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TToT: Insertion Follows Playback Like Edit Follows Automation – Full Cold Moon, #10Thankful #IDPD2017

“(UN IDPD) serves as an important reminder that globally there are over a billion people with a disability. This year’s theme, “Transformation towards sustainable and resilient society for all” is especially relevant to our accessibility efforts…”

—Microsoft

More on IDPD2017 from the WHO.

I know when and how to celebrate and I am learning when to stand up and speak up for the important things – overall, a thankful post brimming with gratitude really.

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Photo caption: sisters watching the decorating of their father’s 62nd birthday cake. Talking/smiling. Happy Birthday Dad! XO

Ten Things of Thankful

I am thankful for this artistic girl.

Making works of art out of the task of cupcake decoration.

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Making something, all her own, and loving it.

I am thankful for this sly guy.

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He likes to hide, but there’s a mischievous spirit just under the surface, behind the hands that sometimes cover his face when he’s playing shy to the camera.

I am thankful for such a smart and curious almost ten-month-old sweetheart.

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Photo caption: Cousin hugs.

Her big cousin Soph adores her. It’s sweet to see them interact.

Mya is so interested in everything now. She is so close to walking, as she sees the rest of us doing it and wonders why she hasn’t managed it yet.

She is the happiest baby I’ve seen really. She likes to cuddle, but I can barely keep up with her when she’s on the move, and she’s not even a year old yet. Her mother and I are in no real hurry though.

I am thankful for the missing and missed one at last weekend’s gathering and the kind soul he is.

Old soul is my man Maxwell.

I am thankful he could enjoy his new friend’s birthday party. He got so excited. He was counting down the hours to his first party invitation since starting junior kindergarten in September.

I am thankful for a name given, from a friend, that suited my current state rather perfectly.

**Given what you’ve shared recently, I’d say the cauldron’s selection is a potent one for you. Your Embrace the Darkness name is “Good Night’s Sleep.”**

I had mentioned my sleep/dream issues lately and she generously handed this one to me, gifted me with it as a way to accept and deal.

I am thankful for a visit with one of the few people in my life who understand about living with chronic pain.

She brought me a coffee, doughnut, and a sympathetic ear.

She lives with pain and manages to hold onto her most original sense of humour and I take lessons from her on that front – where I find strength through some good sarcasm now and again, I see she does too.

I am thankful my friend arrives home from Ireland next week for the holidays.

I see her and her daughter just once a year, at this time, and it’s a fascinating way to observe the growing up of any child. They are quite the pair.

A little Christmas shopping with them maybe? I want to get her something memorable, as I only get to see her once a year and it takes her a little time, each time, to warm up to me again. A toy may help, but it can’t be anything too big because it must get back to Ireland.

Lots for them to cram into only a few weeks here back in Canada, with family and friends, but it’s always fun.

I am thankful for such kind and generous parents.

They bring me medication when I go away and forget it at home. They go that extra mile, in so many ways, and are flexible in so many ways too.

They are both unflinchingly generous people.

I am thankful for another job completed and well done, hopefully.

I wrote a memoir piece about our family, from the past, and the early December trips to a giant toy store we’d make as a family.

I turned it into a bit of a back-and-forth with me and Brian. We recorded it and added sounds and a bit of music to the piece.

We are submitting it for consideration on my brother’s favourite holiday Christmas marathon radio show he has listened to for the last three years.

Even the year of his horrible fall, when he was slowly recovering with a brain injury, he listened. The jingle bells accompany the radio guy and he plays some of the most obscure music for the season, to be heard on a New Jersey college station.

In the midst of all the musical pieces, he plays short holiday themed stories, recorded by friends and fans. This year we wanted to be included in that.

We shall see what he thinks when we send it to him.

Adding more…

I am thankful for fresh edits to a piece and that time away so I can come back at it with fresh eyes.

I wrote about the road I took through my Yukon visit and the road I’m traveling down in my life.

I worked on it with one editor and took a few weeks away from it. Coming back now, with fresh eyes, I can consider other editing suggestions and work to make it the best piece it can possibly be.

I just saw a Yukon documentary, playing in theatres for a limited time, and this virtual return to the north of Canada has given me new life to put into the writing.

I appreciate all I learn and how I can improve and grow as a writer, with the guidance of talented people I am lucky enough to get to work for/with.

I am thankful for a movie about the Yukon in my heart since I visited there, even without the DVS working.

It’s funny to have the story, on the International Day of Persons with Disabilities, but again we ran into issues with the audio description service at the theatre.

