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TToT: 2020 and Feeling Good As Hell #JusJoJan #10Thankful

Once again, I have been absent from this
Ten Things of Thankful #10Thankful
exercise in gratitude and I did mean to join in more, but life got in the way.

I am thankful for
Kristi
and her taking on the TToT and for making a lovely effort to ensure accessibility is as common as possible, even with all the things that are out of her control.

I will go back a few months to start things out – back to 2019.

I am thankful I got to attend an old friend’s wedding back in November.

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It was wonderful having a celebration with good friends and family too. The event wasn’t too big and I danced as much as possible.

I am thankful for a fun few days with friends (both old and new) at Social Media Week Toronto, only a few days after the wedding.

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Caption: Kim, me, Amy, and Victoria

It was a nice getaway to Toronto and it was cold, mid November, but I was mostly thankful for the slight warm up but still cold enough, on my last evening in the city, with the most delicate snowflakes falling as we walked to find some dinner before I had to catch my train home.

I am thankful for the chance to be a guest on a podcast about culture called
Culture-Hacking – “Seeing the World Differently”.

I am thankful for a fun-filled Christmas season with family.

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Caption: I’m with my nieces, watching The Simpsons on the tablet, with the tree in behind us. (Hmm, did I end up posting this photo more than once?)

I am thankful for a speaking gig I had lined up for January.

PROBUS Canada

It was good to get to speak to a room of women from the older generations, to share a bit about my blindness experience, including all the travel I’ve done and some of the obstacles I face, not to mention informing them of the existence of the
Canadian Federation of the Blind
here in Canada in 2020.

That website is where you can go to read the latest issue of The Blind Canadian, November 2019 where I am newly an assistant-editor.

I am thankful I had a meeting with the woman/writer I’m planning to walk the Thames River path with this coming September and with my friend and travel agent who is helping us plan the month long adventure ahead.

I am thankful for this new audio podcast platform.

anchor.fm

We may use it to record and share daily updates as we go and I have started a profile there and have recorded my first two episodes. I will probably make these, as an audio version of my written blog, capturing the months ahead and all the planning and preparing I’ll be doing. It’s a cool site/app I can even add music to my recorded voice and I can do it without having to depend on my audio expert brother all the time. I think this one, it will be nice to be able to do it myself.

And I am thankful, last but certainly not least, for a mostly positive result on a blood level that had jumped in recent weeks for unknown reasons.

I have lived by that number for more than 20 years, creatinine to measure my transplanted kidney’s excellent function. I don’t remember it being more than 70-80 in years and suddenly I received a call that it had jumped up to 110.

On re-test, it did go back down, not down as far as I’d necessarily like it to, but 100 – and I will take that, for now.

I tend to lean into my more negative side with these sorts of things, but the doctor wouldn’t commit to the idea that my kidney is slowly declining. He said, at this stage, it could be that, but maybe 100 is my new baseline level. It happens and there’s no reason, at this time, to think anything further to be the case. I am getting re-tested in April and going back again in June for my once-a-year, usual doctor’s appointment.

But he did seem quite sure I’d be walking in England by September and that nothing renal related would get in the way of that. (Still…one more reason I want to do this walk, to help raise awareness, and to explore the world while I have the chance.)

I am thankful, extra thankful, to that hospital and the transplant outpatient program and the doctors that keep such a good eye on things for me. I am lucky to be living where I am living, as I hear more and more stories of the medical costs in the US that people live with.

To start 2020 somewhere, I was glad to participate in an entire month of blogging with prompts coming from certain participants of the yearly activity, participants such as
Wendy
and the blogger to run the whole thing. Thanks
Linda,
for getting my year started, with writing and blogging and your Just Jot It January #JusJoJan challenge, so I can at least begin somewhere for the year.

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Caption: a Just Jot It January completion badge

I am about to celebrate this blog’s six year anniversary and my thirty-sixth birthday – 2020 and I say “bring it on!”

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Uneasy Me, #FTSF

“It’s not easy to be me.”

Superman’s Dead (It’s Not Easy) – Five For Fighting

Superman was always one of the last of the superhero stories I would choose. I was always more of a Batman girl. I don’t know how many Superman films I watched there for a while, but none of them stuck with me as being particularly interesting. I didn’t understand the whole backstory or even the definition or importance of kryptonite.

That’s why, when I read this week’s FTSF prompt, I froze in my tracks, unsure if I would write anything at all, have anything to link up with.

I looked up the meaning, refreshed my memory, but still drew a blank. Kryptonite meaning, basically, weakness and still I was coming up with nothing.

