Super Week, #FTSF

I think many may struggle, as I know I did, with coming up with something for a sentence starter such as the one this week.

I know I’ve recently stated here that I know very little about Superwoman or Superman for that matter. Could I relate enough to write anything at all?

I do know that I’ve always wished I could fly. Not fly like we humans do. I’ve done that, well I’ve flown as a passenger (have never flown a plane). I am actually afraid of flying in a plane, but my other dream is to travel more, so I work through my anxiety. After all, it is freaking wildly amazing humans have figured it out like we have.

I’m talking more like a bird when I say fly. I want to feel the wind in my face, hear the rushing in my ears, feel the pressure and resistance in my limbs as I soar up above the trees and the houses. Always a little jealous of those geese as they fly overhead.

Of course, the other thing I’d like to do would be to apparate, like in Harry Potter, as then I could get places on my own, even with the limitation of sight loss. However, that is for another future post.

🙂

As I cannot, I had to think why I would consider myself “super) and I thought back on the week that just was.

I felt like superwoman when I wrote my first lyrics…lyrics that were then promptly taken and added to a background of music and sung by a talented singer.

I had a good week. I had my first official violin lesson, wrote my first song, and had an interview I conducted (on the subject of a male’s perspective on feminism) syndicated on Good Man Project, to round out the week.

Even then, I could still end up feeling like I didn’t do enough with this most recent seven days. I hate that.

I did what I didn’t think I could, by producing a note on an instrument I adore.

I did what I never thought I could do, by sharing a feeling through the words in a song, now being set to music.

I want to share my message of feminism, equality, compassion and I found a way to get that message just a little bit farther than I would have otherwise.

I feel how slow going it is to even learn one simple song of Twinkle Twinkle, but then I realized how writing is an art which requires just as much time to learn and grow and develop skill and style as violin or any other musical instrument. I am still working on all those things with my writing and I will be for a long time, just as I still have to master an instrument I’ve loved for a long time too.

I’ve been admired for many things, things some might classify as “Superwomanish” in my life. I often don’t think of my disabilities that way, as they are just my normal, everyday life, but this whole thing is subjective anyway.

I guess I held back because I found the idea of equating myself to “Superwoman” as incorrect or wrong in some way.

I can’t speak of the family (husband, children, household) that many women manage with grace and patience every single day. My mother did it. My sisters do it. Many of the writer/bloggers I read and admire do it too.

I can’t speak of some big, important, necessary career that so many take pride in.

And so I guess I feel like Superwoman when I accomplish something, a goal or skill I’ve wanted to take on and tackle, and I did that this week.

Yet, I didn’t know what to say, but I suppose I can’t let that stop me, and so here I am, to tell you about the week that was.

🙂

Hope it’s okay that I took this image from Superwoman Lisa,

go here,

to check out her beautiful brand of wisdom.

This has been a post for the Finish the Sentence Friday prompt, brought about by

Collecting Smiles

&

Finding Ninee

Uneasy Me, #FTSF

“It’s not easy to be me.”

Superman’s Dead (It’s Not Easy) – Five For Fighting

Superman was always one of the last of the superhero stories I would choose. I was always more of a Batman girl. I don’t know how many Superman films I watched there for a while, but none of them stuck with me as being particularly interesting. I didn’t understand the whole backstory or even the definition or importance of kryptonite.

That’s why, when I read this week’s FTSF prompt, I froze in my tracks, unsure if I would write anything at all, have anything to link up with.

I looked up the meaning, refreshed my memory, but still drew a blank. Kryptonite meaning, basically, weakness and still I was coming up with nothing.

Come on, I nudged myself over the last few days. You’ve got to have a weakness. What is it? What would be the main one?

I am working on writing my memoir. It seemed like a perfect moment in time to start again, as I think back on the twenty years, exactly, that I was diagnosed with kidney disease as a frightened twelve-year-old.

Since that point I have been called brave and inspirational many many times. How did I do it? How was it that I managed to survive feeling so sick, dialysis, and surgery to have a transplanted kidney from my father?

I am not as strong as all those well-meaning family, friends, medical professionals, and acquaintances assumed. I don’t want what happened twenty years ago, what was only really a few years out of my whole life, to define me forever. I try to get past it, really, but I keep going back to it and writing my story down is a big part of that.

Sometimes I wonder if that’s even a good idea. Maybe I should just move on and look ahead. That’s what I am doing, but then I turn my head round and admit to myself that what happened during those rough months, all those years ago now, that stuff left its mark on me and I can’t honestly say I don’t look back in reflection.

My kryptonite is the past. It’s the affect a physical illness had on my body, my mind, the girl I was trying to grow into.

It influences my body image even now, as a grown woman.

When I was treated I was clearly under-weight and malnourished. I was lacking proper vitamins and minerals, things the kidneys are supposed to take care of.

I stayed stable on dialysis and I had the transplant. This got me back to a healthy state, but I went from being barely eighty pounds, maybe less, at age twelve. My puberty was hugely disrupted. I was not growing.

Once I had a working kidney, one being all you technically require, I began to gain weight. I gained weight as a side effect of more than one of the medications I had to go on.

I remember standing on our bathroom scale, realizing I was ninety-two pounds, and starting to panic. I wasn’t relieved I was gaining. I was horrified.

I was weighed every time I went on and off the dialysis machines. This was necessary, to monitor my fluid loss and gain, but it played havoc with my head. I was shown to focus on weight, at a time I shouldn’t have had to, when only months before I was pushed to put on the pounds.

Now, the weight was coming on abnormally quickly and I was visited by dieticians who went over the list of foods to stay away from if I didn’t want to gain even more weight.

So now I like my chocolate but I also like my fruit.

At Easter I love chocolate eggs, but come summer I go nuts eating strawberries, peas straight from the pod, peaches, and apples for weeks and weeks on end. They are really all I want to eat.

All in moderation. Diets don’t work. Or avoid some foods entirely?

I can list all the excuses in the book as to why exercise and weight loss hasn’t been easy for me, but I know I am not alone. I must keep plugging away at it, remaining mindful of it. I don’t want to make excuses, to use chronic pain or my blindness as reasons why I am now gradually gaining weight over time. I only get my kidney checked twice a year, but they still take my weight at the start of these appointments, and I am forced to look back and try to recall what the scale read six months before, to keep track, somewhat, of where I’m at. So although I don’t keep checking my weight on my bathroom scale every morning, I’m made to be accountable, every time November/April rolls around.

Yes, the meds have decreased, things are more moderate now, but the damage is done – floodgates have been wide open for twenty years. I deal with something so many people deal with, I know. Emotions also play a part and my psychological state becomes a factor.

Can I keep things under control? Can I not let the events of my past rule my present or influence the future?

My kryptonite are the stretch marks I’ve had (not from a pregnancy, like most women my age), but since I was on high doses of prednisone, when I was fourteen years old. I can feel the clear visible evidence of how it all began and I feel weak because I can’t keep things in balance as much of the time as I’d like, but that’s why I write about it all. I hope that part doesn’t make me weak. I don’t feel all that brave or inspirational and I don’t want the weaknesses I live with to bring me down. They do serve as reminders of the scars of my past and the toughness, as they’ve driven these bits of my past in deep.

Now I’m off to go eat a mango and some chocolate.

🙂

The brains behind this week’s FTSF is

Lisa Crisp Witherspoon

of The Golden Spoons.

Kryptonite – 3 Doors Down

And, as always, Kristi of

Finding Ninee.