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Happy 33 To Me, #FTSF

Twenty years ago, on this date, I spent my 13th birthday on dialysis, hooked up to a machine by an extremely fresh and painfully inserted central line in my chest.

So the nurses, me being the only child in a ward of mostly elderly patients, felt bad for the small girl on dialysis and they gave me a little birthday cake and all sang Happy Birthday to me.

How else do you make a small girl less upset to be stuck on kidney dialysis for her birthday, her first day as a teenager?

You present her with something sweet, that’s how.

It’s all relative. What made me upset then isn’t the same thing making me upset now, as a newly turned thirty-three-year-old.

I hadn’t even heard of him then…anyone by the name of…well, I’m not using the name on this blog from now on I’ve decided, even though in Harry Potter it says we should never shy away from using the name.

I am not afraid. Okay, well afraid for the world, sure, but I am more sad, enraged, frustrated, upset at where a lot of things currently are.

The other day, when I heard one of many in a string of a long line of blatant lies, it resulted in me giving myself a headache. These lies are going so far from the usual “all politicians lie lies” and into those that feel like they are so in-your-face that it almost feels like, when I hear them, they literally smack me in the face. So, I tried to act this out and my hand actually made physical contact with my own cheek.

I know, I know…ridiculous, right?

Upsetting, to be sure, but certainly not worth all that. Getting too upset in the moment means I don’t articulate myself all that well, for a writer, kind of like tonight apparently. I suppose it illustrates the theme of being upset rather nicely though.

Anyway…

I am celebrating twenty years of not having to spend birthdays or any other day tied to a dialysis machine. I am making big plans to celebrate that fact, come June. This is shaping up to be quite the thrill.

As for my birthday, people keep asking me how it’s been, how it’s going, and if I’ve had a good one. I try to answer, but how can I top the week I just spent in Mexico?

Ten Things of Thankful and Then Some

I can’t and I’m not even trying to. Different thing.

My birthday present from family and from myself was that trip. This day can’t quite live up to that and I could now go on to list the specific reasons why it hasn’t, or I could just say I’m upset I’m no longer in Mexico. I could just leave it here, but it’s late and I am in need of sleep and I am trying to sort out how turning another year older makes me feel. So, I will go on, at least a little more.

As I stare out at a restaurant, one where I am celebrating my birthday by having a lovely lunch with my father, I see a lot of blurry space in front of my eyes, mixed with the constant noise of a loud lunchtime crowd. These things feed into each other and I wonder if I will still see anything at all, upon turning thirty-four next year or on turning forty-three in ten years time. Will I sill see anything at all, on any number of future birthday celebrations in my future?

When I get upset about these thoughts, these very questions that are asked, without much prompting inside my own head, I try to remember everything I’ve been lucky to see and all the brilliant living I’ve still got yet to do.

I get really upset by a birthday where I go to give blood and I leave with a bandage on each arm because veins were hard to come by, but a needle now and then is nothing compared to what once was.

After twenty years of needles for a lot of blood tests, there’s scar tissue in both arms and I didn’t drink enough before going in. It’s not the nurse’s fault. I was distracted, but it didn’t hurt, not by this point.

I then decided, since I was already in the building, to stop in at an adjoining medical office, which just so happens to be my dentist’s office, to make an appointment for a routine teeth cleaning. I’m long overdue. The only thing more celebratory than making a dentist appointment on one’s birthday will be the romance of a Valentine’s Day oral checkup, right?

I wished for something rather odd this year. It’s not the first thing I’d think of when blowing out candles, but I did wish that, if I were going to get one of my common colds, thanks to my somewhat lowered immune system, I’d rather get it on my birthday than having had it occur at any point while I was in Mexico.

It’s seemed, on the eve of my birthday, that I had gotten my wish.

And now, am I upset that I have a sore throat and other symptoms ongoing on my birthday, with a lively family triple celebration still to come tomorrow? It’s not so nice, but my week in Mexico was all pretty nearly perfect, so I am okay with it really.

I took a break all day, making it a point not to read Facebook and my newsfeed for my birthday, if it meant I could avoid all stories about the U.S. so-called president and whatever nonsense he was up to on the day of my birth. I did use Facebook to feel the birthday love from friends and family though. One makes me upset when I read and the other makes me smile.