Come on, I nudged myself over the last few days. You’ve got to have a weakness. What is it? What would be the main one?

I am working on writing my memoir. It seemed like a perfect moment in time to start again, as I think back on the twenty years, exactly, that I was diagnosed with kidney disease as a frightened twelve-year-old.

Since that point I have been called brave and inspirational many many times. How did I do it? How was it that I managed to survive feeling so sick, dialysis, and surgery to have a transplanted kidney from my father?

I am not as strong as all those well-meaning family, friends, medical professionals, and acquaintances assumed. I don’t want what happened twenty years ago, what was only really a few years out of my whole life, to define me forever. I try to get past it, really, but I keep going back to it and writing my story down is a big part of that.

Sometimes I wonder if that’s even a good idea. Maybe I should just move on and look ahead. That’s what I am doing, but then I turn my head round and admit to myself that what happened during those rough months, all those years ago now, that stuff left its mark on me and I can’t honestly say I don’t look back in reflection.

My kryptonite is the past. It’s the affect a physical illness had on my body, my mind, the girl I was trying to grow into.

It influences my body image even now, as a grown woman.

When I was treated I was clearly under-weight and malnourished. I was lacking proper vitamins and minerals, things the kidneys are supposed to take care of.

I stayed stable on dialysis and I had the transplant. This got me back to a healthy state, but I went from being barely eighty pounds, maybe less, at age twelve. My puberty was hugely disrupted. I was not growing.

Once I had a working kidney, one being all you technically require, I began to gain weight. I gained weight as a side effect of more than one of the medications I had to go on.

I remember standing on our bathroom scale, realizing I was ninety-two pounds, and starting to panic. I wasn’t relieved I was gaining. I was horrified.

I was weighed every time I went on and off the dialysis machines. This was necessary, to monitor my fluid loss and gain, but it played havoc with my head. I was shown to focus on weight, at a time I shouldn’t have had to, when only months before I was pushed to put on the pounds.

Now, the weight was coming on abnormally quickly and I was visited by dieticians who went over the list of foods to stay away from if I didn’t want to gain even more weight.

So now I like my chocolate but I also like my fruit.

At Easter I love chocolate eggs, but come summer I go nuts eating strawberries, peas straight from the pod, peaches, and apples for weeks and weeks on end. They are really all I want to eat.

All in moderation. Diets don’t work. Or avoid some foods entirely?

I can list all the excuses in the book as to why exercise and weight loss hasn’t been easy for me, but I know I am not alone. I must keep plugging away at it, remaining mindful of it. I don’t want to make excuses, to use chronic pain or my blindness as reasons why I am now gradually gaining weight over time. I only get my kidney checked twice a year, but they still take my weight at the start of these appointments, and I am forced to look back and try to recall what the scale read six months before, to keep track, somewhat, of where I’m at. So although I don’t keep checking my weight on my bathroom scale every morning, I’m made to be accountable, every time November/April rolls around.

Yes, the meds have decreased, things are more moderate now, but the damage is done – floodgates have been wide open for twenty years. I deal with something so many people deal with, I know. Emotions also play a part and my psychological state becomes a factor.

Can I keep things under control? Can I not let the events of my past rule my present or influence the future?

My kryptonite are the stretch marks I’ve had (not from a pregnancy, like most women my age), but since I was on high doses of prednisone, when I was fourteen years old. I can feel the clear visible evidence of how it all began and I feel weak because I can’t keep things in balance as much of the time as I’d like, but that’s why I write about it all. I hope that part doesn’t make me weak. I don’t feel all that brave or inspirational and I don’t want the weaknesses I live with to bring me down. They do serve as reminders of the scars of my past and the toughness, as they’ve driven these bits of my past in deep.

Now I’m off to go eat a mango and some chocolate.

🙂

The brains behind this week’s FTSF is

Lisa Crisp Witherspoon

of The Golden Spoons.

Kryptonite – 3 Doors Down

And, as always, Kristi of

Finding Ninee.

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TToT: Vanilla and Peppermint – Ringing in the Season, #10Thankful

“You look like you’ve been run over by a steam roller and left on our doorstep.”

–Dr. House

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No, not that Dr. House. The real Dr. House is alive and well and a nephrologist, a kidney transplant doctor in Ontario, Canada.

I feel like I should add, before I go any further, he is nothing like the grouchy, dysfunctional, fictional doctor people can’t help mentioning when they hear the name.

The above quote is the first thing he said to my brother, when he visited him, on his Sunday morning rounds. A real word mincer.