I was pleasantly surprised to discover they said they had it. A worker disappeared somewhere and came back with two headsets and wireless boxes.

Once inside the we turned them on. One worked and the other did not. The first worked, but it was describing a story that certainly wasn’t that of the Yukon.

We were offered their apologies and two free movie passes, but that won’t address this issue.

I did enjoy the film, despite all that, but a documentary, at least, has steady narration.

I don’t even think about going to an action movie or one with a lot of adventure, not without the proper assistance from a helpful person sitting next to me.

This is no answer. Perhaps not that many blind people go to movies, anymore or ever, but this must be improved upon.

As for the movie, I nearly came to tears more than once, as it brought back sense memory of my days there and my deep feelings about so much of that wild beautiful part of North America.

I am thankful for the day, December 3rd, to highlight disability, not just in North America, but around the world.

Every day is a day to talk about it, without becoming preachy. I feel this is something I have been called on to do, but it is a rather tricky balancing act.

I watched a Canadian national news broadcast and no mention at all was made nor any story aiming to shed light on some aspect of disability and what IDPD means to so many. I know an hour long news program can’t get to everything, but I think this should have been covered in some way.

I plan to do a lot more of this activism stuff in 2018 and beyond.

I am thankful for the final super moon of 2017 and the fact that, in spite of my worsening eyesight, I could still make it out on the horizon as we drove home.

I am all about horizons these days. Onward and upward, all while still making the effort to enjoy the final weeks of 2017 in the meantime.

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TToT: Mid April and Easter Update #Easter #10Thankful

“No matter what happens, people need to get their stories out. Sometimes I think this is my life’s work: bearing witness, and helping others to bear witness. Bear witness, expel torment, see the red cardinal in the bare tree.”

–Carrie Snyder, “Red cardinal in bare tree”

One of my favourite writers, Canadian writers, and she speaks on what my writing mentor told me, as I grew more comfortable with my own writer status.

We who write, who call ourselves writers live as such. We are constantly observing the world around us, to write it all down when the time is right.

This week’s TToT is a little or a lot muddled all-over-the-place, kind of like my own life right now.

Ten Things of Thankful

I am thankful for the chance to see myself in the media.

Check out this commercial. This girl has a YouTube channel and she is a public speaker, on Canadian television.

I believe it is important that the world sees that beauty and these products mean just as much to those of us living with a disability in the world.

I am thankful I could help my sister.

She has stuff to do to get ready for a friend’s wedding next month and she finds it hard to get a lot of it done at home, as she always becomes distracted by stuff that needs to get done around her house.

At mine, I could hold the baby and she could work. Not a bad deal.

I am thankful for yet another helpful violin lesson.

I picked up the second line to Minuet 3 easier than I thought. I really do love this song.

It did require me to use my fourth finger, which is not strong at all. It is difficult to stretch a fourth on the string.

I am thankful for a lovely Easter surprise from my friendly new neighbour.

I was not expecting the gesture of beautifully wrapped chocolates, in tissue paper, with a bow.

She wrote a lovely note with it.

I am thankful for another enlightening episode of Anne.

This one revealed more about characters like Gilbert. This is better than I could have imagined. I love knowing more about people, even fictional people.

I am thankful for the beautifully written verbal audio descriptions on several Canadian television channels, like the CBC when I’m trying to watch an Anne episode.

“The Woman is elegantly dressed and has a kind face.”

I am thankful Canada got something before the U.S. for a change.

Yeah, I said it.

I didn’t realize this one is the same one premiering on Netflix soon.

Either way, it should appear first on Canadian television, as it is our story after all.

I am thankful for women in history who made Canada better.

A novel idea for the 19th century: women are capable of talking about serious issues – Who is Kit?
        
I am thankful I could find out that there seems to be no problem with my plans to try zip lining.

My fear was that they would be hesitant to let anyone try it who is blind. So far, according to the woman I spoke to and her manager, if I will be with a group it shouldn’t be an issue.

I am thankful for the rain and for the warming April weather.

Spring is in the air and you can feel it.

I am thankful for Easter chocolate.

I don’t know what I think about religion. I don’t know what’s going to happen with the world powers, drunk on their desperation for even more. I don’t know what I am doing in my own life even.

I do know I am thankful.

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TToT: Cherry Blossoms, Bluebonnets, and Clover Leaves # March Madness, #10Thankful

Stella! … Stella!!!

https://www.youtube.com/watch?v=XjHr-6Zl5P8

Okay, well if you aren’t already familiar with the play
A Streetcar Named Desire,
perhaps you won’t get my joke. I’m referring to the big “winter storm” in the eastern United States and here in Ontario and into Quebec and the Maritimes.

