful I wasn’t going to leave without finding out what my test results were, without getting a chance to speak with the doctor about my situation.

I took my seat, preparing to wait as long as possible, as I knew I was lucky to still be seen. All around me, women were arriving, being weighed and getting their blood pressure taken, being shown to exam rooms to see the doctor for their varied, so-and-so month checkups, all in different stages of pregnancy. Here they were. I didn’t know their stories and they didn’t know mine, but I began to feel out-of-place and silly amongst them.

One woman came out to meet her husband and young child. I wondered about all the women there alone vs the one there with, likely, her supportive partner. But maybe the other fathers had to work and couldn’t get off. Who knew. None of us truly knew another’s life and circumstances. That would, likely, be too much of a weight to carry anyway…even more than any fetus.

Speaking of unborn babies, I wanted to cry, at the realities and the uncertainties. But I wasn’t going to cry, there, in front of all those pregnant and expecting mothers, some already mothers, whose hormones and the huge event to soon happen to them actually had more of a physical reason to burst into tears than I had.

But of course I had a reason, my reasons, several reasons, but I didn’t do it, not there in front of everyone, receptionist and patients, in that waiting room on a Tuesday.

I wasn’t there, on that OB morning, for the same reasons as everyone else and I didn’t think I ever would be. I really really didn’t know what I felt about that likelihood.

Forty-five minutes later, I left still wanting to cry. So many things about that day felt unreal to me. Yet another global terrorist attack. Yet another life taken too soon from cancer.

And as for myself, I was sick of yet another symptom with nothing causing it. No blood test or examination result could be connected to how I was feeling. I’d stumped yet another medical professional, but I definitely wasn’t there for the same happy, blessed occasion as the rest.

I’d been through this before. Really had enough. Really sick of it. Real ridiculous. No, really.

So, the list of the unreal grows and grows and grows.

It’s really unreal that certain people are in the running for the US presidency.

It’s so unreal to me that people, the book buying public, that they seem to require life to be spoon fed to them, as someone pointed out to me how unlikely any publisher is to want a memoir when they can have yet another how-to.. diet or get-rich success story.

And it’s really

unreal

to me that I’ve been doing this

for almost exactly one whole year,

At least I have stream of consciousness writing to help me work through the realities of life.

Where, oh where, would I be without you?

Uneasy Me, #FTSF

“It’s not easy to be me.”

Superman’s Dead (It’s Not Easy) – Five For Fighting

Superman was always one of the last of the superhero stories I would choose. I was always more of a Batman girl. I don’t know how many Superman films I watched there for a while, but none of them stuck with me as being particularly interesting. I didn’t understand the whole backstory or even the definition or importance of kryptonite.

That’s why, when I read this week’s FTSF prompt, I froze in my tracks, unsure if I would write anything at all, have anything to link up with.

I looked up the meaning, refreshed my memory, but still drew a blank. Kryptonite meaning, basically, weakness and still I was coming up with nothing.

Come on, I nudged myself over the last few days. You’ve got to have a weakness. What is it? What would be the main one?

I am working on writing my memoir. It seemed like a perfect moment in time to start again, as I think back on the twenty years, exactly, that I was diagnosed with kidney disease as a frightened twelve-year-old.

Since that point I have been called brave and inspirational many many times. How did I do it? How was it that I managed to survive feeling so sick, dialysis, and surgery to have a transplanted kidney from my father?

I am not as strong as all those well-meaning family, friends, medical professionals, and acquaintances assumed. I don’t want what happened twenty years ago, what was only really a few years out of my whole life, to define me forever. I try to get past it, really, but I keep going back to it and writing my story down is a big part of that.

Sometimes I wonder if that’s even a good idea. Maybe I should just move on and look ahead. That’s what I am doing, but then I turn my head round and admit to myself that what happened during those rough months, all those years ago now, that stuff left its mark on me and I can’t honestly say I don’t look back in reflection.

My kryptonite is the past. It’s the affect a physical illness had on my body, my mind, the girl I was trying to grow into.

It influences my body image even now, as a grown woman.

When I was treated I was clearly under-weight and malnourished. I was lacking proper vitamins and minerals, things the kidneys are supposed to take care of.

I stayed stable on dialysis and I had the transplant. This got me back to a healthy state, but I went from being barely eighty pounds, maybe less, at age twelve. My puberty was hugely disrupted. I was not growing.

Once I had a working kidney, one being all you technically require, I began to gain weight. I gained weight as a side effect of more than one of the medications I had to go on.

