Just Jot It January: BRAILLE IS STILL NECESSARY #WorldBrailleDay2021 #JusJoJan

I am so thankful for my fingertips. They allow me to read at night. They gravitate toward those little bumps (paper braille or electronic), flying along over the words beneath. They read the words in the books I love and write the dots, the cells that become the words I must express in my writing.

In 2020, while it was a tough year for many things, I did pretty well with writing and submitting. I was published in Oh Reader, a magazine all about reading I have an essay in and I wrote it about my love of braille.

I burnt one fingertip on a burner a few years ago and I immediately worried I would damage that finger, ruining the level of sensitivity I’ve developed over the years, since learning braille as a child.

Today I attended a Zoom event to celebrate Louis Braille on what would have been his 212th birthday. This event included a children’s braille story, a reader who was blind, reading a print/braille book called Harry’s Hiccups by Jean Little. Another reader handled the image descriptions.

Growing up, my mom didn’t wait to find the few print/braille children’s stories available somewhere. She went ahead and made her own, taking picture books and adding the lines of braille herself.

The books we had were braille, the words, but the pictures, it was up to the sighted parents or whatever to describe anything in the pictures that the story’s words didn’t already explain or point out.

That might be something most haven’t thought of. We didn’t think of it, when I was a kid or grown either, for years, but image descriptions for images (social media) is a big thing now and audio description on television and film and even live plays etc.

After today’s story time, there were panels with people from
National Network For Equitable Library Service
,
Braille Literacy Canada
,
Vision Impaired Resource Network
, and others.

They talked about what braille is, what it means in their lives, and how technology is teaming up with braille, not replacing it.

That part always gets me worked up. People ask if braille is still necessary because we have smart phones, tablets, screen readers, and audiobooks. Also, educators tell parents and children who have some vision left that they should stick to reading large print, that they don’t need to learn braille, but to me this is a lazy and a negligent thing to do. It is because disability has a stigma attached to it still, including things like braille in that.

It’s a human right to learn braille for all people who can’t see to read and write print. If they learn now, they have it if or when they might need it because even if a child is low vision now, that doesn’t mean they always will be. I had low vision and could read large print. I learned my print letters, how to write cursive, and read large print books. I also was taught braille. I owe my parents and my braille teacher and braille transcriber. They fought school boards and officials who wouldn’t have bothered with the time or the expense of hiring a teacher. I would suddenly lose more vision when I was twelve. It’s nearly all gone now and I’m so glad I know braille.

Braille is literacy, no matter how far technology has come. So is braille still relevant in 2021? I want that awful question to stop being asked, by anyone. Nobody would deny children the access to learning to read and write when we’re talking sighted children and print. Well, braille is my print and I see young children and the next generations coming along and technology isn’t the answer alone.

I wish braille were more common in society. It’s appearing on signs now, buttons in elevators, and yet I want braille/print books in the library, for all children to get accustomed to, instead of thinking some separate organization for the blind will handle it. I want to be included in my local library with everyone else. As a kid, I could see enough that I did feel included, loved going to the library, but now I am an adult and I don’t feel welcome in my library at all.

Of course, it’s pandemic times and libraries are often closed in lockdowns, but the only reason I was stepping foot in my town’s library before that was to attend a writing group I was in, where I had friends who I’d found who loved writing and stories like I do, but a meeting with the library CEO in 2019 was fruitless and frustrating because he should want to do what he could for a library patron.

Instead, I was told I had something, one option, and I should be happy with that. Other people get options, but we who are blind should be happy we have anything at all I guess he was saying.

As you can probably tell, I am emotional about all this and I can get worked up when I feel braille is portrayed as this daunting, scary, even unnecessary thing. It isn’t another language. It’s a code for writing and reading and it matters to many people around the world, just like sign language matters to many of those who are deaf.

Anyway, I could go on jotting about this for days, but I’ll just say that a group of people trying to all sing Happy Birthday to Louis together over Zoom at one time sounds silly and feels silly too, but that’s how much we care, what that man’s work over two-hundred years ago has meant to us.

I feel badly because I didn’t remember we’d had
this conversation
one year ago.

Such a busy year. So much has happened since then and I am embarrassed that I didn’t think of it, as I really appreciate that Linda remembered. I’d written about braille for JusJoJan on this exact date a year ago too which is what started it all and led us here this year.

I’m so grateful for Linda’s support (for braille and in checking out and promoting the radio show/podcast I do to speak about things like braille, technology, and equal access).

And Happy Birthday Louis.