TEN THINGS OF THANKFUL

The season has begun. Whether it begins: (in retail) immediately after Halloween ends, after November 11th (as is the respectful way), at Thanksgiving (for Americans), or on December 1st is really up for debate.

All I know is: I attended my local Santa Claus Parade, there’s snow on the ground, and the Home Alone movies are being shown on television.

Christmas is on its way.

Ten Things of Thankful:

For the common cold.

Okay, well I’m thankful that that’s all it was for my brother.

He was unwell at the beginning of the week. He was dehydrated. He had been sleeping somewhere between 16 and 20 hours a day, every single day the week before. He hadn’t been to school in days.

But once he was where he needed to be, in hospital, they began to assess him. They gave him intravenous fluids and antibiotics, plus a specific treatment for

CMV.

CMV is more common after transplant, but he is more than two years out from his. It took a few days to test for, but he did not have it. once they discovered he didn’t, when the fluids had a chance to work, once his blood pressure wasn’t so low, and once he could eat again he was released. Such a relief. Transplant patients just must be careful. My brother’s case is proof that even a common cold can cause a lot of problems.

For vanilla bean everything!!!

One thing I love about the start of the Christmas season is my favourite scents.

I stocked up on everything vanilla bean at

Bath & Body Works.

No photos or words can do it justice. If I could send the scent of my vanilla bean shower gel, hand lotion, fragrance mist, hand soap, and lip balm to all of you, through the screen, I would.

🙂

Or better yet, the products themselves. They make excellent Christmas gifts.

For more red.

My favourite scent may be vanilla, but my favourite colour is red. I have been working on finding red appliances for my kitchen.

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This week I found a microwave that would fit the theme.

For some wonderful praise of my writing.

It was my second time at the writing group I’ve started attending and this week’s mystery object, fittingly, was someone’s ticket stub for the Eiffel Tower.

I like this group. Wasn’t sure what exactly to expect, but I like that I am put on the spot. We all are. We find out the answer to the mystery object question and, within minutes, we’re all writing furiously.

We have about an hour to come up with a piece of writing, based on that object. This week I brought my Braille Display and was able to read what I’d just come up with.

Silence. Crickets, if there had been any crickets in the library.

🙂

And then someone in the group told me they were silent because they were still imagining the scene in their mind. It was one comment, but it meant a lot to me to hear it.

For a Saturday afternoon writing workshop.

More writing. Yes, I could spend lots of money on classes and workshops. Seems, these days, like every writer or editor teaches them. I’m sure it’s a good way to make money, as there isn’t always money to be made in literature.

I went on a whim. It was a workshop on dialogue. I learned things, as logical as they are and I should already know them, and got to share my writing with an old guy who is working on his own novel, crime I think he said it was.

These things, whether I learn a lot or not, are great places for me to practice writing and meet and hear from other writers, all at different levels of writing in life. It gets me out of my shell and feeling a little less afraid.

For snow.

In this case, for the first real snowfall, accumulation of snow for the season.

I love that smell. Maybe someday Bath & Body Works will figure out how to bottle it, but nothing will ever compare to the real thing.

I wish it wasn’t so cold though. I love to run my hands along a railing covered b snow. Unfortunately, my fingers won’t tolerate the soft, powdery texture for long. Gloves just cover up its wonderfulness.

For one cold Saturday evening family activity to ring in the holiday season.

The Santa Claus Parade was a favourite holiday ritual of mine growing up. We’d get our spot, all bundled up, and watch the floats slowly pass, with their Christmas lights, music pumping from loud speakers, and all the kids on the floats, yelling or singing.

And then always return somewhere warm and be thankful for heat all the more. I know I always was. And was again last night.

Well, so what if the parade from two years ago had us out in hardly a coat at all. This year, with the blankets, hoods, and gloves was better. It started out with rain, but by the end of the parade the snow was falling steadily. It had to be shook from our umbrellas.

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My nephew thought, upon hearing the first sound of sirens in the distance, that we should hurry up and run. He’s still figuring out parades and Santa Claus, for that matter, but I hope he grows up with as much wonder for all these traditions as I did.

For my trusty little iPhone 5 and for the fact that it still works.

I “may” have dropped it, a short drop, after I lost use of its original case. It was a short drop from the porch swing, onto the porch, but it still operates.

However, if you were to shake it just hard enough, a shifting sound inside the phone would make things seem worse than they apparently are.

Every time I receive an email though, the sound it makes to notify me causes the phone, if I am using it at the time, to reverberate throughout. It is a strange sensation, if I happen to be holding it at the moment, and, let’s face it – I’m holding it most of the time.