I remember standing on our bathroom scale, realizing I was ninety-two pounds, and starting to panic. I wasn’t relieved I was gaining. I was horrified.

I was weighed every time I went on and off the dialysis machines. This was necessary, to monitor my fluid loss and gain, but it played havoc with my head. I was shown to focus on weight, at a time I shouldn’t have had to, when only months before I was pushed to put on the pounds.

Now, the weight was coming on abnormally quickly and I was visited by dieticians who went over the list of foods to stay away from if I didn’t want to gain even more weight.

So now I like my chocolate but I also like my fruit.

At Easter I love chocolate eggs, but come summer I go nuts eating strawberries, peas straight from the pod, peaches, and apples for weeks and weeks on end. They are really all I want to eat.

All in moderation. Diets don’t work. Or avoid some foods entirely?

I can list all the excuses in the book as to why exercise and weight loss hasn’t been easy for me, but I know I am not alone. I must keep plugging away at it, remaining mindful of it. I don’t want to make excuses, to use chronic pain or my blindness as reasons why I am now gradually gaining weight over time. I only get my kidney checked twice a year, but they still take my weight at the start of these appointments, and I am forced to look back and try to recall what the scale read six months before, to keep track, somewhat, of where I’m at. So although I don’t keep checking my weight on my bathroom scale every morning, I’m made to be accountable, every time November/April rolls around.

Yes, the meds have decreased, things are more moderate now, but the damage is done – floodgates have been wide open for twenty years. I deal with something so many people deal with, I know. Emotions also play a part and my psychological state becomes a factor.

Can I keep things under control? Can I not let the events of my past rule my present or influence the future?

My kryptonite are the stretch marks I’ve had (not from a pregnancy, like most women my age), but since I was on high doses of prednisone, when I was fourteen years old. I can feel the clear visible evidence of how it all began and I feel weak because I can’t keep things in balance as much of the time as I’d like, but that’s why I write about it all. I hope that part doesn’t make me weak. I don’t feel all that brave or inspirational and I don’t want the weaknesses I live with to bring me down. They do serve as reminders of the scars of my past and the toughness, as they’ve driven these bits of my past in deep.

Now I’m off to go eat a mango and some chocolate.

🙂

The brains behind this week’s FTSF is

Lisa Crisp Witherspoon

of The Golden Spoons.

Kryptonite – 3 Doors Down

And, as always, Kristi of

Finding Ninee.

My Top Spills and Thrills of 2015

Okay, so instead of a movie review for the newest instalment in the Star Wars franchise (which I am postponing until 2016), I am attempting to sum up this past year: the good and the bad.

It has been a year of huge surprises, stupid spills, and awful scares for myself and my family, but there were thrills to be had throughout. It all ended, with a bit of a bang, and now here I am. I see I am not the first to write one of these, but since I waited and just posted about my hopes for the coming year, last New Year’s Day, I thought I would follow that up with another review, of sorts, about how those hopes translated into one wild ride of a 2015.

First Day of the Rest of My Life

I say in that post that I am not a fan of resolutions at the end of one year, with the blank slate of a new year stretching out in front, but I did have a vision for what I hoped my year might look like.

Now that I can reread that post and see how I fared, I want to bring it all together.

This is how it’s done.

So I thought I would take a page out of this blogger’s book/blog and go month by month. Bare with me.

JANUARY

One of my first posts of 2015 was all about trying new things.

Speeding Up and Slowing Down

I hoped this would be a sign of things to come for the year.

I continued participating in something that matters to me, that is all about a subject near and dear to my heart and life. I would continue writing about awareness for equality and disability rights. This post was a kind shout-out to all that.

I Don’t Want Coffee. Here Are Some Links, Though.

This links to another blog hop I could participate in, if I had more time and more days of the week, but I read it weekly. I have found and left a few different circles of bloggers and blogging groupings over the last few years, but many of these circles intertwine with one another, here and there.

Speaking of blogging circles – January was the start of one of the best things I’ve gotten involved in in a long time.

We All Need The Village

&

1000 Voices Speak For Compassion

Thank you: Lizzi and Yvonne.

Also, it was a month of endings and beginnings.

Letting Go and Continuing to Write Another Day

The ending of an opportunity for the short story I’d written gave way for the beginning of a chance event, one for which I am so glad I snatched up my chance to be included in, in the months that would follow.

FEBRUARY

This, my birthday month, brought not only the day to celebrate my birth, but also the celebration of my first full year of blogging.

One Year and Counting: Kind and Generous

Then came

1000 Voices Speak For Compassion

And after that, my first contribution of many for #1000Speak, there came more focus on kindness with a post I’d written, which was published on a site devoted to love and friendship.