Can’t Stop Watching #JusJoJan

It’s the best show these days, This Is Us, dealing with everything from racism to mental health and anxiety to struggles with weight and eating disorder to alcoholism and now Alzheimer’s.

I am not sure why I continue to pay for TV/cable. I do it, holding on to the past because streaming services and watching everything online these days means not paying for expensive cable or satellite, but I haven’t quite given in to this new way of it.

I do choose to watch a clip from The View or Seth Meyers, on their Facebook pages rather than on my TV. I don’t tune in to my
television
for much else, other than local or national news. I could get this online too. Maybe I will eventually go off TV entirely.

The best show means it is really the only good show on television, especially after Anne with an E was canceled even after being such a big hit on the CBC here in Canada. I am watching this season of This Is Us with lots of interest, since learning they’ve decided to add a character who is blind, with an actor who is blind in real life.

I watch this Tuesday night show on my local cable channel which comes along with audio description for the episodes. I can follow along and not miss as much with that narrator telling me the things I need to know, when watching a show that spans multiple generations and over decades. It’s a lot of flashback scenes and jumping from past to present to future. I like the richness of this series and I hope to write more about it in the near future.

Of course, a story with discovery of a couple having a child who is blind and the couple’s marriage won’t survive it. It makes for more drama on a television drama, I get it. This was my fear at certain times, that my own parents would be so stressed by my disability or chronic illness that they’d split up because of me.

I am watching this season of This Is Us with my mom. It’s hard to know, but seeing representation on such a big show is important, but watching this particular storyline with my mom is interesting, as I wonder how my mom and both my parents did cope with things when they learned their baby daughter was blind.

I am hoping to write more of a coherent piece on all this soon, but here, as
JustJot It January #JusJoJan
comes to an end, I am brainstorming and pondering on what this new year might look like and what I might write or have to say by the end of these twelve months through the jotting I’ve been doing all month long.

Thanks,
Barbara,
for this prompt.

I Am No Rarity #JusJoJan

I took yesterday off, from this
Just Jot It January #JusJoJan
challenge, but there remains a lot to do.

I had an
experience
yesterday, a speaking invitation to something called
PROBUS.

This was a chance to be a guest speaker for a room of retired professional women. I wasn’t just there to speak about my life as a sideshow of what’s known as inspiration porn, meaning a story of my disability that does nothing to truly educate, challenges preconceived notions and to show them what has been kept too well a hidden secret up until now.

I wanted to talk to the ladies about my life, my blindness sure, but of some of the things I’ve accomplished. I made the theme fear and travel and they were amazed I traveled to Mexico alone, to attend a writing workshop in 2017. Sure, many sighted people are amazed I can dress myself let alone travel by myself.

The point is that there are ways to know what I’m wearing and how I get to my gate to fly somewhere. I don’t do it without practice and, sometimes, without assistance.

I talked about my fears and the fears my parents had when they first learned I was blind. I talked about my loss of sight over the years and how I faced my fear of rejection to start this blog and share more of my writing with the wider world. I talked about how to face the fears and push passed them, while they keep on coming.

I impressed them, all kinds of them coming up to me after to shake my hand and tell me to keep it all up.

I couldn’t hope to change every mind about the capabilities of blind people, but maybe I enlightened some of them so that they will realize that I am not such a rarity, that many blind people live happy and active lives.

There is much work to do, why I’ve become involved with the
Canadian Federation of the Blind
to, in many cases, fight back against society’s fears of blindness and what it’s really like to live with it.

I want to improve opportunities for my own life and for those born blind or who go blind later in life. It isn’t a black hole of hopelessness.

The government could be doing a lot more to help. If they listened more and realized it is a good investment to make into disability communities like that of the blind, that given the right kinds of opportunities and supports and training, we can give back to society like we want, like anyone else might do.

Our challenge is to make blind people, struggling to know their options and worth and opportunities, understand and believe that they can live the life they want.

I have been to a yearly convention for the CFB in Canada for the last two years and to one in the US in 2018. I wish I had more money for travel because it isn’t only a chance to do that, but it’s a chance to gather together and share with one another and boost each other in our lives all the rest of the year. I face my fears by traveling, again and again and again, and to put myself squarely in a situation where I am anxious and uncomfortable, a large crowd or group of people.

The experiences I’ve had since I realized my power to make changes through advocacy with like-minded blind people have been some of the best of my entire life and I’ve met people that inspire me for those times when I do feel like it’s all too much and I’d like to give up all together.

It’s often stressful because there’s more work to do than those of us willing to pitch in with our own unique talents and skills, but it’s a brand new year here and I know I’ll keep busy, whatever happens. Life is rarely ever boring for long.