First it was the winter storm Stella and now it’s the Spring Equinox and first day of spring.

St. Patrick’s Day. World Happiness Day.

Either you’re drinking massive amounts of green beer or the day passes and you don’t do a single Irish thing, but you can’t help hearing about it. It’s the same with a day we are told to be happy.

World Happiness Day 2017: ticket to joy or time to ditch the smily face?

All these days.

Ten Things of Thankkful

I am thankful for snow in winter.

I like and appreciate it, during its season, but it is cold and I do happily move on from it by March/April.

I am thankful for flowers and birds and baby animals in spring.

Last year, I started off one of my TToT posts with some background about cherry blossoms, but today I am including a few others in this week’s title.

I can’t see them and their colours, but I am often obsessed with flowers, especially cherry blossoms at this time of year. I don’t know why those specifically.

Then I watched the new Anne of Green Gables series on CBC last night and there is a part where a cherry tree is featured.

If you know those books, Anne spots one when she first arrives off the train, before she meets Mathew and Marilla for the first time. She imagines climbing it and sleeping up in it if nobody had come to pick her up that day.

The blossoms are mentioned more throughout this newly updated version, and I took that as a sign of sorts, that spring has sprung.

I am thankful for anything Irish.

Don’t take my word for it. Don’t just drink some green beer. Visit Ireland and see it for yourself.

It was one of the best spur-of-the-moment decisions I’ve ever made. I don’t regret it and neither would you.

That’s why, whenever March 17th rolls around, though I love the music (like what Ed has done in the song above, anything else can’t quite live up to the real thing.

I am thankful to be working on a new piece which should be published in one week.

I am thankful the editor informed me of the stock photo she thought about including with my piece before simply going ahead and using it, without my knowledge.

It was a photo of a girl with her eyes closed. Part of what I do regularly is to educate people on what’s acceptable and what isn’t. I wish, sometimes, I didn’t have to do this. I wish people could understand without me having to explain it.

This may sound like I’m being self righteous about this kind of thing, but even if a girl with her eyes closed may say, right away to readers, “this woman can’t see,” it feels highly stereotypical and won’t help progress with people’s understanding and acceptance of those of us with disabilities.

Touching Life

I am thankful for the feeling of my baby niece’s soft head under my chin as I held her against my chest.

I held her while she slept. She has so much hair and it is so lovely.

I am thankful for her ability to already raise her head by herself.

I held her while her oma warmed up her bottle and I couldn’t believe how strong she already is. She will be one month old this week.

I am thankful for my four-year-old nephew reading his books to me.

Okay, so he didn’t so much read as explain about his favourite dinosaurs, but he did spell out “L i t t l e” on the sign as we were picking up a pizza.

So, he’s on his way. I try to explain to him that I can’t read his library book to him because my eyes don’t work. His response still is “my eyes work” as a way of comparing or reassuring himself or maybe just to inform me. I’m not sure, but, If I’m going to have a bonus thankful this week, it’s that his eyes do, indeed, work.

I am thankful when one of my really bad headaches subsides.

I am thankful for a doctor who understands when I can’t make it to my previously scheduled appointment, do to said awful headache, and their ability there to reschedule so soon.

I am particularly upset when I hear all the talk, south of the border, here in Canada, of U.S. healthcare. I want the kind of care I get, for every person who has lived with awful headaches, needed major surgery, been diagnosed with a chronic or terminal disease or illness, or who lives with a disability to not worry about not being covered or having to pay giant medical bills.

People in Canada complain about long wait times, convince themselves that our neighbours have the better options for medical treatments, and some may have terrible experiences with Canada’s healthcare system. All I know is my own experience and that of my family.

Healthcare shouldn’t be about insurance companies, deductibles, premiums, and whatever else I keep hearing, is all I hear when I hear the debates going on in the U.S. They talk of consumerism and shopping for the best health plans. Healthcare isn’t about shopping, even if so much of our society is all about consumerism. This is, in some cases, about life and death. It’s about feeling unwell or being able to be happy for more than only one day a year.

Ugh! It all gets me so fired up honestly, because I know what it’s like to need my country’s medical system. I have disability and medical conditions I depend on being treated for. I am lucky here. I hate how too much of the world still doesn’t get it.

It was a week where I could care less about the actual March Madness, as I am no basketball fan, but…as for some other madness:

The Tyranny of Now

It’s precisely why I need to count my blessings and why everything on my list today is needed more than ever and deserves the recognition in my own life.