😉

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For a book review.

After the Scars #bookreview

A friend, writer, and blogger read my short story and the anthology it is in and wrote her review on both.

I haven’t heard a lot of feedback, so this was important, I believe, for me to grow as a writer.

She also wrote a post, on one of her multiple blogs. This one,

3 Writers Dine Together

is a lovely summary of our very first in-person meeting in Toronto.

For my fellow Lord of the Rings nerds, especially when they’re Stephen Colbert.

No One Confuses Smeagol & Gollum On Stephen’s Watch

The man makes some excellent points and uses humour to make them.

🙂

And…on that note…

Have a very Happy Thanksgiving to all my American friends and let it snow, snow, snow!!!

“November-with uncanny witchery in its changed trees.”

–L.M. Montgomery

Yes, I know I include a lot of Lucy Maud Montgomery quotes in these TToT posts, but the woman had a way with words.

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TToT: Do Or Die – Mercy! #10Thankful

“Writing and reading to me is synonymous with existing.”
–Gertrude Stein

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What a difference a week can make.

Last week was the perfect autumn weather and this week all I keep hearing about is snow.

Last weekend the Toronto Blue Jays were not expected to be in the game for much longer and this week they still have a chance.

TEN THINGS OF THANKFUL

I seem to remember something about a book of rules for the TToT and there’s one of those for baseball, not that I understand it, but more about that later.

It was a difficult week, in some respects, but only because I am finally putting myself out there, my writing and myself, and receiving feedback. This translates into criticism and that can be difficult to take sometimes. Doesn’t mean it isn’t worth it.

Ten Things of Thankful:

For my immune system.

Mine works for me. Okay, so I may be singing a different tune come the middle of winter, but at the moment I think all’s well.

I have been around several sick friends and family in the past month and I just assumed I would catch their colds, etc.

I haven’t. I have a lower immune system, as a transplant recipient, and it can seem to permit multiple colds each winter, every year, but it is unpredictable. I can’t predict when or if I’m going to get a cold.

I am visiting a friend in Toronto tomorrow and her niece is there recovering from a bone marrow transplant. As long as I don’t jinx myself and come down with something in the next twenty-four hours, I will be happy and thankful. Not to mention, my immune system hasn’t decided to completely attack my father’s kidney, in nearly twenty years, so that’s something to be grateful for.

For a delicious cup of coffee, some relaxing Lorde inspired tunes, and a couple of hours at the salon.

Portishead

The coffee and the half hour I sat there, listening to music playing and the hustle and bustle of my cousin’s salon, while my hair had foils in it and waiting for the dye to do its thing made for a most relaxing break.

For the chance to feel like I was dressed up and with somewhere to go for the evening.

For the deliciousness that is movie popcorn.

Who’s with me?

For a totally eye-opening documentary experience.

“Our voices are our most powerful weapons.”

I went to see He Named Me Malala and I found it to be every bit as inspiring and moving and sweet and real as I thought it would be.

This film needed to be made and it needs to be seen around the world. It makes me cry, but it forces me to be thankful.

For the game that kept Toronto in the running, for the first time in over twenty years.

It was a real rush to know that we had little chance, at that point, but that I never lost faith. It ended up being one for the record books, and I don’t pretend to understand all the little ins and outs of the game and its rules, but I know the tension and the energy felt, sitting there watching.

We were losing two games in a five game series. Nobody thought we would go on to win the next three, but I believed.

What is it about rooting for one’s sports team that can cause such strong feelings and stress?

For my white cane.

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October 15th was White Cane Day or White Cane Safety Day. I feel like a lot of these days are more US based, a lot of the times, but it doesn’t really matter where or what day.

I will admit that I have had my battles with the white cane. I have truthfully felt embarrassed about it, like a little brother or sister, always tagging along, but being forced by a parent to let them join in the fun.

Yeah, I’m working on getting over my issues because without it, I would be in more danger and would have been left without the means to get somewhere, anywhere, unable to see my surroundings well enough. I can’t deny the importance it has played and must play to me in future.

For my first Internet radio show interview.

Traveling With the Speed of Sight

I think I’ll stick with writing my blog, but it never hurts to try something new.

For you never knows’.

I did not expect a lot of people to listen to that interview, honestly, but all it takes is one.

One of the writer/editor friends I’ve made online and on Facebook just happened to be listening and immediately messaged me after the interview ended.

I admire her and her work so much and her online publication is at the top of my list of places I am determined to see my writing on.

Full Grown People

For the good and the bad that comes from putting myself out there.