Thanks,
Dan,
for this prompt that I had a lot to speak on. My life has been a rich tapestry of meaningful and impactful experiences for sure.

Serenity and the Frail Petunia

Dear Reader:

I am blind and getting more blind by the decade. It’s not all I am, not by a long shot, but it’s a core part of me that I wrestle with every day, some days more in a nuisance way and some days it brings me down.

I wrestle with how to balance that part of me with the rest, in my interactions with people: if I bring it up too much, I’m using it as a crutch; if I pretend it doesn’t have an influence, I won’t ever speak up for what I need or get those needs met in any way necessary.

Different blindness organizations have differing views, but as I grew and went along, I felt I had to get involved in something I felt represented me, without letting the activism and hard work of advocacy take over my life entirely either.

It’s hard enough to focus on ourselves, let alone having to work or worry on or about the issues someone else might be living with. Some prefer to get things squared away in their own lives and leave it at that.

I am like most in Canada and those living in North America in 2019 – I only recently heard of
the Canadian Federation of the Blind (CFB)
recently, but I found people and projects there that did make me feel like I belonged and had something worthwhile to contribute.

Just a few of the things we are constantly fighting and working to improve:

The guide dog discrimination and misinformation issue just won’t go away. In fact, depending on who you happen to ask, it’s grown worse in recent years.

People get refused service from businesses and things like Lyft or by Uber drivers. Sometimes a cab will see the dog and then pull away, intending to pretend that they were never there, leaving the person waiting in vane for a ride.

Blind people are one of those groups of people who can’t simply get behind the wheel of a vehicle and get somewhere themselves. Public transportation and rides from helpful friends or family are our best bet if we want to leave our homes. PSST…we do.

Those who say: “no guide dog allowed” claim it’s an allergy issue or a cultural one. These do give the issue a two-sides-to-every-story feel for many people, but it matters to those who depend on their guide dog to give them back their independence.

Also, I am trying to get my local library to offer me as much access to literature as possible. People unable to read print have only about ten percent of the access to the written word and books as those who can see. A library should want to do all it can to get me access to books, as I can’t pick up any book on their shelves and read at will.

Being in my local library now makes me sad and resentful. I can deal with the fact that I’ll never see print again, like when I was a child reading large print, but I go to my library twice a month (to attend a local writing group) and I am surrounded by some of the things I love most in the world, yet they are just out of reach.

There are places to get more access to books:
National Network For Equitable Library Service
and
Centre for Equitable Library Access,
but they are not just duplicates of each other. If one has even one more book than the other, that the other does not, don’t I deserve access to both?

Libraries in Canada have always kind of passed the buck of literacy for the blind onto the
Canadian National Institute for the Blind (CNIB),
but (in my opinion) they should care for every client and want to offer inclusivity and a welcoming atmosphere for all.

Instead, I am disregarded and left not wanting to even step foot into the building most times, even to see writer friends I love and to share stories with them, because the library has become a bittersweet and even painful place.

And finally, there’s this…

****

The antidotes to job-seeker deceptions presented here reduce but don’t eliminate employers’ risk of getting snookered. For example, I’ve had clients with a disability who withheld that information, knowing there now are laws that limit the interviewer’s ability to ask about them. And then as soon as hired, they disclose the disability because now they’re protected by the Americans with Disabilities Act.

****

Go ahead and read the
full article (for full context),
but many do not and so I’ve decided to paste in the above paragraph separately.

I really don’t want to give this article more views, but I also think people should be aware of where stigma like this persists from. I happen to believe the written word is a powerful thing.

I am not into shaming or attacking anyone/not without cause or reason, but I do believe we should do more calling people out on something if it is hurting a whole group of people.

I believe this writer disguised this attack by inserting this as one of his final points of proof of his main article’s point of view.

Most people won’t see this because attentions are short in 2019 and reading to the end of an article is often not practical for those on the go and with mile long to-do lists. I probably shouldn’t have even made this blog post this long and left this part for the end. This is not an accusation, as I understand people’s time is precious. I just wish people were more thoughtful about things )like this writer) and I hope someone does get this far in my post.

I believe, in life, we should all pick our own battles, but I am getting tired of visible ablism and the perpetuation of stigma.

The reason I wanted to start a support and resource group, which we’ve called our Employment Mastermind Group or EMG, and through some Canadian Federation of the Blind members and others, we are doing it, is because of writers such as Nemko.

We can argue all day about the real unemployment rate for people with disabilities and who are blind, but either way it’s much too high still.