A Friend In B By Kerry Kijewski

I continued to write about a vitally important cause to me, rare illness awareness

Rare Disease Day, 2015: Ventilation

There was a weekend in Ottawa with a friend. This I will never forget.

This year I took a step forward, in the right direction after lost love, and began dating again.

Dating in the Dark

This is my life.

MARCH

This was not easy for me and I didn’t want to do it, but I did it and hope to do more of it.

Microwave Popcorn For Dinner It Is

As the year went on I managed to keep a secret that I’d been keeping hidden for a few months. It would involve the struggle I constantly have inside about the fine line between truth and fiction, memoir or not?

Truth Or Fiction: Which One Is Stranger?

The first of two weekly blog hops I would soon come to depend on for both comfort and inspiration began as the third month of 2015 came to a close.

Stream of Consciousness Saturday

And I finally published an interview, long worked on and awaited, with a female who is making a mark for herself as a smart businesswoman.

Keep Calm and Get Your Hair Done

There were three deaths this year, in the entertainment world, of which were sad ones to me.

The first was Richard Gilmore from Gilmore Girls. Edward Herman died almost exactly one year ago.

I did not write a post for this at the time, but wanted to include him here and now, with news recently of a NetFlix Gilmore Girls reboot, of which the man who played Mr. Gilmore will not be able to reprise his brilliantly portrayed role.

RIP Edward Herman

(He had an amazing voice and used it to read voiceovers, playing Franklin D. Roosevelt in the Ken Burns documentary, of which I watched near the end of the year, after Herman was gone.)

Second,

Love and Despair

with the shocking death of Jonathan Crombie (Gilbert), the man behind the portrayal of a great literary heroic character.

Third, Christopher Lee.

Into The West: RIP Sir Christopher Lee

APRIL

Babies are born and babies die everyday.

Departed and Demented

Upon hearing of the loss of one precious life, for which I had to rant about the unfair ways of the world, next came a re-blog from my own blog, written one year earlier, the worst kind of anniversary imaginable.

The Dark Mark

These few things from early in the month on my blog only served to show the contrasted miracle, the wonderful shock I would get at the end of the month

I had no idea I was about to learn of the upcoming birth of a sweet child in the month of spring’s renewed promise.

Let’s just say, to say I was shocked to learn of my friend’s pregnancy was an understatement. Best surprise all year and, as I continue on with this 2015 summary, that is about to demonstrate how much this brand new little girl means to me because she is a part of my oldest friend. No publishing achievement or literary goal met can possibly compete.

I saw my aunt twice this year, in her new home, a senior’s long-term care facility, sadly. My uncle, my father’s half-brother, he visited from Germany. He wanted to see his sister because nobody knows when it will be their final time together.

Milestones and Siblings

I spent lots of time with family, not only during the month of April, but I make a point to do this every month, any time during any given year. This year, 2015 was no exception.

Orphaned

It was only by doing this that I could think enough about how lucky I am to have family of my own, that I was able to write the guest post about famous orphans in literature.

MAY

Into the fifth month of 2015, nearly halfway now, and things really took a lousy turn.

I was distracted and although the first computer problem was a simple mistake, a fluke thing and a sign of my naivete with technology, it was only when I was careless enough to have a sticky drink next to my precious laptop that I really had something to kick myself over.

Having to fall back and depend on an ex boyfriend to fix things was a hard thing to do. I knew he’d help, if I asked, but I didn’t wish to bother him. It was still hard to admit that he was the one person I would still need, in the desperation I was facing, when it came to computers and technology, the one person I would still trust most to help and help he did. He’s good like that.

If it weren’t for the honour of a request to write a post on a writer’s site whom I greatly admire, the month would have been a total disaster.

Writing the World, Sight Unseen

The girl’s got a way with coming up with titles. Oh, and she’s got the neatest sounding last name around.

🙂

Oh, and then there’s this.

The Second Chances Anthology

At least some good came from the month of May.

Oh, and I can’t forget this either and never could.

Ten Things of Thankful

May was the month I joined this wonderful weekly blog hop. Many examples of what TToT stands for and looks like can be found in the comment section of this origin post.

There was, also, the series finale of a truly great show.

It’s a Mad Mad Mad Men World

End of an era really, or several, from the 60s onward to the end of 2015 and the start of 2016.

JUNE

And I had a publisher. Yay!

Little Bird Publishing House

And with that, I had to attempt to put into words what writing means to me.

How Writing Has Positively Influenced My Life

Still working on this, but I keep letting other things come first.