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Rain Down On Me, #ADayWithoutAWoman #WeShouldAllBeFeminists #InternationalWomensDay #IWD2017 #Feminism

Do I call myself a feminist, on this International Women’s Day, and why or why not?

What does that even mean?

We should all be feminists.

Is this really a mandatory name we should give ourselves? Not everyone would agree, would want to give themselves this title.

It puts a bad taste in many people’s mouths, but I am a feminist. I won’t apologize for that, even though all the false ideas of others in the world may rain down on my head if I speak it out loud.

I am also a daughter, a sister, an aunt, a writer, a blind Canadian. Does it matter, in which order, I list these things?
Are labels necessary, sometimes, or do they only serve to divide and cause resentment?

We celebrate this day, March is given the title of Women’s History Month in addition, and yet there is shame or blame or something else attached to it all…still. Feminism does not need to be an either or situation with acknowledging everyone. Feminism has nothing to do with hating all men and equality goes for us all. The argument can be made, today however, that March 8th, it should just be about women and girls. After all, what’s one day, compared to all the others?

So my thoughts may not come out all that well. So what if I want more acceptance for anyone who feels they don’t have it or can’t seem to get it.

So what if I get frustrated and angry sometimes because I am a woman with a disability, fighting for rights and recognition, when so many women of colour, different sexuality, of class or religion may be fighting for those things too. Is there not room for all of us to find it? Must we push and fight our way with each other?

Sophie Grégoire Trudeau (wife of Canada’s prime minister) puts out a Facebook post, ahead of International Women’s Day, and calls for a male presence to show solidarity. Suddenly, she’s betraying what Women’s Day is all about, because don’t men already have enough of the attention all the other 364 days of the year?

So the world is afraid and breaking itself up into groups. So men are resentful that women still feel life isn’t anywhere close to being equal. That they make it seem like we are wining about practically nothing. There are always those good ones who don’t let the fear rule them, who aren’t plagued by resentment at the thought of strong women in the world, women who aren’t afraid to speak out.

I liked what Sophie said. I want to speak up about how I feel and what I want, but I also don’t discount men, the good ones. I am a feminist who loves the men who have been there for me, who have shown up for me, have treated me with gentleness and respect, and who have brought me great happiness and lots of laughs. These men deserve to be included in the conversation. They are invaluable allies.

When I am most frustrated by the events going on in the world, I want to scream that not all from one country or religion are bad. I want to make my point that lots of white men have done bad things, many men in general. Do I want to build a wall between myself and all men?

Certainly not. My father and my brothers are white men. They are amazing people. So, I choose not to be afraid of all of the opposite gender, no matter the colour of their skin, because I know and have known some wonderful men.

Of course, is it so strange a thing that I am proud of a male as the leader of Canada, one who has not been caught on tape bragging about grabbing women? That I am happy to see the companionship of Sophie and Justin, the image of them holding hands, when we need to be supporting each other, male and female, no matter the day.

Because if I speak of how I think it absurd that such a man, speaking ugly things on a recording I can never erase from my mind, has been given the keys to the castle to Canada’s south, I am locked in a loop of disgust and disbelief.

And then there’s the new scandal, coming out about some U.S. marines, the revelation of a secret Facebook group where women’s pictures have been shared and gawked at for amusement. Is this real life? Are these real men at all? Just who do they think they can protect and with what integrity?

This is why we still need more work and why we strike and speak and stand up. I choose to use men to help illustrate the point.

What does it mean to be a man, a woman, a president or prime minister, or a feminist anyway?

I feel we’re all starting to turn on each other now. Solidarity and division run a fine line when these impassioned issues are discussed. The giant women’s march happened, showing the might of women around the world. Then, some people felt left out. Now they resent the intentions. Turning on one another is not what we need to be doing, but it isn’t easy to meet the needs of everyone and feelings get hurt, emotions run high.

Launching itself off of the success and force of January’s march, today is being called A Day Without A Woman and women are supposed to strike, to show what a world without any women in might look like.

Would things fall apart? Most definitely they would. Can we all agree to band together and all strike on this day? Of course not. Some cannot.

So then thank the women in your life for being there. Support female run business and wear red. My favourite colour, one of passion and empowerment, but what will this do to continue the momentum? Try and get everyone to do the same thing, to follow the same idea…doesn’t happen.

So many sound outright enraged that women would even dare to think of doing any of this. Why? Of course there are things to consider, but this is no reason to be so pissed.

Will the message be received? And what is the message anyway?

Actress Emma Watson stars in hit movies, reads a lot, and stands for feminist rights, but soon people say she wears the wrong thing or says the wrong words. Suddenly, she’s not the right spokesperson. She’s no feminist, they scream.