Of course, the ways in which we’re told we can reach people and change minds are things like social media, Twitter private messaging, but I don’t really think a tweet sent from me to him will get me anywhere. I came here, though I write here less often than I used to, because I have a place to speak openly and honestly about something that hurts, as much as I try not to take it to heart.

Do guys like this truly think he’s helping anyone, to warn unsuspecting employers? What was the editor of this article thinking, putting the Psychology Today name on this?

I may have thought, as a freelance writer, of writing for this publication at one time, but I don’t think I want to now. (One to cross of the list.)

The question of whether to disclose disability on a resume or application for a job is often asked in the blindness community. People only want to find meaningful employment like anybody else, to feel useful and for independence and self sufficiency.

We are honestly afraid we’ll be weeded out before we’re given a chance to prove our skills. We’re not saying we deserve special treatment, given a job even if we aren’t up to it, but employers are often afraid to hire someone with a disability because they think it’s not going to be worth their time/money/energies, that it will be too much of a hassle or a risk to them because not everyone understands that blind people aren’t helpless and don’t need to be watched over every minute.

Who would admit they do this? Doesn’t mean it isn’t exactly what some employers (not all) would do, hoping not to be caught doing it.

It’s like when you want a person to like you, on a date, so you hold back on something you think it may be too soon to share. You do have to take the risk sooner or later, but you have no idea how they will take it when they find out. This is where it can get tricky. Maybe…you think…if they get to know you a bit first, then when you do finally bring it up, you’ll have left such a wonderful impression that all will work itself out. Sometimes it does and sometimes it doesn’t.

I happen to think being upfront, as soon as possible, is best (in all types of relationships/be they personal or professional), but I know it’s a nerve racking thing when you think you’d be good at a certain position and you don’t wish to be pitied for the rest of your life, wishing to carry your weight and support yourself, but fearing the injustices of the real world.

This writer is including people with disabilities as “the deceivers” of those poor employers. Aren’t we just so incredibly evil, pulling the wool over innocent eyes and those eyes must be warned that we’re coming?

Maniacal, aren’t we?

Inaccessibility is everywhere you look. I couldn’t and wouldn’t include everything it is here because I would be writing for days. Let’s just say that even the comment section for the article, when I went to share my thoughts, was no simple thing to tackle.

So if it sounds as though I’m complaining too much, you’re right because I do get tired of having to bring these things up all the time. Really, I do. I wish I didn’t have to and I could go back to staying quiet and saying nothing, just so I don’t rock the boat, but that doesn’t get us to a better place.

If you are on Twitter and you feel like helping this writer and career coach learn why what he said was so harmful, he can be found @MartyNemko and you can also try @PsychToday.

Thank you for listening/reading/considering.

Signed,

KKHerheadache/Kerry

TToT: From Beach to Bog and Through the Pages of a Storybook #ByeCoolBog #10Thankful

“Make visible what, without you, might never have been seen.”
—Robert Bresson

I am struggling with my own life/self/situation and with that of the wider world. Still, I always have things to be
thankful for
and that’s what keeps me going.

I’m thankful for a lovely weekend with siblings, parents who are grandparents, and with nieces and nephews.

I’m thankful for those times when my niece or nephew takes my hand to walk somewhere.

They know I am blind, learning it by degrees as they grow, and all they really know is to be helpful. I am proud of the kind little people they are.

I’m thankful for lovely weekend weather to enjoy family time out in.

I don’t like the humidity and this final, full weekend of August was not too humid-just perfect.

I’m thankful for a beach day.

The water was cold, on initial immersion, but the water out beyond the rough shoreline was pleasantly refreshing, but felt great being out there.

I’m thankful for a niece who loves rides and a nephew who loves the water park facilities at
Storybook Gardens
in London.

I’m thankful for the fresh smell of the water park. I enjoyed lounging on a chair while they played. It smelled so fresh there and the air was cool and breezy.

I’m thankful my niece and nephew from out of town came on
Outlook CFB
with me and Brian.

They were their silly, sweet selves and we wanted to ask them about having an aunt and uncle who can’t see, but that question wasn’t one they could verbalize.

We think this is a good thing because it means our blindness is simply something about us, the aunt and uncle they love and know, but that it is not a big deal. They are often asking questions and their curiosity means they are learning.

We wish, in a way, that every child was born into a situation where someone in their family had a disability of some sort, blindness specifically. Then, instead of people never having come across someone who is blind and being totally unprepared to react/interact, everyone would just know about it and have lived with it. Only saying, this would be helpful, but not the way it is of course.

I’m thankful for glimpses of the Downton Abbey movie.