When I’m upset, I think of all the things I have to be thankful for. When I feel upset because I am back from such a week of writing in Mexico and I worry I will never figure out my future, I remember the generous compliments about my talents as a writer that I received from my writing mentor and from the other writers in the group. I may have felt a fair bit of fear and uncertainty since I arrived home, but I can’t put so much pressure on myself, on my own birthday no less, to figure it out right away.

When I am upset about so many things I can’t control, things the world feels like it’s getting all wrong, I think of so much that has gone right for me lately and I listen to the things being said to me by people I love and trust and who know me and who think I’m special in some way.

I don’t let those who don’t know I exist speak nasty things to me inside my own head. I can’t control all those awful things that cause me upset and I can often do very little about seeing those I love or admire become upset either. I can offer a kind word or a compliment or a joke to break the tension. I can write, no matter how pointless it might seem in the moment of despair or cheerlessness.

Another birthday has come and gone. I can’t say where I’ll be, what I’ll have just experienced or accomplished by my next birthday. I can fight feeling upset. I can acknowledge it and then I can move forward.

Finish The Sentence Friday

Happy Birthday to me! Happy Birthday to me! Happy thirty-three! Happy Birthday to me!

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International Day For Persons with Disabilities 2016, #IDPD2016

Helen Keller…Stevie Wonder…Ray Charles…Rick Hansen…Stephen Hawking…

The Rick Hansen Foundation

There are so many more of us out here, only looking to have rich, full lives like anyone else, but what often stops us is not only society’s barriers, but our own.

***

Since 1992, the United Nations International Day of Persons with Disabilities (IDPD) has been celebrated annually on 3 December around the world. The theme for this year’s International Day is “Achieving 17 Goals for the Future We Want” . This theme notes the recent adoption of the 17 Sustainable Development Goals (SDGs) and the role of these goals in building a more inclusive and equitable world for persons with disabilities.

***

One note on the society part – some of you may not want to think a lot about it, if you don’t have to, because then it becomes clear that the possibility for anyone to become disabled is indeed a possibility for anyone..

I am a Canadian woman, living with a disability. I didn’t acquire my disability through an accident later in life. I did not develop it overtime, but from birth and still, who knows which direction my remaining vision might take.

On the day before the
United Nation’s International Day For PErsons with Disabilities
I felt a tired feeling that I sometimes get. I panic and assume my sight is worsening, but I am not sure, if that makes any real sense. I close my eyes and decide I will try to get back in to see my retinal specialist soon.

I don’t know what, if anything, he will be able to tell me, offer me as hope that I won’t be completely blind one day. He will probably see no changes or signs of the mysterious eye disease that took my left eye twenty years ago. He will speak to me of gene therapies in various stages of development, but I don’t know what hope lies in that for me. Maybe it will be my future. Maybe not. I’ve learned not to bank on anything.

That’s a part of my DNA, just like the genetic eye disease. I am conditioned to either think the worst or simply not want to hope for the things I may really really want, always fearing that the disappointment from possibly not getting them will break me. It hasn’t broken me yet, which does give me reason to be optimistic though.

I wanted to be able to see the truly unique show violinist Lindsey Stirling put on recently. Instead, I listened to all I could and relied on my helpful sister to fill in the blanks. I wanted to throw my white cane away and yelled my displeasure, and through the wish, but instead I sat and listened even harder.

I want to draw like I used to when I saw colours and when everything in my world was more clearly and brightly defined. I can’t. I want to scream in frustration but I’m resigned instead.

I want to take up the latest craze of adult colouring books, but I don’t.

Of course, nothing is really stopping me. I may not, as an adult, see the lines I may have hardly seen as a child, which are now nearly invisible to me. I could still get myself a Harry Potter or any number of other themed colouring books with a theme which fits my interest, and be damned if I miss colouring in the lines by a mile.

But I don’t. I don’t scream or rail at the world in an uproar. I find other ways to spend my time.

I want to travel and to go through life with an independent spirit and loads of self confidence, but I don’t. I try and I work at it, but I’m scared.

I find a travel series, a BBC documentary, available to me on Netflix. It’s Stephen Fry, whom I love, and he is doing a road trip across the United States in his British cab. I know him from his narration of the Harry Potter books and for his intelligent and witty character. After watching him visit all 50 states I now know he hates being on a horse, dancing, and skiing. He loves science and culture and literature.