Sure, this week I received some hard to hear criticism, but I also received some personal invites to submit my writing and to do more guest posts.

This, to me, would be considered a week of triumphs.

The Canadian federal election tomorrow could be the change we need, but there is a bit of a clash of events happening.

Elections Canada vs Jays Fans On October 19

Oh, don’t we Canadians have problems in our country?

😉

At least we’re aware of the issues that are important to us and as long as we know our priorities, right?

Mercy Mercy Me

I’ve been inspired, again this week, to not be silent, in whatever way that might be.

I love the female voices I’m hearing lately: both young and old.

Do I look scared to you?

You tell em Hazel!

“There’s a moment when you have to choose whether to be silent or to stand up.”
–Malala Yousafzai

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15, 20, 25, #SoCS

“Is there anything to feel. Is it pain that makes you real. Cut me off before it kills me. Long way down. I don’t think I’ll make it on my own.”
–Goo Goo Dolls

SoCS

Another Saturday has come round and that means it’s time for another Stream of Consciousness:

http://lindaghill.com/2015/10/09/the-friday-reminder-and-prompt-for-socs-oct-1015/

I need as a part of my week.

Celebrating!

I guess that’s kind of like “Winning!” and Charlie, wherever you are, if ever there were stream of consciousness, you were it.

I am celebrating a few things this week. First of them is the Canadian Thanksgiving this weekend, where my family come together, eat my mother’s delicious dinner, and have a whole lot of fun and good times. I am certainly winning with this to look forward to.

Perhaps I will write about the events of the day’s celebrating in next week’s SoCS post.

As for other reasons I am celebrating, this week just so happened to be the anniversaries for three important things in my life.

It has been 15 years, this week, since the very first episode of Gilmore Girls aired for the very first time.

I can’t believe how fast time passes me by. Really.

I know many people think this show is irritating, but I was immediately, or nearly so, just so drawn into its characters and premise, from almost the very beginning.

I was glad to see that television could still be original. The writing was snappy and witty. So many references to literature, culture, music, and so many things I did not know, would go right over my head, but these girls seemed to come up with this stuff, like stream of consciousness was could and did come just so unbelievably naturally to them in their everyday lives.

There was just the right amount of drama and fun. The town and its residents were wacky and out-there. I most definitely did not have that relationship with my own mother, could not have had a more different family situation than the Gilmores’. That was the attraction, I suppose.

Watching that show was a way I could bond with a friend, even when I felt like I was losing touch with her and the rest of my world, in all other ways at the time. She and I could still get together and have an all night Gilmore Girls marathon, cup after cup of coffee consumed in her basement, until we both ended up falling asleep in the early hours of the morning anyway.

Back when I taped every single episode on VHS and then began collecting DVD.

Next, going back 20 years and this week in time. The huge Goo Goo Dolls album, “A Boy Named Goo” was released and this rock group was my best wishes/going away/good luck with your kidney transplant gift, presented to me by my seventh grade class, at the party they had for me before I left.

Sure…it was stolen…when my house was robbed…as I found out my transplant had to be postponed…due to a sudden and mysterious seizure I’d just had…but the robbers couldn’t have known, what that CD meant to me, or I’m sure they would have stayed home and lived to rob another day.

Insurance bought back all our stuff in the end, but I loved my present and loved the music.

Speaking of this particular Goo Goo Dolls album…I really first heard their songs on the season six finale of the show that turns 25 this week.

This week in history…Beverly Hills 90210 first aired and this time I was not there, would not be for a few years.

I wanted to write a whole post to explain, to commemorate the value of this show for my life during the 90s, but then I fear sounding frivolous and silly. How could some glam and superficial show about privileged teenagers, living in Beverly Hills, how could this mean something so great?

Maybe you don’t ask, but I write about it here, think stream of consciousness is the perfect time to write about it.

My sister caught on first, but we were both still quite young in the early to mid 90s. We weren’t prevented from watching the more adult type shows.

Summer episodes, at the Beverly Hills Beach Club were the summer later, after the show aired on Fox. It was then that it took off and the phenomenon started.

My decade would soon be shaped by 90210 and its 10 season run. I started to watch the recorded episodes my sister had, braille labelling the VHS tapes and watching the shows, over and over again.

When I would eventually get sick, in 96/97 I would watch to escape, to imagine I was a beautiful, blond bombshell with a credit card and a boyfriend. Yes, I use the word bombshell. I had the posters and the dolls. Barbie became Beverly Hillized. I was stuck in a world between little girl playing with Barbie and the grown world of nighttime dramas. Every Wednesday at 8:00 I would watch, I would record. I would learn the lines by heart.