We, none of us, can live up to what others expect of us, feminist or not. It just can’t happen.

I know we will never all be completely equal, that life’s often unfair, but I will never stop working for change and progress, as long as I live as an aunt, to nieces and nephews both.

Do we need to leave men completely out of the equation on this day, if none other? Perhaps, to make the statement fully empowering.

Or, does this not help add to any divisiveness already growing? True, many men still do not get it, so let’s include, in one way or another, those men who do. We have a lot more work to do.

I ask these questions, as I still do not know the answers, or perhaps it’s some of both. I always was one to have trouble deciding. I ask questions instead. What’s important is that we continue asking.

We all need to stand up for good human decency, no matter the day or month of the year, no matter our gender, feminists or not – as simply the human beings we all are, something we share on common ground.

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TToT: Let Us Try This Again, Shall We? #WorldBookDay #FreedomToReadWeek #WorldWildlifeDay #10Thankful

Last week I meant to share one picture, of the flowers we brought my sister after giving birth to my new niece, but I somehow ended up posting only the flowers.

Nothing wrong with flowers, so that one becomes “the flower flower flower flower post”.

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I am still thankful for the big things, for eight pound baby girls, but will sprinkle in a few smaller items, if I can as well.

Ten Things of Thankful

I am thankful for new music.

Lorde – Green Light

I am thankful for Mya Lynne and for my violin.

😉

Haha. Get it?

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I’m thankful that I went for it and submitted the travel memoir piece I wrote in Mexico, about my evening with the mariachis, to
CBC Literary Prizes.

I spent all of February, editing madly, and I would say I am proud of what I sent in. Now for the long wait.

I’m thankful to have made contact this week and am now in communication, by email, with the man I met in Mexico. He is doing amazing things with his life.

Everyone Has A Disability

We both know a little something about living with a disability and I appreciate his perspective.

I’m thankful for the bond already forming between my nephew and niece.

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Now, anytime I go to visit them, he always starts by saying, “Auntie Kerry, do you see my baby sister?”

Now that’s the question of one proud big brother.

I am thankful I got to read the words of a talented family member. He wrote a kickass spoken word piece about his wife and surprised her with it for her birthday last weekend.

It’s amazing to me that someone can love another person like that.

I wish I could have heard it in person, but I read the words and his writing was so sweet and so creatively epic.

Proud and thankful to be related to those two.

I would share it, but I’m not sure they’d want me to. Let’s just say, the word “citadel” is used at one point. It’s a song about a strong and one-of-a-kind woman. That’s spot on.

Ed Sheeran – Eraser (Live)

This new live Ed Sheeran song is another example of music, but with spoken word, poetry thrown in the mix.

I’m thankful for winter weather, while it’s still winter.

We went from above seasonal and warm temperatures at the beginning of the week and we’re ending it back firmly in winter, but spring is only officially a few weeks away now. The end and a new beginning, as many think of the arrival of spring, is on its way.

I enjoy a chilled night, without a harsh wind preferably, and feeling the gentle sprinkling of snowflakes coming down around me in the air. I’m going to miss that crunching noise when I walk outside in the packed snow underfoot.

I wish everyone could see that winter is supposed to be cold, to have snow, and to not show such love for the climate change that has an effect on nature and wildlife, and not in a good way. We should think about them a little more and less about our temporary discomforts. I know it’s hard. I don’t like freezing either, in the moment. But I do care about species such as butterflies and bees who pollinate. Those guys need spring to come in its own time. We shouldn’t try to rush it just because we are sick and tired of winter.

In the comments for TToT this week I say where I am from and what I love about living here. I love the four seasons we in Canada are lucky to experience. I grumble and groan my share, when I am shivering or sweating, but I want the planet to maintain itself, for my nieces and nephews, for a long long time to come.

The cousin and his wife I listed above, as a thankful, they work with nature and the environment. They’ve seen signs that aren’t good signs. They worry because they see it up close. They’ve taught me a lot.

I am thankful for people like them, doing all they can, to teach about the natural world we often neglect.

I’m thankful for the feeling of holding a baby.

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She is such a contented baby too. As long as she’s not hungry, she’s happy to sleep a lot.

For me, I can feel disgusted with things happening in the world or whatever, but then I hold her and I feel the slight pressure of her in my arms and her breathing as she sleeps so still. It’s peaceful.

I then watch my nephew, all his energy, and how big he is. I am thankful for these children, at the separate ages that they are, and I know they grow so fast.