I’m thankful I’ve had someone to talk over what’s been going on lately. It helps because it’s a fresh take on things.

I’m enjoying time with family and trying to klook toward the future.

Caption: my family with Humpty Dumpty at Storybook Gardens in London, Ontario.

I’m thankful we packed Storybook Gardens and the bog and ice cream all in in one day.

We have been talking about checking out a local bog for a while and the kids were fascinated. It was a lovely walk, along a boardwalk, and we all stuck a foot out into the muck of the bog.

Bye cool bog and bye August/summer.

The northern sky was amber and pale green over the fir tops. The air was cool, for August was nearing September

ANNE’S HOUSE OF DREAMS

TToT: March Breaks and Time Straddlers – Design and Procurement #10Thankful

I can’t get the image of all that plastic in that whale’s stomach out of my head. Or the gorilla who was shot and blinded. Or fifty human lives lost in New Zealand last week.

https://www.youtube.com/watch?v=yks0RggaluY

But then, I am reminded, we live in a world with rainbows.

“Watch the rain drop.”

I’m thankful for new Cranberries music. She’s dead, and that’s still unbelievably sad, but this song just released is powerful, even more because of how things are.

I am thankful for a good
classic Irish memoir
to read on St. Patrick’s Day weekend. (All twelve braille volumes of it.)

I’m thankful that another news network put a spotlight on the disability issues radio talk show I do with my brother.

Radio Show About Blindness Promotes Accessibility – CTV London

I’m thankful an interesting documentarian/filmmaker was generous enough to give me a few hours of his time, to ask me several thoughtful questions, to get to know my story a little better. I’m discovering, life’s all in the connections that you make.

I’m thankful for an upcoming Niagara Falls weekend trip with my family to celebrate the start of spring.

I’m thankful for my recent weekend away in New York City with my friend and travel agent extraordinaire, just in time for International Women’s Day festivities.

I’m thankful for rooftops, bars/restaurants/nothing but the roof.

I stand on one, on a cold International Women’s Day in New York City, with my friend Anita.

I’m thankful for fear that I keep facing.

I’m thankful for the opportunity to share my fears and not feel so alone. On the stage, the presenter (my “writing mentor” was the presenter) spoke about fear in her talk and then called me up, along with two other ladies, to share what we’re afraid of.

I’m thankful for lovely songs and their singers.

Though I don’t mind winter like some do, I am thankful for this first day of spring.

“Everything is new in the spring,” said Anne. “Springs themselves are always so new, too. No spring is ever just like any other spring. It always has something of its own to be its own peculiar sweetness. See how green the grass is around that little pond, and how the willow buds are bursting.”-
L.M Montgomery, Anne of the Island

TToT: Thirty-five For Me and Five For Her Headache, #Blogiversary #10Thankful

Here, I hope to leave something behind when I go. Here, I won’t look back with any shame or regret at what I’ve said, what I’ve written. I am proud to be Her Headache.

I am
thankful
for this blog and all those who’ve found me here and read what I’ve written on these virtual pages, ever since that 2014 February of my thirtieth birthday.

As for how to celebrate my five-year anniversary with this space, I couldn’t quite settle on how to best show my gratitude and my pride on all that this blog has brought to my life.

In the beginning, it all started with me showcasing my
BUCKET LIST
of items I’d wanted to experience.

Since my kidney transplant, twenty-two years ago, I am all about not taking each day for granted and my list was a way of stating my purpose and no longer settling for less out of fear. Things like chronic pain and disability threatened to take away a life worth living, but I fought against that and found this blog as a part of that.

In this last five years, I’ve been lucky to check off several things on the list, though I am enjoying the ups and downs of the journey, as I’ve learned that to be the best part of the whole thing really.

Still, I can’t stop wondering where life will take me and so here we go with the review of the things I have done and seen in five years that I may not have dreamt I’d do, during the most difficult days in my past:

I am thankful for the teacher I’ve had, for the last three years, since I decided to take a chance to learn to play an instrument in my thirties. Violin was beautiful to me and I wanted to learn to play with a bow, to produce those kinds of heartbreakingly gorgeous sounds I’d heard from the violin for years. I was drawn to it since I gave up on clarinet back in high school. (Too much air needed, blowing into that thing, which was hard on my head, prone to headaches already.)

She is leaving on a new adventure soon and I must face that thing I often dread, “Change”.

I am thankful for my violin and the progress I’ve made so far, even when I get down on myself for not learning more, faster.