Kelly’s mother: “What do you want to do?”

Kelly Taylor: “Smell the roses. Maybe ponder the question of why God bothers to give us life in the first place when all he seems to do is fill it with pain and suffering.”

–Kelly Taylor/Jennie Garth

This line made me cry. Over and over, when pain and fear in my own life were at their worst, during the 90s and beyond.

I wanted to acknowledge these three events, for the role they all three played in the significant moments in my young life.

Celebrating a show or an album and its anniversary and poignancy in my life is really celebrating a feeling.

But I guess, now, I’m really just rambling.

Long Way Down

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My Perfect Day

Okay, so I am a week behind on this, but I like this particular writing prompt and wanted to still take my shot at sharing my dream for a perfect day.

“Our theme this week is to write a day in your life where there would be no boundaries and you could do anything you want.”

http://originalbunkerpunks.com/blog-battle-zone-1/

I have been published on this witty, satirical, thought-provoking website, full of writers who want to get the conversation going and who do that very well.

Check me out here.

Then, earlier today

I ended up reading a piece on this site

and I went on to expressing my feelings, which meant criticizing the authors involved in the writing.

They were only being humorous, provocative; yet, due to the news of a two-year-old girl and her father being murdered in Alberta (which could be the inspiration for a more on time response I could write for this week’s prompt), this heartbroken Canadian wasn’t able to see any humour whatsoever.

It made me think about writing and its possible consequences because I was able to have a productive discussion with these writers, after-the-fact, and I wanted them to know why I may have sounded at all harsh. That is not how I usually am. Just a bad day.

Thank you,

Original Bunker Punks,

and now…onto my perfect day.

***

Something seems odd about this day. What could it be?

Oh yeah, I am pulling into my driveway. Yes, me.

For years it was me, in the passenger seat, the passenger. Shotgun was where I was designated to be.

Now I am driving. All those self driving cars in the works, for so long, well they are out and they are becoming the norm. Sure, it could lead to some sort of science fiction nightmare, cars becoming intelligent and driving their riders into trees and over bridges, but I overlook this fear because things are perfect now, right here, as I don’t have to have sight to operate a motor vehicle.

I enter my house and notice a suitcase sitting out, ready for packing to commence. We are soon off on another trip.

We met at TBEX, a travel expo I finally made it to a few years back. It was in Honolulu, my dream spot. I’d always wanted to visit there and this travel writing/blogging conference was the perfect chance. Two birds with one stone as they say.

I didn’t expect to meet him, but, I must admit, I hoped it would happen, sooner or later. I am comfortable with some independent travel now, after a lot of practice, but it’s still nice to have someone there to experience the world with.

He is a photographer and knows about technology and websites.

I may be able to drive a car, but I haven’t wished hard enough for perfect sight, at least I guess not. Huh.

If I had that, I wouldn’t be The Insightful Wanderer, as the whole position of my travel blog would be altered. I am insightful, just as I am, but I will never stop wandering. It does not have to be a bad, lost, aimless way to go through life.

I struggled to learn about my blog and website, for a few years, but am glad I can leave that responsibility to him.

I am still The Insightful Wanderer and Her Headache. I am KerryKay.com too. Bought that domain ages ago, as my writing needed my real name to be known and featured more prominently.

Branding is a strange thing, but I have embraced it and now am known as three brands in one.

I haven’t given up on my writing, memoir and literary mostly, because fiction is a beautiful thing, but not where my natural talents are.

I walk past one of the many bookshelves in my house, and there are some of my books there, a few are fiction. I had modest success with that, beginning with the anthology I was accepted into, my first real big break really.

I have written three books and am currently working on a fourth, two memoir and two fiction: Piece of Cake, Connecting the Dots, Till Death, and Out Beyond the Hedgerows.

The first two are memoirs about my life, struggles, with disability, being a visually impaired woman in a mostly sighted world.

The third is a fictional story about how death and loss affect three different generations of one family.

And the fourth is an historical novel, based on family who lived through World War II.

I did not start to write a string of genre books, ones that get put on Amazon and Smash Words and of which I would have needed to keep on putting out to gain any momentum in the book world. I found my own path to success.

I have books everywhere, which brings me peace and solace when I’ve had a bad day.

It’s so nice to have found a partner who loves travel and we are a team. He takes care of the site and its visual elements, while I write. Writing has its place, but the world is and always will be a visual one.

I think a world of all blind humans is worse than the one where the cars take over, but I can’t say. Science fiction writing is not my area of expertise.