Close But No Cigar

The year 2015 was now halfway over. I was still working on both education and love.

New Month, New Me

Another milestone. I made it another year with my father’s kidney, working and keeping me well and off dialysis. Every year I avoid that is a reason to celebrate.

The year 2015 has been a spectacular one for music.

Every F****n Day – Lolawolf

“You must be curious. Even…just…a little.”

🙂

This song, among others, made my year and it was only half over.

Figure It Out – Royal Blood

I was trying.

This year, 2015, meant the anniversaries for my grandparents’ deaths:

**Five years for Grandpa

Ruby Red

**Five years for Oma

Gardens of Sunset

**And ten years for Grandma

You Are My Sunshine

Speaking of death, the composer of the wonderful Titanic soundtrack died, tragically, in a plane crash.

RIP James Horner

The US did make some progress this summer.

ROYGBIV

JULY

My country has made some much needed changes this year too.

Canada Day, 2015

We’re working on reconciliation and welcoming our differences, rather than hiding them away and spreading fear.

Life is all about the fireworks.

BANG!!!

Whether it was the stress of a first date or the unpredictability of a summer fling,

(Men Are From Mars, Women From Venus, and Then There’s Jupiter)

I had one hell of a summer.

One Last Kiss

I’VE BEEN PUBLISHED!!!

CHECK!

That’s another item I can check off my bucket list.

Color, Light, and Magic

Plus another guest post on J.K. Rowling’s end-of-July 50th birthday.

AUGUST

It was a truly spectacular book and a fascinating study in literature.

Jean Louise The Silent: My Review of “Go Set A Watchman”, Part One

&

Jean Louise The Silent: My Review of “Go Set A Watchman”, Part Two

The summer was full of not only literature, but also some amazing theatre performances, culture, and history.

Read a review of the play here:

Stratford’s Diary of Anne Frank

And the summer ended with a bit of nature by Future of the Ocean.

Big Blue Live

And one more guest post I had published on Hasty Words.

Be Real

My summer of 2015 was full of new experiences, harsh realities, and missed opportunities.

Rural Pride, County Wide

Sometimes, some things just aren’t meant to be.

SEPTEMBER

When the anthology with my story first came out in the summer it was only available as an EBook, but finally I could hold a book with a story I’d written in my own two hands. It was an indescribable feeling and a dream come true.

With the arrival of autumn there’s the twenty year anniversary for Jagged Little Pill.

Perfection

At the end of the month I had a trip to Toronto which was full of surprises and adventures.

Faith and a Spinster’s Gratitude List – Harvest Moon

OCTOBER

I tried my hand at Writer’s Digest’s month long October Platform Challenge, but I messed it up and did not finish. Admittedly, it was a bit of a half effort and I misread the instructions.

Check it out here.

This year marks three anniversaries for television and music I’ve loved:

Gilmore Girls, A Boy Named Goo, Beverly Hills 90210

By the time we were nearing the end of 2015,

Canadians felt it was time for a change.

I also decided to try something a little different, when I was invited to do an interview for an online radio program.

Travelling with the Speed of Sight

Canada’s one-and-only Major League team, Toronto Blue Jays, came closer than they have in more than twenty years, to winning the World Series. It was a wild ride.

NOVEMBER

The eleventh month of 2015 found me trying something new, something I’ve wanted for a long time.

Words with Friends

Being a part of a writing group is exactly what I have needed to progress with my own writing. I hope to continue with this in the year to come.

Remembrance Day and November 11th had a special significance this year.

In Flanders Fields: One Hundred Years Later

An unassuming Friday the 13th in November turned into much more, so much devastation,

with the attack in Paris.

Then came the first of the hospitalizations for my brother for 2015 and this one was frightening enough, but it was only a prelude to what was to come for our December.

And with one one hundred year anniversary there came a forty year one shortly after,

with a Great Lakes ship wreck and a song written more like a tale set to music.

It was time to celebrate a great man.

My Father Turned Sixty

On the final day of November.

DECEMBER

As Long As There’s Christmas: My Grownup Letter For Santa, 2015

We almost made it. We’d arrived at mid month, only a few weeks left in 2015 and then the bottom dropped out.

My brother had a bad fall and suffered a brain injury.

For a few days we weren’t sure what kind of Christmas we would have, but my family and his friends never stopped believing he would come out of it the same old Brian.

Decade Adrift

The doctors didn’t want us to get our hopes up, but we had a Christmas like the others.

We were all together and Brian played music again.

My last guest post of 2015. – Advent Calendar Day 20: One Tradition After Another

Now I end 2015 with a huge Happy Birthday wish for the most special five-year-old around and I ring in 2016 with a friend. Girl’s night!