Stephen Fry In America

I watch him on his trip and I long to go on one of my own, but I fear getting lost in the big, expansive world and I worry that my white cane will attract only pity. I want to grip it with extra determination and go anyway. It’s all in my attitude, right?

I can’t drive a cab across the country. I want to believe I will see more of the world anyway, even without definition of sight.

I don’t try to revisit childhood experiences of mine by colouring. Instead, I watch a travel show which I’ve heard of but only now decided to give a chance.

HELLO GOODBYE, #HelloGoodbye

The host speaks to one woman in her sixties, widowed after her late husband’s long battle with illness, but who has now found new love with a man from England. Her happiness is infectious. Her newly found love walks down the ramp in the arrivals terminal at Toronto Pearson International Airport and gets down on one knee. Love is lost and can be found again.

I feel warm just by watching and listening to her story.

The host also speaks to a young man and his parents. The son is on his way to participate in Rio, at the Paralympics. He was paralyzed from a diving accident and now plays wheelchair rugby.

And then there was the grandmother, daughter, and grandson saying their goodbyes. The young guy and his mother are heading back to Britain after a visit with Grandma. The mother has RP (Retinitis Pigmentosa). She carries a cane, but the son speaks of wanting his mother to have companionship with a guide dog, as he will soon be going out on his own and doesn’t want her to be alone. He has worried about her safety all his life. She admits to being unsure about going for a guide dog once they get back home, but her son’s words cause her to rethink things.

She grips her white cane. I grip mine. She has been losing sight for years. I’ve been blind since birth and losing since. Am I any further along in accepting my circumstances and my white cane than she is?

People ask me all the time if I am ever going to get another guide dog. I don’t quite know what to say. Yes, they may provide the necessary confidence boost for many. I consider it.

I don’t think any dog will ever compare to my Croche, But is that all it is?

I can’t put another animal through what I put Croche through. She was so well trained and so fittingly suited in temperament. She was given to me and I was trusted with her. A lot went into all that. We were a team, but I failed her.

My ever growing illnesses caused me to sleep and her to dutifully stay by my side, but she was prevented from shining. She was my pal, but I don’t take the responsibility of a working dog lightly. I don’t know what my future will bring and I can’t bring myself to bringing another animal into that.

I want to curse what stops me, but what often stops me is me. And so I would just end up cursing myself, again and again.

Or, I could take hold of my white cane and use it for betterment, for working for some of my dreams, and for hardening my resolve and building my often feeble confidence.

My feelings of shame when I walk with my cane are hard to describe and hard to fight off. I will never be happy if I don’t try. Fear and disappointment stop me from even trying. What a waste that would be.

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Driveways and Sideroads, #SoCs

“Shhhhhhhhhhhh!!!!!”

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“I’m trying to sleep,” is what my cat Lumos is probably saying, as he curls up in the place between my legs and the couch, but I type furiously for a little bit of stream of consciousness writing anyway, as he cuddles up to me and keeps my feet warm.

Now, I don’t usually write from any cat’s POV, not even his, but I was thinking up ways to start this post with an “sh” as the prompt stated, and that was all that came to me on this early Saturday morning in December.

I thought I’d begin with a little humour, as the rest of this post is of a more serious nature.

I did want to speak about a few
shows
I’ve seen this week, here.

It was both an odd contrast and, at the same time, alinement between a Canadian news program about one young husband and father who would walk down his driveway, attempting to sell his truck, and would never come home.

And then the American news program 20/20 and the young wife and mother who went out for a jog and was missing, abducted, but then finally released on Thanksgiving.

“It was just a truck!” That was the quote from the first program, from the widow left behind by tragedy, all a horrible, nasty, disgusting crime of a thing.

The Cali woman who would survive, has made it back to her loved ones, is now hopefully free to live the rest of her days with her two children and her husband, who never gave up and fought so hard to find her.

The Ontario woman will never get that sort of a happy ending with her love.

I was ill to watch the first program, to hear even more of the gruesome details, of which I managed to miss back in 2013 when the crime came to all our attentions, happening less than an hour away from me. She has her faith and family and little girl to bring her joy again, but a part of her will forever be missing.

Who knows what happened while that California woman was gone, as she is only now starting to help the police piece things together. Her trauma at this time likely intense.