I have checked off many of the items on my bucket list, which brings me great pleasure, but it’s nice to know I will soon have a husband who is committed, not only to me, but to helping me achieve the rest. Life is precious and it goes by like that! We are making the most of every day.

I have broken the record for longest living kidney transplant recipient and the medications have made it possible that this won’t change anytime soon. When I reached my twenty year mark (June 5, 2017) I had a huge party to celebrate and everybody I know came.

In this fantasy, we have not cured cancer yet, but we are actually getting close this time, no fooling.

We’re still trying to decide what kind of a wedding to have and where to have it. Being the travellers we are, a destination wedding is most appealing, but I don’t want to put that pressure on the people I hope will attend.

I want to have it at the hotel in Niagara Falls, the one from my childhood and its precious memories, moving to the closest hotel to the falls for the wedding night. I will finally feel that vibration of the roaring falls through the window of our room.

Maybe we’ll get married on a beach or on top of the CN Tower in Toronto. I loved it up there, the first time I tried it, and a wedding on that ledge sounds strangely perfect to me. After all, isn’t marriage a little like standing on a ledge?

It’s scary but exhilarating. It’s freeing, once you find love and let yourself feel worthy of having and holding onto it.

I can admit, finally after years, that wanting marriage, a wedding, this does not make me weak. I am not some Disney fairy princess, waiting to be rescued. I want a partnership and that commitment is and always has been important to me. I’ve been shown what that can be like, through the examples of my wonderful parents and their parents before them. It’s in my bones, just like writing and travel.

I can make a living from my writing now. I was afraid that was holding me back from finding a guy who could understand, accept me for me, and not let money and pride and the pressures of that get in the way. I am not rich, but I am rich in all that I really will ever need.

I have seen my words in print, in a book, on my shelf and in a bookstore.

I have an advice column which helps people. I can write and offer my advice, which can be a tricky thing to give others, but I know I’ve had more experience with the hard stuff than most. Plus, this side work allows me freedom to travel. I can answer people’s questions from anywhere I might happen to be.

I hand out my business card:

The Insightful Wanderer

http://www.theinsightfulwanderer.ca/

And on the other side.

KerryKay.com

Her Headache

Blog. Writing. Travel writing is my first love because the world is everything. It’s all around us. We are it.

I had to build up my writing portfolio. I had to practice my craft, art as pure as anything.

Now, I can admit that making a reasonable living off of that is no crime. People are paid for all kinds of things, some that might seem less deserving, but that’s how the world works. It’s all about money, for so many, but it doesn’t have to be.

We discuss having children, after we decide on a wedding spot, but the jury is still out on that. I can accept that, even as I know the rules of this writing challenge aren’t at all limiting, because sometimes life means accepting some realities and hard truths.

It’s still open for discussion. Age doesn’t have to matter because I want to freeze this day, in time, so my parents are here and the children currently in my life stay the sweet age they are.

We will deal with the future tomorrow, but let this day and the moment linger.

Anyway, we are off, to make our flight. I will finally get my chance to swim with jellyfish, in their lake home, on the island of Palau in the south pacific.

***

Why do we feel so guilty, why do I, just for speaking up and admitting what it is we want for ourselves?

Why do I feel so selfish and awful to be so open with the things I dream about having, the life I would ideally wish for myself?

Do you ever feel that way?

If you could have an ideal day in your own life, what might that include?

I know I am worth it, I am worth everything, and I want to say so. I know what some people say, about the universe and just by saying it, you are actually letting into your life the things you believe you deserve. This is what I am doing here, today, because I am tired of holding myself back.

Yes, believe it or not, this blog has been me holding myself back, up until this point.

🙂

I have been blogging for a year and a half now and I continue to be myself, to let my self shine through here. That is what is at the essence of Her Headache.

Check these guys out on Facebook.

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Guest Blogs and Featured Spotlights, History, Kerry's Causes, Memoir and Reflections, Piece of Cake, RIP, Special Occasions, The Redefining Disability Awareness Challenge

Redefining Disability, One Year Later: Glad To Be Here, Glad To Be Anywhere

Last week with

The Reality of My Own Perception, Or Something Like It

I can’t honestly say I actually answered the question, but I’ve been told that I made a strange kind of sense anyway.

I will try to give more of a straightforward answer to this week’s question.

But first, you can follow more about this challenge

Here.

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Q: How has medical treatment and technology changed in your lifetime?

A: Blindness is not life threatening. Whether I was born in 2015, 1985, or 1905 – my life would be much different, without a lot of the modern technology I take for granted, but I would have survived.