I am thankful for books and the freedom to read any book I want to.

Green Eggs and Ham by Dr. Seuss (read by Neil Gaiman)

I have shared stories read by Neil Gaiman here in the past. I enjoy his readings.

Happy Birthday Dr. Seuss.

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I Am Brave Enough, #Travel #Mexico #Disability #kindnessofstrangers

It’s the name of Lindsey Stirling’s most recent work.

https://www.youtube.com/watch?v=tOmc9uG1Ndg

Instead of a New Year’s resolution, it has been my question/statement to myself about 2017 and my own determination to make my life what I’d like it to be.

Well, I’m back. I made it. First, to start with how mind blowing Mexico was, but more about that later. I have a lot to say on it, as a writer, still trying to process.

About the part that scared me silly though, traveling by myself:
It isn’t easy to have to wait to be taken from counter to counter, gate to gate, plane to plane. There are some advantages. It can be nice having someone push you around, along with your luggage, but I particularly liked the one transportation vehicle they used, specifically in the Detroit Airport. I liked that one. The two guys who took me, from the first to the last, they were friendly and pleasant.
You are first on the airplane (early boring) and last off. Different flight attendants and others likely know different things about how to help someone who is blind. Some are more hospitable than others. Sometimes I felt ignored and sometimes I felt well taken care of.

I honestly have to say I liked Dallas Airport the least. I didn’t realize how big it is there. The porters are different. Some easier to communicate with than others. It was a far distance to go, on my way there, and luckily I had a few hours because I was left at a gate, which changed. I sat there and suddenly heard them announcing a different flight than the one I knew I was there for. This was when I decided to speak up and get some help. Thankfully, another porter with a wheelchair was called and I was taken to the correct place. Unfortunately, then there was a problem with the plane and I sat there for more than an hour, nearly two. I was afraid I would miss the opening night festivities in Mexico, at my workshop. I didn’t.

I am writing about this, even with all the array of wonderful things I could be writing about my week in Mexico, because I feel there is a need to explain what it is like to travel when you have a disability. I doubt people realize.

The last time I flew anywhere I had a hand to hold tightly when my anxiety of lifting off the ground and into the air got too much. I felt kind of alone on my journey there this time, with no hand to hold, but I realized I needed to experience that. I needed to sit and be okay with being alone, right where I was, doing exactly what it was I was doing there.

I had all these images in my mind of all the strange and wonderful souls I would meet while traveling, in airports and such. I met hardly any on my trip to Mexico. That’s okay. I was on my own journey.

I met a lovely porter to start off my traveling, in Detroit. He told me his name and asked me about where I was going and what for. I told him of my fears of traveling by myself and he assured me it would all work out. He was right.
He got me a bottle of water and brought me safely to my gate. He made sure to park my luxury vehicle right next to the desk at the gate, so the people wouldn’t miss me there.
I tell you, you hear a lot of behind the scenes drama and things when you sit in that spot. Interesting.

So, I was the only one in my row on the first flight (Detroit to Dallas). It was an experience anyway. Behind my row there was a young woman, traveling from visiting her boyfriend, and the older woman beside her took an instant liking to her. The two of them then went on to talk the entire flight. The older asking the younger about her plans and her dreams. I secretly wanted that sort of experience from traveling. Would I make any connection like that? Did people resist approaching me? And did I shrink back from reaching out to anyone either?

It was still all so overwhelming, this traveling by myself. I was on constant alert, fearing I would end up lost or misplaced. I didn’t dare listen to my music or be distracted in any way. I was depending on other people for my very safe arrival, but how much of it all could I take on myself, to take my own power back?

I had help to find the check in desk at the airport in Mexico for my trip home, from the shuttle driver. He took my hand and brought me to them. I was so flustered I forgot to tip him. I felt so bad when I realized. I didn’t want to be so wrapped up in myself and my own worries that I did that sort of thing. I wish I could repay him somehow.

The porter they called to take me spoke no English and she asked if I could speak Spanish. At least, that much I could understand she said. I told her no and that one of the only words in Spanish I know was the one for water. Thanks to my niece who learned it from her Spanish speaking babysitter.

She had to go help someone else and found a woman who spoke English to stay with me. The woman then proceeded to tell me all about her life until I heard a familiar voice.

It was one of the women from the workshop. I could tell it was her, first, by the clunking sound of her shoes. She could keep me company, but the English speaking lady had to go. Still, you meet some interesting people when traveling.

I felt, at times, like the girl from the workshop was having to help me with my stuff, not relax while waiting for her flight, but that is all on me to not look at things life like that so much.