I am thankful for my autumn of 2018 visit to the Maritimes, Canada’s eastern provinces, even my short visit and the limited bit of Nova Scotia I saw. I am thankful I got to place a small item, a token of my appreciation for her gift of iconic literary characters like Anne Shirley in Canada’s cultural landscape, on her gravestone. I got to write a note of my gratitude, from one writer to another, in the guest book in the house Lucy Maud Montgomery was born in. I was brave to finally state, in writing, that I think of myself as a writer, even up next to someone as talented as Montgomery.

I am thankful I got to walk along those Prince Edward Island beaches, the coastline and the smell of the sea. Red Point. The End of the World P.E.I. and the force of the wind at that spot, lighthouse next to a drop down to fearsome ocean roaring down below me.

In these last five years, (not only out east) but I’ve traveled to Mexico, Yukon, British Columbia, and back to Florida for the fourth time.

I am thankful I got to make it to my twenty-year anniversary with my kidney, from my father, and that I got to celebrate that with him and my family and friends, zip lining at my favourite Niagara Falls on the Canada side. I hope to zip line in more places around the world in future.

I am thankful I technically did get my writing available in bookstores, when I wrote a short piece which was included in a print magazine called Misadventures. It was only available in Barnes & Noble, in the US, so a friend went into one and took pictures for me of that magazine on the shelf. I hold that book in my hands and am proud to know I have writing inside of it.

I thought it fitting to make my five-year blogiversary into a TToT post, one of the best things to come out of this blog since 2015 when I discovered other bloggers doing it and I joined their exclusive TToT blogging community.

Thank you, TToT comrads and all of you, for visiting me here. You’re the best.

All jokes aside on the wisdom of getting older, as I turn thirty-five and look back and look ahead, I know the fun is in the journey, not necessarily its destination. Still, I will always write about it all here, or for as long as I am meant to,

Where will I be in five years? And, how will I have gotten there?

TToT: Time, Place, and Space – Lost On Spot, #FamilyReunion #LaParada #Panorama #10Thankful

“It helps, too, to dream big, to make plans for future projects that are beyond the scope of my current experience, to make connections with other people who work in the arts, to apply for grants, send out stories, throw bottles into the sea. Make space for more opportunities to unfold. Here’s a fun thing to try: write a letter to yourself, addressing yourself like you would a dear friend. What advice would you give yourself? Can you name all the things about yourself that you like, that give you strength and courage? What questions would a good friend ask you? (I did this at the beginning of June, and reading over my “Dear Carrie” letter now, I recognize that it has helped shape my summer in positive ways.)”

–Carrie Snyder

I read this blog post and wanted all of it. I want to think good things about myself and write it all down. I want to know art and other artists. I like the bottle in the sea idea.

I have been slacking, not keeping up reading other thankful posts. I have let myself down, in a couple ways this summer, but then I’ve taken on so much that is new and thrilling too.

Ten Things of Thankful

I’m thankful for feedback that is hard, sometimes/at times more than others, to hear.

I know I am learning from it. I know I need to hear it. I know it is part of the deal, of being a writer.

I’m thankful for a surprise offer.

It came at just the right moment, right after the difficult-to-hear feedback. It was a strange contrast of a day.

I was unable to trust in it, at first, because I still don’t expect good things to come my way much in life. (Bad habit/trap to fall into.)

I could sure use offers like this one to come along, once-in-a-while. It was from a well-known company, with a healthy budget and reputation. I was discovered, just by having my words, in existence, out there in the world.

I should be able to brag, but still I am uncertain whether or not to speak details of the thing in question, while contract is still being worked on and leading up to the release date.

Still, I had to include it here, in this list, this week. I won’t ever forget that contrasting day of offers, for feedback and for growth and opportunity. I only need to make sure I get it right.

I’m thankful for friends/writers who offer me a bit of encouragement when I’m starting to doubt.

Editors are unknown and unfamiliar to me, but then that means their job isn’t to make me feel better about myself or to buck me up. I know, logically, that isn’t their responsibility, but yet I probably still am looking for that, somewhere, deep down. Working on it.

Friends, those who know the world of writing (creatively or business wise) are the ones who are there, when I need them the most, to remind me that I am a writer, still learning and growing, but yet not at all without merit.

It’s just nice to hear it. I am indebted to both editors and writers/writer friends/friends and family, for the contrast.

I’m thankful I got to check out a live radio studio.

Radio Western (94.9 CHRW)

I was in there, going and observing the action live, while my brother put on his Friday music show. I told him, on air and off, that witnessing him in that environment made him seem a whole lot cooler.

I was there to celebrate his year on air (48th episode or so) and to talk about the summer social we have coming up, for our work with and as the
Canadian Federation of the Blind
and also, to get any listeners, familiar with his show, familiar with him and I together. (Keep reading to find out why that is.))