One has, seemingly had a happy conclusion, though the case is still ongoing. Hopefully, whoever these women are, the ones who lured the victim into their vehicle, hopefully they don’t hurt anyone else.

The two men charged and now spending life in prison are paying for their deeds, one charged with two other murders before the truck owning husband and father was senselessly taken. Entitled. Rich and spoiled. Thinking themselves invincible. Murder never should have been the result.

The similarities and differences, matching an fitting in an odd way as the two programs followed each other, it all felt strange to take in.

I was just struck by the contrasting outcomes to these two evening news programs, as the holiday season approaches and so much good is highlighted. The presence of evil in this world hit me with an extra, additional, forcible blow because we all look to stories of good will around this time of year, but there are those bad ones still going on, somewhere.

Not all is well, though both stories felt like they were read as transcripts, more like Hollywood movie scripts, but are true crime, real life in motion.

I put myself and my family in their places. Then, I immediately wanted to push that thought out of my mind.

Sometimes the world feels like such a scary place and I am afraid to leave my house at the thought of it. What are the chances, really, right?

The young Ontario woman who is now raising her daughter as a single mother said, “If it could happen to us, it could happen anywhere.”

You could meet danger or genuine decency in your own driveway or on a deserted side road. You could meet it, no matter where you might be, all depending on the sort of outstanding or rotten humans who come across your path.

I watch these shows, as the Ontario case touched me deeply and this Thanksgiving miracle was a happy story, still in progress.

I also know I can’t be afraid.

These shows weren’t fiction , not this time. They happened. It looks like I’ll get to spend another holiday with my family, whereas some people will not. I don’t take that lightly. I also don’t want to feel paralyzed with fear to go out into the world, to live my life, and I hope I never have to hear stories like these again, but I know, realistically, it can’t be completely avoided.

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A Post-truth World and I Keep Breathing, #TGIF #FTSF

“I want to change the world. Instead, I sleep.”
—Ingrid Michaelson

Keep Breathing – Ingrid Michaelson

With everything happening in North America and around the world, I want to do something, to jump to attention and act. Instead, as the above quote illustrates, I end up in my own position of relative privilege and comfort. It feels bad, but nothing’s easy.

Post-truth’ named word of the year by Oxford Dictionaries – Thee Guardian

I keep breathing to squelch my anxiety. Breathe Kerry…breathe.

*Now I’m talking about myself in the third person, great!

***

Breathing exercises are very important when learning to swim. I never quite got the hang of putting my face under water. The timing was bad when I was learning. My kidneys were failing. I was anemic and under weight and frail. I wasn’t receiving vital nutrients and nothing was being filtered properly from my system. The water would become my nightmare. So much frustration.

***

Squelch, squelch, squelch is the sound of wet feet.

I must remove my shoes if I want to observe my nephew’s swimming lesson. Barefoot in the pool area. That’s the rule.

I enter the space where the indoor pool is and immediately I feel the warmth and the mugginess of this place I know from another time. I want to witness this, even though the many sounds of splashing and shrieks of mirth make it impossible for me to hear the one little voice I’d recognize here.

My sister describes my nephew’s many actions, in a roped off section of the shallow end, a platform underneath him and the other children while they learn to push off the side of the pool and swim. Being on his back still makes him squirm because he feels he has little control over himself. I totally understand this. As in swimming as too in life.

***

This has been arranged through my school, my special ed/braille teachers, and my parents. I will take swimming lessons to make up for the big chunks of physical ed I am unable to participate in because I can’t see.

**Yes, this was back when schools still had a lot of gym classes. 🙂

I am twelve and I like the pool, but this is where I am now forced to risk getting water in my nose and eyes. As if that wasn’t bad enough, I hardly have the strength to swim from one side of the pool to the other, on my front as I prefer it.

My teacher is nice enough, but she doesn’t understand. Nobody understands why I even struggle to float. I swim front stroke and my teacher shows me how to move my arms to get me further ahead in the water. I can’t stay up, can’t keep moving my arms anymore. The echo of the indoor pool is drown out by the underwater roar in my ears.

I am weak and I am in water. Bad combination.

***

Now I sit with my sister on an aluminum bench at the side and watch as my brother-in-law has to tell my nephew to listen to the teacher. He’s being obstinate, wanting to jump off the platform by himself, while the instructor is working with one of the others.