I have seen an amazing eruption of invention for the technologies I depend on so very much, all within my lifetime of the past thirty-one years.

There is no cure for my sort of blindness. I try to stay away from fad ideas and don’t let myself hope for sight in my lifetime, but then I visit my eye doctor and he assumes I am up on the latest in gene therapies.

I am not.

He said the testing of gene therapy is coming along, which gives me hope for the future.

I didn’t have parents who rushed me all over the world, since discovering my blindness in the eighties, searching for desperate cures. I have lived my life, for the first several years, not really thinking of blindness in any medical terms at all. It was simply a part of me and my brother’s lives, a part of our family’s uniqueness.

I am glad for prednisone. It saved me from going completely blind back in the late nineties, I am sure of it.

In the eighties, technology like what I have now, it was in its infancy. Apple was nowhere near what it is today, for so many visually impaired and blind people everywhere.

The IBM computer we had in our family, in the early nineties, was equipped with the large print I required at that time. My brother could not see even that. His love for technology was, at that time, limited to tape recorders and stereos.

Now he is all about his technology and he has a knack for it. I, on the other hand, struggle with it, but would be nowhere without it.

We did okay, as children, without all the gadgets we now have. We had to lug around a brailler, so heavy it could break a toe or even a foot.

Now, the only thing that could break, if dropped, might be a cell phone.

I suppose there are advancements in research for blindness, but I don’t keep that close of an eye on that, to be honest. The eye, as a whole, has never really interested me. I couldn’t name all its parts, just because I happen to be blind.

I was born in a time before Internet and now I depend on it for so much, it’s scary to me sometimes, to think about ever going back, but I don’t see that being a problem.

What are my odds of seeing a cure for blindness in my lifetime?

It’s not as simple as that. The eye and the brain, although I am no expert, are truly complex systems. There are no simple answers.

I know medicine and technology are closely connected and related. We can’t really have the first without the second, and going forward the two will merge more and more.

As for more seriously life threatening matters, I am lucky there too.

Organ transplant was in its earliest of stages as well, when I was born. I waited until 1996-97 to need dialysis and a kidney transplant. I received both. If I had been needing it, just a few decades earlier, I probably wouldn’t be here now.

That thought first really hit me when we stood in line, for breakfast, at the resort in Florida for Wish Kids. It was our family trip to Disney. I was feeling uncomfortable. I looked all around at the children with deadly cancers and brain tumours. I did not think I should be included there. Then I knew the reality that I was lucky to be there or anywhere at all.

I am haunted by the stories my grandma used to tell me about her baby brother, the great-uncle I never got to meet.

She was twelve when he was born. She was sixteen when he died.

Her and her two older siblings must have loved having a new baby brother, but any joy there would have been did not last long.

I don’t know what the reality was. He was diagnosed with diabetes. I know insulin had been invented years before, but he did not get it.

Was it still so experimental? Was it not widely used? What chance would he have had to live if he had gotten some?

This was a poor, rural farm family. No easy access. His parents didn’t drag him around the world in search of some fad cure. He died at home, surrounded by his loved ones.

My grandma told me about her memories of her little brother, resting out in their front room, on the sofa as he grew sicker and sicker. His small body was building up with toxins. The sugars in his blood were taking their toll.

She’d been dating my grandfather for only a short time when her brother died. She cried on his shoulder, as I am sure the grief must have been terrible.

I don’t know what it must have been like for my great-grandfather and great-grandmother, to lose their baby.

I know what it’s like to feel nauseated and weak. I know how it feels to have horrible abdominal cramps racking you. I believe these symptoms of kidney failure are similar to what it must have been like, what it would be like to die a slow death from diabetes. I sometimes felt that I was doing that. I feel for that little boy, all those years ago, who must have suffered in his last days, on that couch. I can’t even imagine and yet I can, a little too much.

Blindness or no blindness, I wouldn’t have survived if I had been born much earlier than 1984 and I can’t forget that.

Both medicine and technology, whether I like it or not, play an important role in my life and always have.

The medications have improved for transplant. The future for kidney failure, I hope, is looking bright. I would love to get my sight, but I would love even more to never have to go back on dialysis or need another transplant in my life.

At least, this time around, I will have technology to keep me company.

***

I usually do these things on Mondays, but today is the first day of September and I started

The Redefining Disability Awareness Challenge

one year ago today,

Awareness

being my first post. I should complete the entire series of questions by the end of the year.

Next week:

Have recent advancements in medicine or technology had any affect on the way you manage your disability?

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