The porter returned and we went to our gate. She took me to the chairs while the girl from the workshop went into a special lounge for those with special bonuses from the airline. The porter then left me in the wheelchair. It probably seemed easier for her, in her mind, but I didn’t want to have to sit in it while waiting an hour or so for the flight. When the girl from workshop came back she agreed and we found two seats. This still required dealing with the wheelchair and my luggage, along with her things. She brought me a yogurt drink from that special lounge. It tasted so good in that moment.

We spoke a little and she helped me to the bathroom. We had to manage our luggage because leaving it unattended would not be a good idea.

My biggest concern, other than being left somewhere, was the bathroom situation. Anyone can find a bathroom in an airport if they need it. For me, I would have to depend on whichever porter I happen to be with if I needed to go. Many of those were men who hardly spoke English themselves. Not the best of situations, but best there was. Otherwise, I would be on my own and would have to find someone, a stranger or airport employee walking by, to help and show me where a bathroom was. Not fun.

I sat in my row, on my way home, and looked at a Mexico I could not see, through my oval airplane window. Suddenly, amongst the dozing I did and the boredom of sitting there in a row with a guy and girl I didn’t speak to, the familiar voice suddenly said my name, handing me a bag of warm mixed nuts. More perks from first class. That was the last I saw of her. I was truly on my own again.

The airport in Dallas was chaos. They had only one porter when I got off the plane and there was also a man in a wheelchair who needed assistance. His wife ended up guiding me, helping me with my luggage, while we followed the one porter and the husband through the lines and crowds. She did not have to do that, but she did. They were both very kind.

I suddenly heard protesting to my left. I couldn’t make out all they said, something about the US, no Trump, and no KKK.

It was a bit nerve racking as I followed the woman and her husband through customs and I forgot about the bottle of water in my bag still, from the girl from the workshop. I wish they didn’t have to take it from me. Silly regulations. I even got patted down at the airport in Mexico, by a girl who had to try to ask if it was okay first, but did not speak any English. Now I was having my bag inspected. Oh the joys of airline travel.

Finally we found our correct gates and the porter left me at mine. I thanked the mysterious couple, the ones who asked me about my time in San Miguel and told me about the house they rent there, and I sat and hoped for the best.

The people at the desk did their job. A nice lady helped me to the plane. I found my seat and a friendly woman, traveling alone for the first time too, she was feeling anxious and asked me if my folded up white cane was drum sticks. I liked her at once.

The flight went by a lot faster, long long day, with someone to talk to. She asked me about my writing and my blindness and family. I asked her about her five children and the plans they had to move from Detroit to Dallas. Her and her husband had just put an offer on a new house there. I wondered at the differences, the separate lives of so many, including this stranger who took the time to speak to me and I spoke back.

I was afraid, the entire time. I was afraid and still I didn’t want to let that stop me anymore. I did it once and I know I can and will do it again, until I am no longer so afraid. I know even sighted people can be afraid of such things, when traveling alone, when being afraid to fly or confused by flight numbers and gate changes. I know. I know we are all the same somehow while oh so different.

I appreciate all the help I received and all the assistance and the company kept. To all the strangers I will never see again. To the amazing souls I met in Mexico. To my amazing mentor for all she did for me. To my family who supported me. I say thanks. From the bottom of my heart, thank you.

I am brave enough.

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International Day For Persons with Disabilities 2016, #IDPD2016

Helen Keller…Stevie Wonder…Ray Charles…Rick Hansen…Stephen Hawking…

The Rick Hansen Foundation

There are so many more of us out here, only looking to have rich, full lives like anyone else, but what often stops us is not only society’s barriers, but our own.

***

Since 1992, the United Nations International Day of Persons with Disabilities (IDPD) has been celebrated annually on 3 December around the world. The theme for this year’s International Day is “Achieving 17 Goals for the Future We Want” . This theme notes the recent adoption of the 17 Sustainable Development Goals (SDGs) and the role of these goals in building a more inclusive and equitable world for persons with disabilities.

***

One note on the society part – some of you may not want to think a lot about it, if you don’t have to, because then it becomes clear that the possibility for anyone to become disabled is indeed a possibility for anyone..

I am a Canadian woman, living with a disability. I didn’t acquire my disability through an accident later in life. I did not develop it overtime, but from birth and still, who knows which direction my remaining vision might take.

On the day before the
United Nation’s International Day For PErsons with Disabilities
I felt a tired feeling that I sometimes get. I panic and assume my sight is worsening, but I am not sure, if that makes any real sense. I close my eyes and decide I will try to get back in to see my retinal specialist soon.