In the world of feminism, 2015 was a fabulous year for discovering awesome female voices in music, literature, travel, social issues, and history.

FLORENCE AND THE MACHINE: NEW SINGLE PACKS A PUNCH

The Danger of a Single Story – Chimamanda Ngozi Adichie

Talking to Amy Gigi Alexander

He Named Me Malala

&

The 1994 Miep Gies Lecture

Not all of these are current, but the act of me finding them this year is the point. All examples, of females who are or were strong, which gives me the push to keep moving forward.

Women of the Year: 30 Canadians Who Rocked 2015

On the continually fascinating subject of wickedly special females, three albums and their artists are worth mentioning this year:

First, Vulnicura.

Black Lake

by Bjork.

Second, How Big How Blue How Beautiful.

Ship To Wreck – Florence + The Machine.

And third, Honeymoon.

High by the Beach – Lana Del Ray

As for The Redefining Disability Awareness Challenge, it was an every Monday sort of thing for the previous half of 2014 and I continued, missing a week here and there, but I have not forgotten about its importance in my own world and here on my blog.

This coming year I plan on really starting something that I want to focus on though. The year 2016 will be 20 years since I began the journey that matured me before my age likely would have otherwise.

Let Them Eat Cake

I have imagined writing a book about it, memoir called Piece of Cake, for years. Now that I have this blog I will start by writing about those days, as the next few years pass.

I have goals and dreams for 2016 and beyond, but I hesitate to speak of them all out loud, in fear of falling short.

FGP’s Virtual Holiday Party

I want to make more connections with writers, creative and smart women, and I want to keep writing. I want to not be afraid to keep putting my words out there, even though the fear of more rejection is a lingering one.

I want to keep working on the one and only “resolution” from 2014/2015: jealousy. I hate that part of myself and I wish I could let that go. That doesn’t mean I don’t want the best for others and don’t cheer other people on. It just means I do both and feel conflicted.

Some make resolutions, others pick one word for their year, but I resist doing both. If I have to choose one word though, I suppose I will go with “Adventure”. I do want more of this, as I believe life is one giant adventure, all the years we get to live it.

We in Canada made a change and took a stand in 2015 and, the question for 2016 is and will be: America, will you?

Okay, so I just went through my entire blog for the year, to prepare for this post. I know. It was a long one.

Wow, I wrote a lot. I did not receive an end-of-the-year WP blog stats report like I did last year though. Hmmm. Wonder if that means I didn’t do well with follows, comments, and views this year. Ah well. Staying true to myself and remaining authentic is all I can ask for.

Goodbye 2015…hello 2016. Be kind.

Ordinary Miracles: Part Two, #TBT

When I returned from Ireland, I saw them ready to start again, from the beginning. Once again came the shots, the cost, and the trips for the In Vitro, with the retrieval and the implantation. They tried again with the love and the hope we all held for them. This time they would be successful. This time they would have the baby they deserved.

This time was different and this time it was going to work. Again she saw her numbers rise with each phone call and it was a positive pregnancy test. Miracles were indeed possible. Again she began to fill with fluid, having to get it drained multiple times. Once more, as she appeared several months pregnant at only one or two, we saw the process begin again, but this time we watched the whole thing progress toward a brand new outcome.

Just prior to this, she’d written a piece about the struggles they’d gone through, for the fertility clinic’s website. I was honoured when she asked me to read it over for her. All who would read it would cry as she described the suffering she’d gone through and what amazing perseverance they had both shown to get through it all. She wanted this as much for her husband, who wanted so much to be a father, as she’d ever wanted it for herself. It was difficult reading about how badly she wanted to give her love a child of his own to love. She spoke about it all with such raw truth and honesty. I knew I would do whatever I could, be there for her, and one day it would pay off.

She showed up at my door, after one of her early appointments at the clinic: nauseous, holding a bowl, and rushing to the toilet. This was a violent reminder that things were on track. I was around and able to sit with her during the days, when others could not. I watched her continue on in this state, for weeks and weeks. This would be the last Christmas she would be without that precious child she longed for. I needed to look after her and that sweet baby so sorely wished and waited for, which now grew inside her. As she suffered with this extreme bout of weakness and nausea, she knew, and we constantly would remind her of the worthwhileness of it all. It’s easy, in a way, to fight through just about anything, when such wonderful things are to come out of it.

As the news of twins was announced and then the news that one alone showed up on the ultrasound, it was devastating, but how could we be sad when there was a baby to look forward to? Yet still the loss of that second baby, a precious human life and sibling, was a loss just the same.