I’m thankful the woman who runs it wants to give us a chance.

She has offered us a weekly half-hour talkshow. We are doing it (based on our podcast/Canadian Federation of the Blind) as a theme. We will talk about disability, accessibility, and equality/equity. We will be current (have call-ins/live guests).

She has also offered to air already recorded episodes of
Ketchup On Pancakes
and so that’s why we don’t want to do a total copied version of our already-existing podcast together. That is about family/creativity/humour, not strictly about disability issues.

It isn’t mainstream radio as most people think of it, known by everyone, but a university radio station supports the arts and local talent, as well as community. It will be more of a reach than we’ve so far had, be broadcasting us to more of an audience than we’ve had as of yet.

And so, we are (soon-to-be) available to people, driving in their cars, across London, Ontario and beyond. Also, we are available, online and on Rogers (channel 943).

Now, all we need to do is come up with a catchy name for our talkshow that captures what we are about. We have a little less than one month to do this. Sometimes names and titles are easy to come up with and other times, not so much.

I’m thankful I got to see a talented singer/performer live.

She is a local girl, someone I’ve known from a writing group, full of talent, and full of life. She is animated and energetic. She is many things I wish I could be, but have no stamina to be for long.

She is multi-talented creatively. She went to school for musical theatre and she ended up singing some opera (in English/German/Italian I believe). She had to practice, in front of friends, family, and local community, to attend nationally, after having gone to perform in provincials.

She sang about men and about eating children. She sang and had two young men performing, so she could take a break. It was inspiring and fun.

I’m thankful for a long awaited family reunion.

We used to see each other (my mom’s side of the family) at Christmas every year. Then, with every passing year, our group increased in size. Then, both my grandparents passed away, (2005-2010) and we would’ve needed to rent a hall for our gatherings. The decision was made at that time, to stop holding holiday celebrations, and we’ve seen a lot less of each other in the years since. Some of us see each other more than others.

It was a beautiful day. I tried to enjoy the day. I don’t do well in big groups, even when it’s family. These are people I have known, more or less, all my life. Some came along in the nearly 35 years since I was born.

Cousins have children and some didn’t or couldn’t make it. The children don’t know me. Some of the adults don’t know me anymore and I don’t feel as if I know them now.

Still, family is important. There are connections (no matter the time that’s passed us by or the place/life’s circumstances that have occurred). I know we’ve all changed. We’re not the same people we once were. I know there’s a set of roots there, those that run deep. I wanted to reconnect. I can’t make that kind of connection happen again, not with the wave of my hand or by snapping my fingers.

It was nice we did it. I do hope we can make it happen every so often. I wish some things were different, but we share a common thread of where we’ve all come from, no matter where we might now be or where we end up.

The food was good and the kids had fun. It was on my uncle’s farm, where I grew up staying, for summer holidays, as a child. I was never a farm girl, but my mother had been, like her mother and father before her, and my cousins were, though I did grow up a country girl who would eventually move into town.

It ended up the perfect spot for a summertime family reunion.

I’m thankful for my August birthday boys.

I’m thankful I met these talented writers in Mexico and that I get to go on another journey with them, if only by reading their wonderful words:

Go on a trip to Buenos Aires, Argentina with Angela Lang

or else…

wander through time/space/place with Kristin Vukovic

These two writers, along with the rest that P publishes, make me want to keep working to become a better writer myself.

I’m thankful for
this literary travel journal
they are both featured in, and for “Lost,” the most recent issue.

It is full, with each and every new issue that gets released, with the best writers around.

It is soon to celebrate its two-year anniversary. Happy Anniversary Panorama!

Your name continues to thrill me to no end. The bigger picture indeed.

TToT: Black Holes and Doughnut Holes – Heather and Bogs, #10Thankful

“My advice to other disabled people would be, concentrate on things your disability doesn’t prevent you doing well, and don’t regret the things it interferes with. Don’t be disabled in spirit, as well as physically,” said Stephen Hawking, renowned physicist and director of research at the Center for Theoretical Cosmology, University of Cambridge, in a May 2011 interview with The New York Times.

I’m trying Stephen, I’m trying.

Stephen Hawking’s Canadian connection.

His knowledge of cosmology was mind-blowing to me, to me as a young girl who loved space and the planets, and now I listen to his words (still left behind) about his curiosity at what’s out there, up there, somewhere.

Stephen Hawking was, it seems to me, about three things: family, curiosity, and humour.