I feel the roughness under my bare feet which prevents slipping on the wet floor next to the l-shaped pool I’ve known since childhood. Rough times come flooding back to me as I thought they might.

***

I can’t do this, I try to tell them. I want to let my arms drop and sink under, only because I can’t do this right now. I am sick and I don’t know how to tell them. What’s wrong with me? It’s not only my eyes that fail me, but my strength that feels like it has abandoned me also.

I love the smell of the pool and the water is pleasant. I love the feeling of weightlessness, but I like the sound of the echo still, as I just can’t make it to the opposite wall.

***

Why do they put candy machines right in the lobby on the way out? Of course, I know why and my nephew falls for it just like I used to.

***Beg parents for some change.

“I need some money Mommy,” my four-year-old nephew says.

It was a short visit to the pool, but it was one I needed. I needed to be in that place, with the sound of fun and learning. I needed to see this being a pleasant and even fun activity for someone, for my nephew, even if it didn’t happen that way for me. He may just learn to love swimming. He can only be safer for it.

Just breathe.

***

We do just need to remember to breathe, whether it’s for the purpose of not sinking in life or in the water.

I took my cue from
Kristi from Finding Ninee
for this week’s Finish The Sentence Friday post.

We all need to remember, in this post-truth world we’re living in, to just breathe, if we can.

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TToT: Blood Red, Royal BLUE, andd a PINK Bun – Lichen and Lightning, #10Thankful

Here I am and bursting with thankfulness, just like the fall colours now at their peak. My favourite season will be gone before I know it.

I missed last week, which I don’t like to do, but I had a good reason. I was filling up on things I’m deeply thankful for, living my reality, starting with this.

Fall colours and violin
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It soon became tricky, trying to hold my bow, as my fingers grew colder and colder. I wished I could see the vibrant reds, oranges, and yellows which were in full display up north east, earlier than where I live. I am thankful that such views bring my mother such happiness.

I am thankful I got to play my violin, as brief as it was, even with the few songs I know, in a place of natural splendour.

Algonquin Provincial Park,
in the midst of my favourite time of year.

I went on a road trip, to say goodbye to a loved one. Upon returning home I was so emotionally spent that I decided to take a week off and come back again, here and now, with a double dose of reflective thankfuls.

Phone booth

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I’m thankful to have gotten to know a remarkable woman. My aunt started a life on her own, away from anyone when she arrived, and built a life for herself and a family, here in Canada. She worked hard, raised two children, and made a mark for herself in the restaurant business.

It wasn’t until later, the mid 90s, that I was around to meet and to get to know her. I just thought the past was well represented, as we passed a remnant of days nearly gone by, with the phone booth, saying farewell to what once was, with the introduction of modern technology of cell phones, becoming the unavoidable reality.

https://www.youtube.com/watch?v=3RA4MykPm4s

My aunt was tough and resilient, like her mother, my oma.

She did not want a funeral or even an obituary. Was it because she did not want to bother anyone, even after her death? Or was it just that she couldn’t deal with the thought of us making a fuss after she was gone?

Well, on the chance of incurring her displeasure, I have needed to grieve and pay tribute to her, in my own few ways anyway. I am thankful I got to do that and to know how other loved ones are finding their own peace. It was important that I see them all again, to know they are going to be alright without her.

I learned to love “Operator” thanks to my father. Now though, it’s going to be forever the song that I now dedicate to my aunt, whose fierce spirit I felt as I stood just inside the booth, on a chilly autumn Sunday, in a Canadian national park, near her home, in Ontario. We all have regrets. I just hope my aunt is now at peace, wherever she is.

I’m thankful for lichens and morning glories.

I’m thankful for fall colours (red, orange, yellow) and for the possibility of either pink or blue. I’m thankful for the red blood that makes up a family.

I’m thankful for delicious food and the supporting of important causes.

pink hamburger bun
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October is Breast Cancer Awareness Month and I wanted to find out what a pink hamburger bun tasted like.

It was obvious to those I asked on Facebook and to my mom, even though my father and mother both said, up close, it could have been a sweet, dessert red velvet hamburger bun. The correct answer was it was dyed pink with beet juice, which I wasn’t so sure about at first, but did end up giving just a hint of sweetness.