The pregnancy soon resumed an overall normal state. My sister was able to experience everything other mothers-to-be take for granted, even if she’d experienced things a little backwards. Moderate morning sickness for some is a nine month ordeal for others. I learned a lot about pregnancy by observing its affects firsthand through my sister and sister-in-law during that time. My limited experience with these things had come, previously, from television and books, but this was my family and the people I loved. Infertility was such a lesson that I had never known. The loss of miscarriage and negative pregnancy tests was so heartbreaking that I wondered how anybody ever recovered, but I soon saw that it was indeed possible. that light would and did shine again.

My niece and nephews are that light. Our Reed is that light. As he grows, I am introduced to a whole new world of first’s and joys. As an aunt, it is my greatest honour to get to watch the children in my family grow. He is a miracle for certain, with his beautiful blue eyes that will undoubtedly someday win girls’ hearts everywhere. It reminds me of an Amy Sky song:

Ordinary Miracles

As he passes his first birthday and the milestones begin to pile up, I am surprised how fast the time really does fly by. He has developed a personality and highly evident characteristics. My niece is a year and a half ahead of him in the transformation of childhood; her baby brother makes three. I look ahead to their futures and I treasure every moment I get to be witness to all these things, as I see them with the other four senses I still possess.

I had a lack of prior babysitting experience that one often accumulates during the teenage years. Most parents might not have been all that eager to leave me alone with their children and I had no confidence in myself to want that anyway, but I did miss something of value in just such a hobby as a teenager. I am finally given the opportunity to prove myself just as capable as anyone else. I’ll admit that the diaper changes aren’t my area of expertise, not that such things are impossible. I am given a chance to learn from these little people, just as they learn themselves, that to give up on things one wants isn’t really an option.

My siblings give me the opportunities I need to learn how to take care of the children that, undoubtedly are more important than themselves. They have always known me as their blind sister second, and simply their sister first. I am Auntie Kerry to their children. I hope to give my niece and nephews things in life, to demonstrate to them important lessons of value that other children might not receive, about perseverance. The outlook that it is possible to triumph against anything that might be standing in their way. That there is more to people than at first glance, to be discovered if only one gives it a chance.

As my nephew grew, he became a little boy with his own voice and his own personality. I wanted him to know me, to see me often enough that I am one of those people he can always count on seeing, to be there for him. For young children, familiarity is key. I intended, from the beginning, to be there always and forever. From the very start I would be someone who was present in his life – all he’s ever known.

All that work it took to get him here with us and we never forget. As he grows and learns, the experience I’ve gained this past year has been invaluable. I have a comfort with children that I’ve never before had. Just as I’ve stumbled and received bumps and bruises along the way, falling and learning how to get right back up again, he’s also received these lessons. I watch and protect him as if he’s my own, my sister’s most prized gift. I would give my life for that kid and I like to think we’re buddies. He looks at me as a playmate and a pal, someone he can count on, and I hope he always will.

When he grabs a hold of my fingers and we walk…when he laughs out loud at something I do – I store those moments away in my mind and heart. I am blown away by the miracles of modern medicine and what it can get us. It’s amazing where we started out and how far science has come. Those long gone from our lives, ones we’ve loved, would be amazed at what has taken place and the sweet child we now love. He’s here with us and I hold him close and feel him breathe when he is sleeping in my arms. I thank the nurses, doctors, and technicians for their dedication to achieving this most precious outcome. His tiny fingers in mine – that is perfect happiness to me. The sound of his voice and his giggle is the sweetest sound and purity personified.

As we come full circle and he is taking his first steps, we eagerly await with anticipation the new words he begins to speak. I feel sad when I realize he’s growing up before our very eyes and I will miss rocking him to sleep when he is too big to be rocked. Time doesn’t stand still, but it gives me hope for anything – that all is possible, That you just never know what’s around the corner. Something so sweet that was once not here is now a part of our lives and the world is inconceivable any other way. The children in my life are gifts, more precious than gold. I see them not with my eyes, but with everything else in me and with all I have to give them of myself, and always will.

***

“Where there was weakness I found my strength, all in the eyes of a boy.”
–Celine Dion

A New Day Has Come

Originally posted within a few weeks of me starting this blog, I had written this essay for a writing competition. I did not win and then I decided to publish it here.

I decided to practice my editing skills and have split it into two parts. The first part I posted just the other day, on my nephew’s birthday.

My nephew, the subject of this essay, turned three years old this week. It’s incredible and unbelievable, all at once. He is growing up so fast.