I don’t know what, if anything, he will be able to tell me, offer me as hope that I won’t be completely blind one day. He will probably see no changes or signs of the mysterious eye disease that took my left eye twenty years ago. He will speak to me of gene therapies in various stages of development, but I don’t know what hope lies in that for me. Maybe it will be my future. Maybe not. I’ve learned not to bank on anything.

That’s a part of my DNA, just like the genetic eye disease. I am conditioned to either think the worst or simply not want to hope for the things I may really really want, always fearing that the disappointment from possibly not getting them will break me. It hasn’t broken me yet, which does give me reason to be optimistic though.

I wanted to be able to see the truly unique show violinist Lindsey Stirling put on recently. Instead, I listened to all I could and relied on my helpful sister to fill in the blanks. I wanted to throw my white cane away and yelled my displeasure, and through the wish, but instead I sat and listened even harder.

I want to draw like I used to when I saw colours and when everything in my world was more clearly and brightly defined. I can’t. I want to scream in frustration but I’m resigned instead.

I want to take up the latest craze of adult colouring books, but I don’t.

Of course, nothing is really stopping me. I may not, as an adult, see the lines I may have hardly seen as a child, which are now nearly invisible to me. I could still get myself a Harry Potter or any number of other themed colouring books with a theme which fits my interest, and be damned if I miss colouring in the lines by a mile.

But I don’t. I don’t scream or rail at the world in an uproar. I find other ways to spend my time.

I want to travel and to go through life with an independent spirit and loads of self confidence, but I don’t. I try and I work at it, but I’m scared.

I find a travel series, a BBC documentary, available to me on Netflix. It’s Stephen Fry, whom I love, and he is doing a road trip across the United States in his British cab. I know him from his narration of the Harry Potter books and for his intelligent and witty character. After watching him visit all 50 states I now know he hates being on a horse, dancing, and skiing. He loves science and culture and literature.

Stephen Fry In America

I watch him on his trip and I long to go on one of my own, but I fear getting lost in the big, expansive world and I worry that my white cane will attract only pity. I want to grip it with extra determination and go anyway. It’s all in my attitude, right?

I can’t drive a cab across the country. I want to believe I will see more of the world anyway, even without definition of sight.

I don’t try to revisit childhood experiences of mine by colouring. Instead, I watch a travel show which I’ve heard of but only now decided to give a chance.

HELLO GOODBYE, #HelloGoodbye

The host speaks to one woman in her sixties, widowed after her late husband’s long battle with illness, but who has now found new love with a man from England. Her happiness is infectious. Her newly found love walks down the ramp in the arrivals terminal at Toronto Pearson International Airport and gets down on one knee. Love is lost and can be found again.

I feel warm just by watching and listening to her story.

The host also speaks to a young man and his parents. The son is on his way to participate in Rio, at the Paralympics. He was paralyzed from a diving accident and now plays wheelchair rugby.

And then there was the grandmother, daughter, and grandson saying their goodbyes. The young guy and his mother are heading back to Britain after a visit with Grandma. The mother has RP (Retinitis Pigmentosa). She carries a cane, but the son speaks of wanting his mother to have companionship with a guide dog, as he will soon be going out on his own and doesn’t want her to be alone. He has worried about her safety all his life. She admits to being unsure about going for a guide dog once they get back home, but her son’s words cause her to rethink things.

She grips her white cane. I grip mine. She has been losing sight for years. I’ve been blind since birth and losing since. Am I any further along in accepting my circumstances and my white cane than she is?

People ask me all the time if I am ever going to get another guide dog. I don’t quite know what to say. Yes, they may provide the necessary confidence boost for many. I consider it.

I don’t think any dog will ever compare to my Croche, But is that all it is?

I can’t put another animal through what I put Croche through. She was so well trained and so fittingly suited in temperament. She was given to me and I was trusted with her. A lot went into all that. We were a team, but I failed her.

My ever growing illnesses caused me to sleep and her to dutifully stay by my side, but she was prevented from shining. She was my pal, but I don’t take the responsibility of a working dog lightly. I don’t know what my future will bring and I can’t bring myself to bringing another animal into that.

I want to curse what stops me, but what often stops me is me. And so I would just end up cursing myself, again and again.

Or, I could take hold of my white cane and use it for betterment, for working for some of my dreams, and for hardening my resolve and building my often feeble confidence.

My feelings of shame when I walk with my cane are hard to describe and hard to fight off. I will never be happy if I don’t try. Fear and disappointment stop me from even trying. What a waste that would be.

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