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Then there was a wonderfully tasty bbq chicken salad, from
The Kitchen Eatery and Catering Company,
located in Pembroke, Ontario, Canada. It also just so happens to be my cousin’s lunch counter/store front and the catering business she is growing. If you’re ever in the area, I recommend you check it out. Beef sandwiches and pies named after her family members. She has not yet named a signature dish for my aunt, but I see that happening in future.

Pies were the order of the day, with Thanksgiving in Canada being in October. The coconut cream pie was delightful, with every bite of fresh cream and coconut I tasted. She explained her lessons in crusts for meat pies vs dessert pies, one taught to her from her mother and the other from her father, a big part of her team.

She has worked a lot of years to build up a dedicated crowd of regulars. She makes good food and puts her all into everything, and it shows. Both her parents taught her all they ever knew about the restaurant business and preparing the best tasting and quality food for any potential customers. We were lucky to be some of those, this time round.

I am thankful that I got to check out her place and the food. She was very gracious as a host. I am thankful I got to see the kind of family love that exists, even after losing her mother, my aunt. It isn’t easy, but we discussed what my aunt would think, if she could truly see what my cousin is creating. She would say she is crazy, but she would be proud I am sure.

I am thankful to get to experience the timeless hospitality of
the Grey Gables Inn (Bed & breakfast)

It’s a little like my favourite fictional Green Gables, as in the age of the building. It is the type of older building I’ve always felt uncomfortable in, yet as I grow older, I continue to see the value in the history and the ghosts of those who may once have lived there. It’s a place with great character. Leave it to my mother to find such a place.

I am thankful for the discovery of meditation music, when my mind is full of memories of loved ones, and sleep is not always so easy to come by.

He had many relaxation albums, going back to the 80s.

Tony O’Connor – Live in concert at the Sydney Opera House

This composer put on a brilliant live show before his own death. I wish I could have been in attendance, but I’m thankful for his haunting nature sounds, mixed with piano, guitar, and the authentically Australian sound of the
didjeridu.

I am thankful for some much needed guidance with my writing and the path I’m attempting to walk..

Next year will be twenty years with my father’s kidney and I feel like I need to recognize that, to do something big, possibly using my skill with writing.

I’ve felt a bit stuck on that lately, likely because, as the date of June 5th, 2017 grows ever closer, I fear not paying proper attention. What if my time with my transplant is coming to an end? I’m just afraid to get my hopes up too high.

I also am working really hard to find a healthy balance between the every day tasks of growing as a writer, the actual act of writing, with the ones I often suppress, which must include getting out and taking chances to meet people and make connections.

And so there you have it. A few extra thankfuls to catch me up with what I missed during my absence.

And, before I forget –
it’s the second episode of Ketchup On Pancakes, our podcast.
So check it out.

Ottawa River
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And so I’m glad I got to go there, as hard as it was in some respects, to stand on the border of Ontario and Quebec, to feel the wind tunnel, once past the shelter of the trees, and into the openness of the river.

Song lyrics.

But isn’t that the way they say it goes
Well let’s forget all that
And give me the number if you can find it
So I can call just to tell ’em I’m fine, and to show
I’ve overcome the blow
I’ve learned to take it well
I only wish my words
Could just convince myself
That it just wasn’t real
But that’s not the way it feels

—Jim Croce, “Operator”

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TToT: Boulder Slipper Lungs – Thanks Noodles! #10Thankful

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No quote full of wisdom can possibly be any greater than the ones that come from young kids and their imaginative little minds. I am feeling that most acutely and holding on, looking for a little bit of that in me, while the little ones in my life remain this age and teach me so much.

For some reason, some reason we can’t figure out, his mother can’t quite explain, my nephew calls his lungs boulder slipper lungs.

🙂

Nobody Knows (Pete’s dragon Soundtrack) – The Lumineers

The things the children in my life continually come up with are things that are constantly surprising me and making me smile.

My nephew, for example, he loves noodles and he wants them plain, with only butter. He loves what he refers to as “Grandma’s noodles,” but I think my brother, for example, may pick out the Simpsons quote from the title of this week’s TToT post if no one else has the foggiest clue what I’m referring to.