I have posted the second part on this Throw-Back Thursday, because I want to look back and see how far we’ve come, while I remind myself that the hard times can seem like they will never end. I know better times and things are possible.

Ordinary Miracles: Part One

It’s not what’s often seen in the movies or on television, the woman screaming bloody murder and, “I WANT DRUGS!!!”, as doctors and nurses all around her yell: “PUSH!” – at least, not in my sister’s case. It wasn’t exactly what I’d pictured. It happened so fast. It felt like a blur, but a vivid and memorable one. It was special and it all seemed to happen as it should.

She was quick about it – my sister, true to form, had the baby out before any of us could blink. So quick in fact, it was like we were all almost late to the delivery, including her. I knew it would be a boy, just as I knew it would be a girl for my brother and his wife before. Everyone always says they just had a feeling and I did, I just knew it. One moment he wasn’t there, just this concept of what he might be in our minds, and the next he was out and a part of our family.

I think, as close as we are, she mainly agreed to have me in the room because she could be assured I wouldn’t see anything. One perk of having a sister, blind since birth, was that having me there wouldn’t make her feel any more embarrassed or exposed. We were expecting a labor lasting hours. I was prepared for a marathon. Instead, it was a sprint for my older sister. It was a relatively easy labor, as labours go.

That August day, my sister and her husband awoke in the early morning, to the alarm clock: him to get ready for work and her to labor pains. She assured him he could and should go to work because maybe it was only false contractions. The first stage of labor could take hours that she preferred be spent at home. However, within the hour the pains were so intense, she called and ordered him back immediately. I was awakened at 6:00 a.m. by the startling sound of the phone. She was a few weeks early, ahead of her due date, but I wasn’t totally surprised.

I was honoured to be asked to be a witness, one of few, to the birth of this child who’d been so desperately wanted, yet at such a high price and with so many intense struggles and plenty of tears. The miracle of birth is unmatched in its beauty and magic, yet it can seem like the most natural and ordinary of life events for people, all around the world, every single day. This isn’t the case for everyone. It hadn’t been so easy for my sister and her husband.

I was there before the mother-to-be. As I sat and waited for them to arrive, flashes of my sister unable to make it to the hospital and giving birth in their car, at the side of the road flitted through my anxious mind. Leave it to my chronically late sister to be late for this. As I heard her being wheeled passed out in the hallway, my fears were put to rest. I hadn’t really been waiting long, but it sure felt like it.

As I entered the Labor and Delivery Room, the nervous father-to-be had only just spilled his bottle of Diet Coke all over the floor. In his excited frenzy, the cola he’d brought in preparation for any presumed hours of labor and a possible diabetic low blood sugar had exploded, at a most inopportune moment. He was scrambling to clean up the sticky mess while I held tight to my sister’s hand in his place, none of us realizing how soon it would be all over. She squeezed as she fought through the contractions, vowing to refrain from any pain control or epidural. I wondered how her pain threshold would hold up against hours of continuous, growing, and building agony, but within a very short half hour or so, he was out.

All the chaos and the things that could and did go wrong: doctors showing up late (not to mention the parents) and with Coke spills and alike, I barely got to take it all in. I could only imagine how the experience felt for the two of them. She’d pushed through her contractions, squeezed my hand, and made very little sound, nothing like I’d learned for years in the media. Suddenly, after only three hours from when it all began, there he was.

As easy as this all sounds, it was really only fair to them, due to how difficult it was to actually arrive at this point. The struggle and the fortitude of the two of them, in dealing with everything they had to bring him into the world and into our lives is something truly remarkable. I witnessed it all from my position as sister and housemate for a good chunk of the time. They had been trying for a baby since becoming man and wife, and it had been the longest three years of their lives.

Infertility is becoming more and more of an open subject in our society today, with friends and family, in the community, and through media coverage. It is talked about, not just behind closed doors, unlike years ago. This allows for much more discussion and the reluctance to speak about the many struggles couples go through becomes a thing of the past.

Having a baby – it all seemed so normal when teachers spoke about it in sex ed. It was what was supposed to happen, right? Well, when it doesn’t happen like that, women are faced with the fears and the questions that medical science must try to address and alleviate, such as:

What’s wrong with me?

Why can’t I have a baby like other women?

It feels like a crippling burden of failure, that I am not a real woman if I can’t do what a woman is supposed to do, was made to be able to do. To be a parent is a deeply entrenched and unbelievably strong instinct, from what I’ve seen and felt up close. I felt it too, but can’t yet see how it fits into my own life. Being blind presents a whole new set of concerns and fears. Sometimes the answers aren’t as simple as whether or not to have a child. I struggle with this in my own mind, yet still I am left able to relate to my sister and her husband, and their own situation, in my own way.