Ten Things of Thankful

I’m thankful my passion project has been released.

http://www.cfb.ca

My movie survey is right there on the home page.

I’m thankful my father and my uncle had a successful and necessary road trip together this week.

They had to travel, go for a few days, to deal with a few things from my uncle’s passing away last week.

I’m just glad they could do it together, as brothers.

I’m thankful I heard back from a few local media outlets about spreading my message for better audio description.

My local
radio station (104.7 HeartFM)
put my story on the Friday morning news report and on their website.

I’m thankful for another yoga session and I felt no lingering issues.

I felt badly about myself, a little as I was doing the stretches, but tried to give myself a break.

I really do wish I were more flexible, in ways that matter like strength and balance, but I do pay close attention to the sound of her voice as I try to follow along and not think too much.

If you know me much at all, you know that’s not so easy for me, but that’s the one hour out of my week I really try my best.

I’m thankful my part (introduction) is almost entirely complete on a paper about the value of braille.

I was thankful to have the help from a research and referencing expert, a library student, to give my writing credibility. I would never want to appear as if I were trying to take credit for words, thoughts, or ideas that weren’t my own.

I am not sure what is left to do, where this paper will end up, but I am proud I am part of it.

I’m thankful for Ireland.

I don’t use St. Patrick’s Day as an excuse to get shit faced, but I do understand the celebration of a country such as Ireland because it is an important place to me.

I’m thankful for Canada.

When all hell’s breaking loose with the current US Wh, and when governments like China and Russia seem so corrupt because their leaders seem to go unchallenged, I am grateful for the relative calm here.

I know some would argue about the actual fairness of things, even here, but I know it could be worse. Even when I find Ontario to be heading in the wrong direction, I can feel good that people can choose.

I am thankful I can speak about such things, here on my blog, without fear of being silenced.

Nobody’s attempting to assassinate me by poisoning with a powerful nerve agent. Phew.

I’m thankful for Stephen Hawking’s words (see above, to the quote at the top of this post).

I am thankful, also, for his ability to see the lighter side of life.

RIP Mr. Hawking.

A Stranger Returning Home, #MLKDay #JamesBaldwin #JusJoJan

Just. Juice. Prejudice.

These are three things that come to mind when I think of the word
“justice”
because they look similar in my mind, not because they have anything really to do with the word itself.

Just Jot It January, #JusJoJan

Okay, well, maybe justice and prejudice are related, but really I say this now because I am delaying the moment when I have to write about serious things.

Today hasn’t shaped up the way I was expecting it would. I was trying to figure out how to write something about Martin Luther King Jr. and then Dolores O’Riordan died.

Well, that’s not really a topic of justice. It only adds to my blue mood on Blue Monday as it stands.

I relate to the fight for racial justice, in that I can take my disability and think how discrimination manifests. Still, the subject is a sensitive one, as it should be.

It’s like the reconciliation discussion I learn about, with Indigenous Peoples, daily, here in Canada and in other places, all over the world. I am just sad, sad we haven’t come far enough and in some cases, have slid backwards with time.

This is the type of writing that evolves and changes throughout a day. I started this (mid month Monday) thinking about how to address MLK Day.

I’ve spent most of today lamenting the death of a one-of-a-kind voice in music, and I’m ending it by watching a documentary I have known about for months about writer James Baldwin, being shown on PBS.

I haven’t read his stuff and I know very little about him to be honest. I do know that these issues of rights, of where privilege lies, and on how to fight oppression and for justice, are bound to be found throughout Baldwin’s doc, in his own words, years before I was born.

He watched the young girl try to attend school and be spit on, chiding himself for not being there to help her.

Disgust and anger. How to move past this and into making it all better?

Baldwin didn’t miss America while he was in Paris. He didn’t miss it, but he did miss his family and his culture.

MLK knew he wasn’t likely to live long to see any sort of change.

It is painful for James to return, though he is home again.

James Baldwin said: The line between a witness and an actor is a fine one.

This feels so intensely true right now.

So poignant all these years later.

All about class and culture and race and so many other classifications I cannot seem to parse.

James did not stay, as witness. He was free “to write the story and get it out.”

He saw Martin and Malcolm X both go and he wrote about it.

Malcolm, Martin, martyrs both. Baldwin was the writer.

He writes: I Am Not Your Negro

How to reconcile any of this?

And so goes the clicking of the typewriter’s keys.

If you get the chance, watch I Am Not Your Negro.

Things sure have changed, since last century, but we writers still will write.

The story of America,” Baldwin said, “is not a pretty story.” “Aimless hostility.”

“This is not the land of the free.”

—James Baldwin