I was thankful my sister, brother-in-law and nephew made it home safe from their first vacation together out west to visit family. It was my nephew’s first airplane ride. Western Canada and Alberta means dinosaurs for my nephew and fishing for my brother-in-law. My sister was just glad to get away with her two favourite boys. With my nephew starting JK in a couple weeks, things are about to get busier.

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For their affect on my life.

They teach me to keep an open mind, even though they often feel like they are right, so who’s to say who’s right anyway?

For instance, if you were to try and convince my nephew that lungs are not called boulder slipper lungs, he likely might not believe you, but school will soon start and who knows what sorts of logic and teachings he will be introduced to then and there.

🙂

Reminds me of that song by Canadian band Rush, “The Logical Song”.

That my family puts up with my writing and this blog, are as supportive as they are, when I know many writers aren’t quite so lucky.

A lot of people write memoir and non fiction which involves stories of their family members in it. This can create resentments and other issues. Recollections are different for everyone. I needed to express myself, but how to do that without alienating those I care about?

Of course, if I write (even in my fiction), people in my life are going to appear because they are most of what matters to me.

I know they respect my need to express myself through words, but I never want to sacrifice their trust in me or their needs for that self expression.

Hmm. Perhaps I really should just quit with these pesky words and return solely to visual art instead.

That all my family survived the destructive, unpredictable tornado of August 7th, 1979

TORNADO: Part One, Whirlwind

I wanted to mark the anniversary and write an interview with my parents. It was too late to speak to my grandparents about their recollections, as I only started this blog after they both passed away, though I had spoken to them both about it many times before.

It’s raining as I type these words, hard and noisily just now, and I imagine or I try to. One of those things I can’t really fathom without experiencing how it must have felt firsthand, which I am lucky and hope I never have to do. I am just glad my father survived to tell the tale, or else I wouldn’t have been here to be able to help him tell it in the first place.

For that moment that I often find myself awake to witness, at three or four in the morning, when the sound of the nighttime crickets and the start of the early morning first chirping of the birds intermingle with one another.

If I am unable to sleep in those moments, at least I am awake and tuned in to hear such a natural thing as that.

For a nephew who just turned four.

We had spaghetti and meatballs (noodles) and cake (which I received a big bite of just icing when finishing). We may need to whisper Happy Birthday for his fifth birthday, if he doesn’t grow out of the shyness he had this time when we sang out loud.

I will never forget his birthday, as I was there the day he first arrived.

It was a very special day for me for so many reasons.

Read here to find out why.

Memorable. Unforgettable. Incredible.

For a fierce game of dinosaurs.

This includes “THE DEEP UNDERGROUND” from my nephew’s favourite movie “The Land Before Time”.

The underground, in this case, is the front entrance which is down two steps. The Sharp Tooth is inevitably pushed off the edge by Mother, Littlefoot’s mother with the long neck.

For a chunk of days of rain, whether the weather is a loud, hard downpour or a sprinkle off and on throughout the day. We needed the rain, something to break up all the intense humidity.

For a gift from my father. I know he feels bad when he hears how much I miss the vision I used to have, but he still brings me markers when I speak of wanting to revisit all that anyway, despite my worsening sight, an activity which will likely bring back both joy and sadness all at the same time.

I heard my favourite scented markers from childhood, a somewhat brighter time in my life, visually I mean.

Mr. Sketch

Well, thanks to

Lizzi

and

Ivy,

I have been thinking about colours, flowers, rainbows. I am going to try art, which I have been aching inside to give myself another chance to do for a while, but kept on putting it off because it will never be what it used to be for me again.

I sat down with my pack of colourful markers this afternoon, with a piece of braille paper because it is the perfect thickness, at my kitchen table because the light from the window there is the best place for maximum brightness.

Well, it was frustrating some moments and at others I had hope, with the slightly damp texture these particular marketers leaves behind and with the correct colour of marker fitting to the corresponding scent all coming back to me. I want to make something for Ivy’s Art Challenge and maybe involving 10 Things of Thankful because it has been so important for bringing light and colour back into my life these last fifteen or so months of extra reminders of the things I have to be thankful for.

That my five-year-old niece has a love of art and colouring and drawing pictures.

She got that from my brother I’m sure, her burgeoning artistic talent, but she reminds me a little bit of myself at her age and I feel somehow comforted by that notion.

I know she will continue to create beautiful things because that’s just who she is and where she comes from.