I wanted, what my sister desperately wanted, for them and their need to start and grow a family for themselves. The pressure of that can be a very great weight. I saw it and felt it in the words they spoke and how they spoke them. I felt it in the air after their wedding and over time, as I shared a house with them for the first few years of their marriage. I saw it all up close and I yearned for the success of this most important of ventures, the most important they would ever face together. Young newly weds aren’t usually tested so early on as to the ultimate strength of their relationship.

Soon came the pressures of doctors visits and monitoring cycles of ovulation, or lack thereof. It was a lot of information, trying to learn all about infertility and its causes; how sometimes there is an explanation and other times it is simply known as unexplained infertility. It really can’t be seen as one person’s problem or fault. I see so easily how these fears and guilty feelings can cause a rift between an otherwise happy couple, so eager to experience parenthood and to make a child, a part of both of them. It’s sad and, like financial problems in a marriage, the intrinsic need to have a child can be the one thing to drive a wedge in a loving relationship. this wasn’t going to happen to my sister. We as a family weren’t going to let them be disappointed and left empty-handed. I wanted this as much or more than I’d ever wanted anything for myself.

It is cruel how much it costs to get what comes so naturally, free and clear to some people. It feels like paying for oxygen – getting pregnant shouldn’t need a category in the budget, where a couple who works hard and only wants a family has to scramble to come up with the money to pay for medications and the cost of infertility treatments. Not everyone has the resources and the giving nature and spirit as we have in our family, as they had in our parents. Our parents are indescribably generous and kind. They’ve worked hard for many years to give their children the things we’ve wanted, the things they’ve wanted for us since we were born. They made it all possible.

However, along with these gifts there comes the inevitable landslide of guilt and worry. As the cost began adding up, thousands and thousands of dollars, so did the feeling of:

“What if it doesn’t work and all that money was wasted, with nothing to show for it?”

As the weeks and months of medications and treatments passed, the pressure built. On one such occasion, I recall hearing my sister shaking uncontrollably with sobs of despair. Such a thing rocks one to the core and I hurt beyond explanation for her that night. She feared failed rounds of IUI (Intrauterine Insemination) – a procedure where sperm is injected directly into the uterus. Had that all been for nothing?

They were lucky to find a very supportive and capable fertility clinic. When they were there, they felt heard, understood, and taken care of. All the trips for blood tests and ultrasounds and the disappointing phone calls, with no baby – it was all starting to add up. Adoption, child fostering, or a life with no children flashed before their eyes I’m sure. Was all of this worth it?

When the IUI attempts didn’t work, the next logical step was to try IVF (In Vitro Fertilization) – where the sperm is injected directly into the egg, which is then inserted back into the uterus. She went through all the necessary steps, the needles she gave herself, often helped along by her husband, and the hormones. All this lead up to a summer of hope and disappointment and pain. We all learned of the existence of “Ovarian Hyper Stimulation Syndrome” – a condition where the body produces, with help from all those medications, many eggs for possible fertilization. In my sister’s case, more than thirty were produced to another woman’s one or two – with this, the ovaries become over-stimulated, resulting in extreme illness. She appeared six months pregnant, almost at once, when not even confirmed to be so; all that fluid, released by the ovaries, began leaking into her abdomen. This is, however, a positive sign of a successful pregnancy.

That same summer, I was told by a friend of her first pregnancy and I was left with so much joy in my heart for her, yet so much anger that so many women were seemingly able to become pregnant so easily. Why then was it so hard for others, just as deserving of a baby? Life seemed horribly unfair at that juncture.

Then, a glimmer of hope; a call from the clinic with the blood results showed good numbers, indicating optimal chances for a positive pregnancy test. My sister appeared to have what she wanted and what we all wanted for her. It was finally happening – it was necessary, at such an early stage, to monitor the numbers and make sure they continued to rise. Every few days she anxiously call and things looked good; yet, things aren’t always meant to be.

When a pregnancy isn’t meant to be, it’s probably for the best, but which makes it a tragic loss nonetheless. I sat there, while our inherently positive and optimistic mother comforted my sister through her tears. I was off to see a part of the world I had always longed to see, a trip of a lifetime with an old friend, while my sister and her husband were left behind to deal with the reality of their situation. They’d had a baby for a week and lost it, before most would even know they were pregnant. I left the country wishing them all the love in the world to recover, move forward, and to begin to look ahead to brighter days.