For this old favourite of mine from fifteen years ago.

Perfect Day – The Cranberries

This song perfectly incapsulates my feelings about the August birthday boys in my life. I celebrate their birthdays and I selfishly want them to remain young like this and never grow old, as Dolores sings, but I know that’s neither fair nor plausible.

August, within ten days of each other but spanning a year apart in age, are my two amazing nephews. They have inspired these songs today.

It’s the two boys and my niece who inspire my attitude that all art is open to me because I’ve seen the amazing things that come from their imaginations and my own imagination is the one thing I haven’t lost. They help me never to forget that.

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FTSF, Guest Blogs and Featured Spotlights, TGIF

Sailing Away and the Bee Tree, #TGIF #FTSF

I hear it, that far off humming from the other side of the driveway.

What’s that noise?

My family start hinting at the origin, somewhere nearby, but not too near.

We’re standing around, in the driveway, with the fresh cut scent of grass in the air.

“Ooh, don’t tell Kerry,” they say, dancing around something they see and I don’t. I know them pretty well and can probably guess.

***

This was no Winnie the Pooh cartoon. I remember his song about being a little black storm cloud, as he attempted to disguise himself in mud, so he could sneak honey from a tree, attempting to avoid detection by the swarm of bees.

This time, in this driveway, it was a favourite tree of my mom’s. The late afternoon warmth of the day made conditions just right for pollination.

This was a nightmare of mine.

Not pollination. I think that’s cool and all, for the bees, but it took some coaxing from my sister, to get me to walk close to the Eastern redbud tree, as the closer I came, the louder the sound of the bees. They were clearly occupied, more concerned with the flowers they were working on, and weren’t about to stop their very important duties, to all land on me, like they would if I were dreaming.

***

I back away hastily, nevertheless, just in case. The sound of a swarm of bees makes me shrink back. That sound gets me moving, faster than most anything else I might hear. Not the fault of the bees at all.

***

Yu know that fear you have that something in your own life will inevitably reoccur at night, in your dreams?

Of course, we don’t normally control that. The things, at least for me, which I fear could show up in my dreams at night never show up, just because I think they will. Always, it’s a surprise, for good or ill.

***

This week’s Finish the Sentence Friday post is about

dreams

and

dreaming.

***

I need to start a dream journal. If I were to do this, I would need to write them down the moment I wake up, because within minutes the memories fade, unless extremely vivid. I have had some of those over the years, of which some really crazy stories could have been written. Ah well.

**I’ve dreamed about clowns. *Shudders

**I’ve dreamed the standard one where I’m being chased.

**I’ve dreamed I was stuck at the bottom of the ocean.

**I’ve dreamed that I moved out to the west coast of Canada, to fulfill my long held dream of studying marine biology.

**Some good and some not so good dreams, for sure.**

**I’ve dreamt I was in an old house, one that smelled rancid, and when I awoke I could still smell it on the insides of my nostrils.

The putrid smell in the dream carried on into my day and I still get that happening on occasion. A strange mix-up of senses, experience, and consciousness.

***

To round off this week’s answer to the sentence I thought I would address one of the most commonly asked questions about blindness:

Do I see when I dream?

I don’t suddenly drift off each night and enter a totally sighted realm. I believe, most times, the brain can’t simply create images where none have been known. I could be wrong, not wanting to speak for all who can’t see, but it also depends on if you’ve been totally blind all your life or not. I have had more sight previously. Perhaps my brain can use a recall method, but mostly I don’t think about it. I can’t even really give a totally clear and concise answer.

You’d think it should be easy to say, but it’s not so black and white. More different variations of grey.

When I sleep, I dream in, from what I can recall, faded light. I think, as my sight seems to be less and less, that element of my dreaming hours becomes less and less important. I like the break I usually get though. In my dreams, I don’t worry about being treated differently. I don’t worry how I’m going to get somewhere, or if I have someone’s arm to guide me, or if I’ve suddenly ended up without my white cane. I just don’t care and, I must say, that break from reality is the best part of dreaming, no matter what I see or don’t see while I’m in the midst of it.

***

This song came on in a restaurant where I found myself eating lunch the other day.

Sailing – Christopher Cross

While I was sleeping, I dreamt his song. I like it. It takes me away somewhere when I hear it, sort of like a beautiful and a peaceful dream should.

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